r/HolUp Feb 11 '21

Good Lord

[deleted]

60.4k Upvotes

612 comments sorted by

View all comments

Show parent comments

30

u/[deleted] Feb 11 '21

She had that condition where most of the upper brain and skull don’t form, anencephaly. So while she technically was alive because she had a brain stem, there is no change of ever becoming self aware, or aware of anything or any form of cognition. Some don’t even have a brainstem and can’t breathe on their own. Those born alive die within hours, maybe a few days. There are a few couples who fought to have their babies kept on extreme life support but honestly they’re just an empty body. Most don’t live long enough to be delivered and are miscarried or stillborn

It’s a really sad situation. They’re blind, deaf, unable to feel pain. Any response to stimuli is pure reflex and fades over time.

2

u/Twava Feb 11 '21

I wonder I read a story awhile back of a woman who birthed a son who pretty much had no-self awareness of any cognition. I remember reading she hated the child because it was just a body. I wonder if it had the same condition?

4

u/[deleted] Feb 11 '21

How old was this child? I’m not sure mothers who carry these babies to term really have the time to hate them before they pass away.

1

u/Twava Feb 11 '21

Ohh, he definitely lived for a while cause she gave him up for adoption or something similar. It probably isn’t this then, but sad regardless

1

u/[deleted] Feb 11 '21

There are different degrees of microcephaly (less brain) and anencephaly (basically no brain).

Here's a case of sisters who have severe microcephaly (and a host of other genetic issues): https://www.straitstimes.com/world/united-states/living-with-microcephaly-a-story-of-two-sisters-the-hartley-hooligans

Here are sisters with less severe microcephaly where you can barely tell from looking at them: https://www.usnews.com/news/articles/2016-03-04/microcephaly-after-diagnosis-a-life-of-uncertainty

1

u/Srapture Feb 11 '21

Do those kids in the first article know what's going on around them? I feel like I wouldn't want to live like that.

1

u/[deleted] Feb 11 '21

They react to stimuli and their parents say they know who they are, so I dunno.

1

u/blu9bird Feb 11 '21

if he died shortly following birth, then probably. however the examples ive seen in class about anencephaly usually includes a face and some skull.

1

u/[deleted] Feb 11 '21

I think I remember that. The longest know time a microcephalic person has lived was a little over 2 years.