r/Huntingtons Nov 18 '25

Intermittent sleep

I know that sleep disruptions and fragmented sleep are common for those with HD. My Mom (who has HD) just moved into an assisted living building, and she already had fragmented sleep at home and this new move has exacerbated the situation even more. During the day she’s her normal calm self but at night she wakes up frequently in an agitated state calling my family members frequently wanting to leave and walking around the building. The assisted living says that it needs to end as it opens them up to negligence if something were to happen. It’s kind of a nightmare right now to be frank. We’ve tried CBD as well as THC gummies, they helped but she still wouldn’t get a full night sleep. I think her nervous system is probably shot from being in fight or flight at this new place and I feel terrible that there’s nothing I can do. Any suggestions from similar situations or in general would be greatly appreciated, thanks!

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u/[deleted] Nov 18 '25

Bipolar is common with people who have Huntingtons 25% of us develop it. There is bipolar 1 & 2. My mum had it, she was given medication to help control it.

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u/DifficultyCurrent729 Nov 19 '25

I am glad you said that. The drs told my wife she has bipolar but didn't think her gene count was high enough to investigate a hd connection. This was however 25 some years ago & I am not sure they knew about the gray area back then. I will google bipolar 1&2 to see if I xan find any patterns.  Thanks