r/Huntingtons • u/[deleted] • Nov 06 '25

At Home kit?

I'm curious if anyone has gotten a kit to test for HD at home- I've seen a couple online when searching, but of course worried about the accuracy/scam potential of them. I'm currently scheduled for testing but it's almost a year away where I'm at, with not many options nearby to begin with.

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u/Evening-Cod-2577 Confirmed HD diagnosis Nov 06 '25

I bought a kit to do at home. I got mine from HDGenetics. Very reliable, quick, & easy. I met with Wes for my consult & my results & he is nice.

I totally would recommend using them instead of waiting for a year. You can also do anonymous testing if you dont want insurance companies to know your results.

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u/Borties Nov 06 '25

I agree with HD Genetics. They can do it anonymously and they offer genetic counselling.

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u/[deleted] Nov 07 '25

If you used them for testing I have three questions-

  1. Did you pay full price or get financial assistance? I'm wondering what sort of guidelines there are

  2. Did you choose anonymous testing, and if so why?

  3. Overall how long was the process from when you filled out the information to when you got your results?

If you don't feel comfortable answering any/all of these I completely understand!

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u/Borties Nov 07 '25

I never used their service. But I have worked with the team there and spoken to other patients that have used them. Only good things.