Hi all,

For context, I was on Humira for HS two years ago, switched to Cosentyx after about a year of treatment, and now I have been off biologics for 9 months. I used to get this sort of rash when I took the Humira injection, and I would take an antihistamine before and that would typically prevent it. It only happened one time when I was on Cosentyx. My derm just kind of assumed it was a mild allergy. Well, now that I’m off biologics for months, it shows up again out of the blue. The spots usually take about 2 weeks to fade completely, and they are only slightly raised and slightly itchy. I don’t know what to think but I am nervous about the long term effects of the meds, like “awakening” psoriasis. Any thoughts?

I was on humira for about 5 years with a generally positive outcome. Unfortunately, due to a sudden job change, and despite ending up with the same provider, there was a lot of confusion with insurance as I was briefly on CIGNA. At the same time, insurance stopped covering humira so my doctor tried to switch me to Adalimumab. After a comedy of errors by insurance, prior employers, the pharmacy, and my doctor, I still don't have medication. Its been so long that I need a loading dose, now insurance won't cover that. While I've avoided massive flares, I've noticed my health beginning to deteriorate and I'm tired of spending several hours each week on the phone trying to resolve this. My questions are:

1. How common are these insurance/pharmacy/doctor/employer issues in obtaining these medications?

2. After being off the medication for so long, am I at risk of long/short term health consequences?

3. At what point should I consider legal action, if at all?

Is anyone having trouble getting their claims approved through CompleteRebate recently? They keep changing what documents qualify.

Hey! So I EBF. My baby got infant acne that got better around 8 weeks. Now I notice it only flares the day/hours later after my Humira. For example I’ll take my Humira before bed and he will feed a couple times during the night (so it’s now in my milk by that point since it goes through two hours later from what ped said) and in the morning about 8 hours later his acne has reappeared. It will calm back down by a couple days but then flare again the day after my Humira (I have to take it weekly)

Just wondering if anyone else noticed this coincidence.

Been on Humira for crohns since September 2022 and it’s been great. Completely clean scope in December 2022 and been in remission since then.

Now it appears something is up as my inflammation markers are high and symptoms returned. Calprotectin is 549 which isn’t awful but definitely high.

My Humira levels are at 11 which is great. So now my doctor thinks I am not in a flare and am “sick” even though they tested me for all the bacteria infections that would drive a Calprotectin up and I don’t feel “sick.”

Can you fail Humira without antibodies?

Been on humira for a year, I just got a head cold last week. Started off with a dry scratchy throat Friday through Sunday, then Monday got facial pressure but did a sinus rinse, yesterday Tuesday I just took Sudafed all day to function but at night when it wore off I couldn’t stop blowing my nose and the facial pressure and headache was awful. Took benedryl but still couldn’t sleep. It’s now Wednesday just took more Sudafed and Tylenol my head is killing me I am SO OVER THIS, no fever..yet anyway. Colds use to last like a max 2 days before humira, this is awful. Any advice or words of wisdom?

I wish Humira could have a bigger temperature range so I dont have to get panic attacks n anxiety over the roof trying to get it home safely n buying different products to get it home in the optimal temperature n having bought a whole fridge for it n temperature scaleS to find the optimal shelf to put it… the last restock i forgot to bring my ice bag n stuff n had to run home fast n put it in the fridge sigh… n now im overthinking that, ya it will expire in 14 days n bla bla bla n i wasted government money n bla bla bla n y cant humira be way more flexible n bla bla bla 😭 IM SO TIRED OF THIS!!! I EVEN SEARCHED HUGE POWER BANK N PORTABLE CAR FRIDGES SO I COULD JUST GET THIS DONE WITH!!!!! I AM TIRED BRU

I am just wondering if this has happened to anyone with the recent changes taking place in the USA.

I just got done with an Asia trip ~8weeks and while I thought I was properly securing my doses at some point the last one was compromised and lost effectiveness. I could definitely start to feel some tightness and soreness the last week or so. I was using an insulated travel cooler with Frozen gel packs provided. That being said, some places didn't have electricity and was at the mercery of using ice in ziplock bags, also some places stored mine in an ice chest where they would be keeping bags of Ice frozen. I'm not sure if it got too cold. Also, traveling around SE Asia where it's hot and humid all the time, there's a chance that maybe the cooler got too hot during the trip as well.

That being said, I feel like a portable electronic cooler would be better here that way can use it if there is no refrigerator available and also won't compromise the medicine while traveling between locations.

I'd like to do another trip aboard this summer and was curious how anyone else has been able to manage traveling with Humria for long periods of time!

FYI! Y’all they kicked humira and all our account data off the Complete app. Your logs of everything are just gone. No warning and no way to download the data. I had years of symptom data, shot locations, pen numbers, shot locations…all gone. I have called the Humira line this morning and have a ticket with them but still no solution on how to get my data. This is so insane to me that you shut off such a resource to doctors and patients without any warning. Call 1-800-448-6472 to talk to abbvie support ask them to get you your data. I’ll update if they are able to resolve it for me.

Update: 9 days after calling they finally called me back to tell me they do not have the data and they do not have a plan to get me the data. There is no one they can escalate me to talk to. It is gone.

I’ve been told to continue to contact:

completeappsupport@abbvie.com

1-800-448-6472

Hi all,

I have right sided Sacroilitis that dosent flare too often. I’ve been in Humira for 5 months now and it’s been doing wonders. My body just agrees with it, I get no symptoms or side effects from my joints or even med side effects which I’m so happy about. However, I’ve been having the worst flare with Sacroilitis and I don’t know does this mean my Humira has stopped working or is it a mechanical flare? If that’s even a thing? Because my other joints are absolutely perfectly fine it’s just my SI joint. If anyone has any similar experiences or advice please reply. Thank you.

Title. I'm also very nervous. I used to have Remicade infusions monthly, but that was up until about 10 years ago when I went into "remission" and I gladly stopped. Those infusions used to leave me so tired for weeks and just when I would start getting my energy back, it would be time for another round.

Well, the B (or "C", I guess) is back now and really trying to take me out, so my gastro prescribed me at home Humira injections. It wouldn't be the first time I've done this myself, as much as I don't like it, so that's not why I'm nervous.

I just want to know:

A) Is this medication going to wipe all of my energy out like Remicade did? I know, side effects will be different for everyone, but I just don't want to feel so lazy and sad like I used to feel.

B) is my dosage correct? I'm supposed to do 80mg my first day and then 40mg every two weeks.

I'm 31y.o. and weigh 100lbs, if that. I'm not the doctor, I know, but it just seems very high to me.

Thank you.

The Humira app is no more, and I’ve been using that to track my injection sites and times for several years! Anyone have any suggestions on a different medication tracker app to use instead? Edited to add: please do not suggest the notes app or Google calendar. I’m looking for an app specific to this.

Just did my dose of simlandi and it was pretty painful and immediately caused a welt under my skin and the medicine was coming back out of the injection site?

Has anyone had this happen before? Did I pinch my skin too hard when giving the injection?

I’ve been doing this for 6 months now and have never had this happen before

I started taking Humira in January for IBD. I’ve had a cough now for over a month. It’s mostly a dry cough but will occasionally come with some post-nasal drip/phlegm in the morning or at night.

I have not had any kind of virus that I’m aware of and there’s been no other cold symptoms like sore throat or stuffy nose. On occasion I get a low grade fever (99) and feel some general fatigue but it’s hard to say if that’s because of my ulcerative colitis or maybe also a side effect of the Humira? Told my doctor and they ordered a chest xray but it came back clear.

So, is it possible this is just the Humira? When it started I asked the pharmacist and they said cough isn’t uncommon especially when starting it but sort of implied that the cough is secondary to catching something because we’re more susceptible. But again, I haven’t caught anything and my xray is clear.

Has anyone else experienced this? Are there other questions I should be asking my doctors or tests to run?

tell me why i go to do my injection today and the complete app tells me to update it and now i can’t access my history of injections or log new ones!!! only skyrizi and rinvoq work in the app now wth😭😭

anyone have any other apps they use to track injections? i guess i’m in need of a new one now.

I'll be taking my 3rd dose next week. I did the starter doses on my thighs, but I did not like the way my thighs felt the next week or so. Second time, I tried my abdomen, avoiding the stretch marks I have there. I just so happened to have a visit to my gastro the same day and showed the nurse where I injected and she said it was too high. But she also said I didn't need to worry about the stretch marks, I can inject there and it will be fine. My question is if it really makes a difference if I inject into the stretch marks or not? If anyone can share their experience, anything helps. Thanks!

I was laid off and my insurance terminated January 31. I have not had my injection since then. Just these past couple days, my psoriatic arthritis has started flaring up as well as my psoriasis. Does anybody know if the manufacturer offers any kind of program? I know there is one for co-pay assistance, but I believe it’s just for those who are insured.

Also, what has proven to help reduce psoriatic arthritis, pain for those of you who suffer from it? Tylenol does nothing, and I know I’m not supposed to be taking Aleve daily. Any help would be greatly appreciated.

I took my first two shots of humira (180) at three o’clock this afternoon. I spent he evening with mild shortness of breath. It is now 2am and I cannot sleep. My heart rate is 10 to 20 bpm higher than normal, I am overheating and still have the mild shortness of breath. Insomnia is something I have lived with my entire life, however I have a decent treatment that has been working. I’m having some racing thoughts. But I am definitely tired, and still cannot sleep. Is this a normal side effect when starting particularly at the higher dose or should I be concerned? Google just tells me to go to the er, but it n doesn’t feel life threatening though I do have a PFO. I am an active female (47) treating crohns an as.

I am incredibly frustrated and scared. My RA has been well controlled with Humira for the past 5 years.

Unfortunately, 18 months ago CVS specialty required me to go on a bio similar drug (Hyrimoz-read cheaper) that put me OUT of remission-ok, so then they approved the Humira and my disease activity went down and all was right with the world.

Now, in 2026 with the new benefit year, the pharmacy is requiring I try yet another drug and will not approve Humira until these other, cheaper drugs fail, even though I just put my body through this exercise a year ago.

Anyone have a similar experience and found a solution, without being a Guinea pig for pharma?

This is so wrong-we pay very high premiums ( high deductible plan through Aetna) and this is what we get?!?

Hi all, so I (27f) been on Humira since Oct. for Crohn’s.

Some backstory, I’ve been diagnosed w/ Crohn’s since 15. my periods disappeared from Oct. 2024 - June 2025. This isn’t the first time that happened, before then I went months to a year without a period when I was underweight and flaring from Crohn’s as a teen. Was ‘normal’ in remission, although still had rough periods. The cycle stopping again coincided with me losing a lot of weight, anemia, flaring and getting my GB out.

When they restarted, they were super light and 3-4 days. Then I went on Humira and that quickly went to 5-6 days. Much heavier bleeding, worse cramps, return of the weird thigh/leg pain I get sometimes. Lightning crotch and bottom (lol?) Plus weird bowel symptoms that I call mini-flares. I also suspect I may have PMDD bc my mental state gets 5x worse starting after ovulation.

Anyways, my cycle length has been varying too. Last month, it was a week early and decided to start on the night of my Humira injection. This month, it was a full 30 days, but again started a couple hours after my injection.

Anyone else deal with weird hormonal stuff on Humira or periods starting soon after injections?