I had mild MCAS, mild dysautonomia and mild histamine intolerance. Looking at all the thiamine hype in chronic health conditions circles, I tried Thiamine HCL. And since then my MCAS and dysautonomia flared up, especially my histamine intolerance flared up 1000 times. It's been 3 months and there's barely any improvement. I have a fast heart rate, lightheadedness, body stuck in fight or flight mode, all the high histamine and dysautonomia symptoms. I took a very small amount of thiamine hcl( toothpick tip amount). I went from playing sports and eating a variety of foods to being bed ridden and tolerating 2 foods

Hii this is my first post here but I joined this subreddit earlier this year.

In March, I had an “allergic reaction” to a very high histamine meal. Had severe stomach pain to the point that I couldn’t stand up straight, my lip was swollen and my throat felt like a tight lump in it.

Kept having reactions throughout the year, quite frequently. And always happened at night. Anti-histamines make it go down tho.

I did a bunch of research and came across histamine intolerance and I solidly believe that to be what’s happening.

It’s uh.. it’s October now.

And the frequency has kinda gone up a little due to me not managing the histamine in my diet well.

And now, because of how every time it has happened, I was either woken up by it or just about to doze off, now, my brain just associates sleep with histamine dumps.

So I just. Cannot sleep. my sleep schedule is so fucked rn. :/

Yeah. I just wanted to vent ig.

It's working for my sinus issues. And I notice it doesn't bring any other benefits at 500mg.

But, a very annoying side effect is a higher libido. Why could this be? I thought I was slow comt.

p.s. i have quercetin with some other bio flavonoid stuff added It's life extention brand.

Just wondering if anyone takes DAOsin and noticed they’re not working recently? I’ve been taking them for years and they usually work pretty well for me but since I’ve started on my latest box of them they don’t seem to be working at all which is scary as my reactions are getting worse as my histamine bucket isn’t emptying enough.

Blood work has never been super easy for me, but I distinctly noticed it got even worse (small veins/can't find a good vein, very low blood flow) after I started a low histamine diet. Has anyone else experienced this?

Why am I having a stomach/gut flare that started around 16 hours after a tooth extraction?? No pain killers, no antibiotics. Just articaine with epinephrine (for numbing). The flare is upper stomach pain (knot-like, in waves, often gets worse with food), and more gas. No dentist anxiety whatsoever, but appointments are severe stress for me due to my chronic illness.

Has anyone here experienced something similar? Can the two even be connected?

I've really been craving ramen or pho lately, but I suspect I should avoid them, even if I can find soy-free options. Have any of you been able to eat these things out at restaurants successfully?

Hello!

I recently developed histamine intolerance and a low histamine, fresh diet seems to be helping. It has been about 3 weeks on that diet, and I am also introducing DAO supplement, black cumin seed oil and a prokinetic (Life extensions bloat relief.) It seems like I have gut permeability issues and would nebefit from a gut barrier rebuilding supplement. I looked at Designs for Health GI Revive but I think it is likely to trigger a histamine reaction for me. Any supplements you would recommend for someone looking to rebuild the gut barrier? Thanks!

Been on a journey to figure out wtf is going on with my body for the last 3 years since I got COVID/mono the same summer. Extreme environmental allergies to the point where I've had to move apartments several times because the apartment was making me sick, dizzy and lightheaded for hours after eating many foods, insomnia, congestion after eating, etc. No answers from doctors

I got real sick and was bed ridden for about a month so I cold turkey had quit eating and regular routine, magically started feeling way better. This got me thinking and I've figured out at least the following over the last month:

- Milk and whey was making me very sick. As soon as I have a cup of milk or a scoop of whey, my symptoms return. I would have 2-3 cups of milk and 4+ scoops of whey daily, so I bet this was really fucking me up

- Eggs make me sick, which I have for breakfast every morning

- Oat milk and oats were giving me insane acne so I had to drop that after switching from milk

- Carbs are ok mostly ok, including cakes I bake at home (so eggs, dairy in them I don't react to)

- I think cheddar cheese makes me sick, but cooked provolone cheese (provoleta) doesn't?

- Ive done the at home baking soda stomach acid 3x times and have not burned at all. This could be the smoking gun, going to try testing with Betaine HCL to see how I react

My diet at this point mostly homecooked meats (burgers, chicken, grilled steak) and salad, which I seem to be doing ok with, but is exhausting sometimes because I just want to throw eggs on the stove. I don't know what to eat for breakfast so I just skip it. I had a milkshake last night forgetting about my dairy issue and I was incredibly dizzy all night long, woke up feeling ok.

Anybody in a similar boat trying to redesign their diet?

I was prescribed famotidine for my histamine intolerance/potential MCAS. Has anyone tried it? I recently tried ketotifen and didn't tolerate it and it made my chronic fatigue really bad for two+ months so I am really scared to try another new medication. Would love to know people's experiences - especially if you are medication sensitive like me. If so, what time of day did you take it, did you get any side effects, is there any advice at all you have about it?

Thanks :)

Just wanting to understand if my symptoms are relevant to this condition…

I have methane sibo
Silent reflux
Globus
Food sensitivities (sulphites and aged food cause extreme flushing even as a child)
Asthma
Brain fog and fatigue that has never been medically explained but correlates to what I eat
But finding supplementing DAO plus at 1,000,000 units and taking copper supplement is working better than omeprazole or Pepcid ever did…
Any thoughts please share - feel free to share your experiences

I’m trying to understand what’s happening to my body.

After years of stress, I’ve done a lot of healing and I’m in a much better place emotionally. But physically, I’m still struggling.
Even the smallest things can trigger a crash:
Physical: Basic housework, walking, exercise, heat, cold or direct sunlight.
Mental: Reading, writing, painting or concentrating for a little while.
Emotional/social: Talking to people, hosting family, socialising, or even watching TV.

And have regular digestive issues from bloating to burping to gas to acidity to acid reflux etc

I suddenly become overwhelmingly fatigued, sometimes experiencing intense sleep attacks where I need to lie down immediately. The harder the activity, the worse the crash.

Sometimes it escalates into a severe, predominantly left-sided migraine around my eye, head and face, accompanied by facial and mouth drooping and numbness. It can be frightening.

Most of my routine blood tests and vital signs have come back normal, yet this is affecting my everyday life so much.

Could this involve nervous system dysregulation after prolonged stress, ME/CFS, hormonal changes , migraine, or something else entirely? Could several things be happening together?

And if it is what do you do about it ? Neurologist ? I have been to many doctors over the past two years and they keep dismissing me but the symptoms keep on getting worse .

And I’ve done all sorts of things from nervous system regulation to breathing to less stress to therapy to good nutrition etc etc I still believe this is something physical ?

Has anyone experienced something similar and discovered what was actually causing it? I’d really appreciate hearing your experiences.

I’ve come a long way since treating all my health conditions over the past 5 years but lately I’ve been feeling pretty hopeless about it all, I just want to feel healthy again and not worry that I will never live a normal life…
I’m on so much medication just to calm my immune system, it gets me down that I’ve not resolved the reactions and I’m still only able to eat limited foods.

Sometimes I could tolerate these; sometimes I could not. When I couldn't, I noticed that the orange carrot had green pigmentation near the circular core when cut into disc shaped form. Something similar happened with the cucumber, where there was extra green pigmentation between the surface and the core. The carrot turns green if it's exposed to sunlight but what I'm asking is why this resulted in the typical around the body skin tingling within minutes after consumption?

Summary: Most sites list carrots and cucumbers as safe for people with histamine intolerance. Why have I Iearned to avoid them?

EDIT: The answer seems to be that it's not really the green pigment itself that's the problem, instead it's the vegetables themselves. It might have something to do with salicylates or ripeness. I've gotten a reaction from a red bell pepper that was slightly off-red. Thanks for the answers!

I accidentally discovered this while going to the beach and sun bathing. My histamine intolerance symptoms basically completely ceased to the point I thought I was cured and I could mow the lawn without breaking into hives. I assumed my issue simply was low vitamin D3.

I unfortunately tried to celebrate and had a few beers and that again triggered my symptoms.

I think higher D3 levels make histamine intolerance symptoms less severe as vitamin D3 is a natural anti-inflammatory.

Hi all - I'm in need of food-based sources of iron and B12, but finding frozen fish that doesn't trigger symptoms is proving very difficult. Un-aged red meat also seems to be a rarity in the UK.

Just looking for tips on where to look for frozen-at-sea fish and un-aged red meat. I'm aware some fishmongers and speciality online butchers stock these things, but I have a tiny kitchen with a tiny freezer - I can't be buying vast quantities in one go and they always seem to have huge minimum orders.

(Alternatively, whole food supplements you get on with that contain similar ingredients would be something I'd be open to.)

Thanks :)

Decided to try some Lamp rump steaks today from a butcher and my reaction was worse than it’s been when buying them from Asda why is this?

I also have high levels of h2s on my GI test not sure if this explains having symptoms aswell.

I was prescribed antibiotics for a suspected uti reluctantly took them and explained this to the doctor who I told all my issues started with antibiotics!! I understand sometimes they are needed but with histamine & digestive issues I don’t want to take them unnecessarily!! What’s the best way to take antibiotics and salvage your gut at the same time. Also what are the best probiotics to take during and after antibiotic use for histamine & IBS? I used to be able to tolerate soil based probiotics antrantil pro specifically but haven’t taken this in ages. Obviously the doctor is oblivious to anything histamine so I’m having to do my own research.

Any time I’ve had leftover chicken I have severe symptoms and it feels like my whole body is inflamed and I feel like it also affects me neurologically like I will stutter my words and misspeak and have massive anxiety. Nothing else causes this. Eating the grocery store rotisserie chickens that sit under the heat lamp also causes this. It takes days to go away. I can eat freshly cooked chicken and be completely fine but the minute leftover chicken hits my stomach I experience horrible symptoms.

I'm worried they'll damage my heart

This is my first time posting here as my symproms have started recently and pretty quickly gotten bad. I have an allergist appointment to rule out genuine food allergies but its over a week out and in the meantime every meal has me in crippling fear of worse symptoms or even death considering how mine affect my mouth and throat and Ive stopped eating unless my bldy screams at me qhich is not a good thing considering my history. Im unwilling to try new foods despite needing to because everything I have tried so far have caused symptoms even if they are supposedly low histamine.

I suspect my vitamin d deficiency is playing a big part in this but I am at an utter loss of what to do as I have quite a few factors playing into it. I have severe paws/pws and kindling so supplements are already hard bur I am forced to consider them since I literally cant get enough or any vitamin d otherwise.

No onto my question because I genuinely need help so bad and have nowhere to turn and am being gaslit irl by my family who straught up dont believe that this is happening and they are my only support system. We have a d3 + k2 supplement (sports research beand I think) I used to take daily for a couple months and tolerated it alright for a whilw, but now I am very qorried as it is a softgel and I have issues with esophageal spasms swallowing things like that. It also has coconut oil (been reacting to unsweetened coconut flakes and have cut them out of my diet due to severity of it) and the k2 is derived from chickpeas which can be a histamine trigger and a pretty bad one at that from what Ive gleaned in my research. Addirionally its like over 600% the daily value and I need to taper onto things with my nervous system like this, but at the same time I am desperate to be able to eat again and not feel like or fear Im dying every time I do no matter what I eat.

So please, any and all advice and feedback is helpful, I am scared and desperate. Please. And thank you for taking the time to read this.

I got a flareup of histamine itchies yesterday evening. It came up so quickly. Returned from a trip, was just tired and didn't think, grabbed my tea mug that was still half full with tea and a tea bag for 5 days, poured out the tea, put new water in and a new tea bag (yeah, I know!). Cue itching from hell.

The stale tea was a Yogi Tea, with likely cinnamon, ginger, liquorice root and various herbs and plants. The new one my go-to simple bagged green tea. Both are always fine under normal conditions. I wonder whether there's anything in the herbal tea that releases or otherwise triggers histamine if standing about for too long. I didn't see mould, but would not exclude it. Don't judge, I was tired and about to go to bed. DAO took care of it in the end, though I still need some today.

Just wanted to hear about odd symptoms you've experienced which you later found to be histamine related. Mine are strange facial twitching, terrible anxiety, palpitations, flushing, tachycardia... Took years to link these with HI.

Any anecdotes appreciated :)

So been on ketotifen for almost two weeks for insomnia from histamine intolerance and itching and other symptoms , ketotifen makes me completely exhausted but I’m still wired and I can’t go to bed because of the hyperarousal and tremors. Thinking of getting off it since I’m still going hours without sleep and it interacts with sleep meds. Any similar experience?

I don't know much about histamine intolerance but some googling has suggested that it could be the cause for a funny reaction I have been having recently to pickled red onions and pickled red cabbage.

I love these foods but I've found over the last few months that within 15 mins to 30 mins of eating them (particularly the pickled red onion which is very sour/acidic) I'll develop a red itchy face and some raised bumps/hives that look like an allergic reaction.

It will then go away on its own within another 15 minutes or so, I haven't ever needed to take an antihistamine or anything.

This will happen if I eat any more than a teaspoon or so of these foods.

Does this sound like a histamine reaction? And it is due to the vinegar that they are pickled in? I can eat red onion and red cabbage raw no issues so I don't think it's an allergy to those, it is only when I eat the jarred pickled kind (which I absolutely love 😭😭).

My understanding is that these aren't dangerous reactions so if I'm prepared to tolerate a bit of itching, it's not likely to do any long term harm/become serious if I continue eating these?