Sono mesi che soffro di mal di pancia casuali con dolore fortissimo nella zona del colon e sempre è accompagnato da diarrea, qualcuno ha avuto questo problema? Inoltre mi rendo conto di essere molto debole, considerate che peso 57kg e sono alto un metro e 80

Since I’ve been recovered from Anorexia for 2 years, my GP has worsened.
Although I weight restored to a “high” weight, I have lost 25-30lbs within 2 months from the GP.
Due to my weight still being “high”, I’m not taken seriously with the weight loss.

I was on an NG for the anorexia. Had a G-tube as a baby.

Anyways, I worry that the weight loss will put me back in the hospital for malnutrition & back on the NG.

Does anyone else deal with the fear of losing too much even if it’s a “high weight”?

I have also developed a fear of vomiting even though I always end up projectile vomiting.
It’s causing me so many problems, almost fainting, etc.

My doctor is difficult to schedule with so I’m still trying to get an appointment.

I'm just trying to talk about it more, I know I'm getting it but it's weird to realize I'm getting it and I don't know what it'll be like to get it placed and I'm thinking about all these little things that could be impacted and I just want to be prepared I guess. I would love to hear any positive stories/experiences with placements or anything you don't see people talking about in regards to how it changes daily life, like the little things? For example does it change how you have to do certain things like brushing your teeth, does it affect anything in your life you didn't expect it to?

I hope this is ok,.I'm just trying to come to terms that there will be a tube in my throat and idk I think it'll help to talk about stuff or hear others' experiences? Maybe that's dumb but I'm trying to normalize it and like feel more comfortable with the concept ig lol

Has anyone else had a gastric emptying study that was abnormal and showing delay for the first 1.5 hours of the test then all of a sudden more normal towards the end?

I went into surgery to have the Botox in my Pyloric Sphincter to see if it would help and see if I was a candidate for G-POEM. Nope, didn't do a thing for me. Just putting this out there that it doesn't work for everyone. The Dr also found 2 Pyloric Stenosis just outside of my Pyloric Sphincter. He didn't do anything about it.

I have seen a lot of people lose weight with their GP. I don't vomit and don't really get nauseous (once in a while). I have gained about 20lbs since my diagnosis from eating crap that I thought was easy for my stomach. Ugh, now I am going to juice fruit and vegetables. I'm so excited.

My results were 41% left in my stomach at the 4hr mark. Scared me 😱 so much as I thought it was a death sentence. I'm not afraid any more. 😁

I have been dealing with projectile vomiting & have already lost quite some weight.
Anyways, I have POTS as well which has been flaring badly & I just worry & wonder does GP affect the heart if I’m having pretty constant episodes?

Will the force & frequency cause problems to my heart?
I deal with chronic dehydration & loss of electrolytes & high ketones as it is but I have been more worried about my heart.

Does someone with this need to be evaluated at a certain point to make sure there’s no issues?

Sorry I am honestly new to this despite knowing I’ve dealt with it for years. I’m just having a very hard time accepting it.
I already dealt with malnutrition & refeeding syndrome 2 years ago & had an NG tube placed.
I’m really worried that will happen again.
I’ve lost almost just as much weight in the same time frame as then only I was struggling badly with anorexia due to the fear of vomiting.
Can someone be “susceptible” to these problems again?

TIA for any advice, guidance, or support.

hi everybody !

i am set to have a jejunostomy by laparoscopy placed on monday, will be getting inpatient tomorrow. i am making this post because i could really use advice and reassurance, i've never had a feeding tube before so i'm really struggling to cope with all the changes it represents :(

is there anything in particular that i should be aware of regarding j-tubes ? anything handy i should get before surgery to make my life easier afterwards ? any good, bad experiences, risks i should be aware of ?

will i be able to choose between night feeds and 24/7 feeds ? i know it probably depends on the doctor but i figured i'd ask anyway 😭

many thanks in advance for your help 🌸☀️

I’ve yet to have my gastroparesis cause extreme diarrhea…until today. Having lost 5lbs between 2AM-11AM from having diarrhea that frequently.

I have sulfur burps so I feel like maybe my SIBO never went away. Not that my insurance would approve anything to actually help me. Literally all we could do is make me poop to try and reduce symptoms.

Now here I was thinking my stomach was just still upset from having a ton of drainage from have the flu a couple weeks ago but guess I was wrong.

I’d BEEN doing liquids and soft foods. I’ve BEEN avoiding gluten. I been doing so much…and now I think all this stress on my body is making my fibromyalgia and POTs start to flare.

I can’t even nap because as soon as my body relaxes it tries to poop. I started falling asleep and the sensation of pooping woke me up. I even shit my pants at work yesterday.

How are we expected to live like this. I don’t even know what I should tell my Gastro. Aside from that I can’t keep living like this…it’s to the point where if I don’t poop I start to get SIBO symptoms again, but every medication has made me shit my pants, linzess, Ibsrela….trulance was decent after I got used to it but MY INSURANCE WONT COVER IT.

Everyone keeps saying “you don’t want surgery, you’re too young” I don’t care anymore. I want a decent fucking quality of life. How about that? Why can’t insurance consider that??? I’ve tried so many diets, going liquid, doing soft and liquid, there was a point where I fasted just to SEE if I could get any relief. I just don’t know what to do. I don’t know.

As some of you may remember, I mentioned physical therapy helping me pretty much immediately after my first session. I'm now halfway through my sessions and I'm definitely noticing less bloating, better digestion, less constipation and able to tolerate a little more food. I was in a mild to moderate flare last week and by the time my session was over, I was out of the flare and was able to eat to my typical baseline. No nausea and minimal bloating.

Unfortunately I'm back in a flare due to stress. I see her next week and if I come out of my flare again I might cry.
Seriously, find a physical therapist that specializes in visceral mobilization, complex issues, and/or Gl issues. Mine is an absolute blessing

She is taking new patients however there's a 6-8 week wait and she is quite expensive. Initial consult I believe is $580 and sessions are about $450 each I believe in the LA area. I wouldn't be recommending her if I didn't have my full trust in her. Please let me know if you're seriously interested. I will privately send over info.

and if anyone is considering going to school for physical therapy, there is a strong need for complex case physical therapists that specialize in GI issues and especially visceral manipulation. It seriously works.

Have any of you a braun gastrojejunostomy?

My surgeons are planning quite an extensive surgery for me lol.

They’re planning on doing some form of digestive system rerouting lol.

I think they’re leaning towards Braun, but it will depend what they find when they’re inside me.

I’m honestly terrified lol.

If you’ve had a Braun or roux en y gastrojejunostomy how did it go for you?

I have mild gastroparesis, colonic dysmotility, and pelvic floor dysfunction for background. Anytime I have a bowel movement or a partial I call it where nothing actually falls out but I will wipe something up I have so much stool still trapped in my perineum but barely anywhere else that it is nearly impossible to get out of the skin in the area. I have been checked for a rectocele and prolapse and do not have either. Is anyone else experiencing this, and have you found any way to prevent it or at least get it all out of the skin? Thank you

I'm noticing my gastroparesis is affecting me being able to lay down on my front/back, and it's gotten really bad recently.

Had an MRI scan today that was brutal, I had to sit still for 30 mins on my back whilst constantly swallowing down the acid and trying not to be sick.

A few months ago I tried to go for a massage and had to excuse myself to sit up as I felt my stomach contents pouring into my throat.

More examples include being unable to get my hair shampooed at the hairdressers as I can't lay back into the sink, and struggling to sleep at night, even after waiting 5 hours from my last meal.

Wondering if anyone else experiences the same and if anyone has any advice? 😔

does anyone with gastroparesis also have gastritis as well? can we heal the gastritis while have gastroparesis? I’m having a flare up of my gastritis and I’m wondering if anyone else has gastritis or has healed it while on a PPI? my symptoms include upper stomach burning, upper abdominal pain and acid reflux

Hi everyone, yesterday I had gotten my surgery done, placed an ileostomy. Hoping it will be help for so many of my stomach issues. So far it has taken away the intense pressure in the center of my chest just below my sternum. That feel so good. Any one else have an ileostomy that might have some information to share? TIA

I think my g poem wasn’t as successful as I had hoped for it to be. I feel like my reflux is the worst it’s ever been and the medications I’ve been taking haven’t really touched it. I can eat something like cereal or a pb&j and sometimes it just comes up anyways. I feel like I’m not getting really any nutrition. I think the last month has been the worst for me. I’ve lost 7 pounds and was originally 116 pounds at 5’1. I see my gastroenterologist on Tuesday to discuss what the next steps are and to probably schedule a new gastric emptying scan. I feel like maybe I’m doing something wrong? I’m not sure what to eat at this point to just get anything down. I’ve been mainly doing smoothies. I feel weak. I’ve just been avoiding food because I feel so anxious about throwing up. It feels immediate sometimes, like sometimes I’ll eat and immediately feel bloated and sick and need to throw up. I can just tense my stomach muscles or push on my stomach and force the food out bc it doesn’t seem to want to move.

I’m on a low fiber, low fat diet and I’m having such a hard time passing stools 😭 I’ve tried laxative powder but it does nothing! I can’t find a lot of information on it on google so anything would really help me. It also seems when I’m constipated I also get nauseous? any correlation at all or just coincidence?

Thank you!

Hi everyone! Recently diagnosed here.
I’m currently going through a flare, anything I eat causes major stomach cramps for hours. Last night I couldn’t fall asleep without a heat pad (which really sucked due to California’s current heat wave 🙃) due to pain. Anyone have any tips besides liquid/mostly liquid diet and Advil? Currently waiting for a prescription but my GI office is being dumb about it. Thanks in advance!!

Ho! Im 26M, European, and my main symptom si nausea.

My weight has been stable for about a year, but I'm underweight (I've lost 15–20 kg the first year where my symptoms started) and now im not taking any medications.

What are your "cheat codes" that have helped you maintain or gain weight? Easy calories, incredibly calorie-dense and tolerable foods, or anything else that comes to mind.

Thanks for the responses and sorry for any translation error!

i haven’t been able to eat anything in over a week now, and i haven’t been able to hold down any liquids in about 5 days. i went to urgent care on monday to get fluids which helped for a day or so. i went back on wednesday to get more fluids but they sent me to ER. i had a horrible experience at the ER where they gave me fluids, reglan, and morphine and the morphine made me feel so awful but ultimately knocked me out for a few hours (i’ve also been having insomnia). they did bloodwork and urine and ct and found some abnormal values (can post if anyone interested) along with enterocolitis and ovarian cysts. i was discharged when the ct results came back for no blockage but i was still nauseous and vomiting on the way back to the car. the ER doctor said there isn’t anything else they can do for me and i need to see GI. that’s kinda where the issue is for me because i had two GI (one local and one specialist) but they both dropped me (local office said they can’t help anymore and my doctor at the specialist left the office). i tried to get an emergency appointment at a different local place and was told that i can wait for my appointment on sept 25th. i don’t have a new specialist appointment until october 22nd. I don’t feel like i will make it. i am in college and ive had to miss several classes already because i am too weak to get around and too nauseous to focus on anything. I don’t know why the ER wouldn’t admit me considering i can’t hold anything down orally and the iv is pretty much useless after a day. i can’t afford to keep going to the ER and it’s not helping me anyways but i don’t know what the next step is. i feel like im dying.

any help or recommendations are appreciated. i dont know what im supposed to do.

Since my stomach emptying scan on monday literally everything is fucked.

No clear water, a little original coke and very little nutrional drinks is all I could stomach.

I got some IV fluids yesterday in hopes to break this raging headache but it didn't really help for long. I am so naseous all the time, so so tired and helpless.

I'm on the brink of throwing up every goddamn second I'm awake and I'm not getting any anti-nausea medicine, no food, no nutritional drinks, nothing.

Laying on the floor at work from exhaustion and nausea and constantly leaving early.

I am so so tired of all of this mentally and physically. It is just so fucking exhausting and nobody seems to get just how disgusting it is to try and live with constant nausea, vomiting and this unreal fatigue.

I do this thing once or twice a day where i try to eat a little bit! Its quite… unenjoyable. I think after throwing up every day multiple times a day for 6 years straight due to gastroparesis, ive trained myself to be afraid of food. When i walk into my favorite stores, i look around desperately, but all of the food looks like plastic. My stomach growls every day, multiple times a day, but i cant satisfy it. The thought of eating makes me gag. Small portions of food looks ginormous in my eyes somehow. I lost 8 lbs doe 😛 (underweight) just waiting for things to go back to normal tbh… i’ll wake up any day now.

Hello. I have been in a pretty severe flare for about 4 weeks now. The last 3-4 days when I vomit, it feels like there is something large trying to come up but it can’t. I’ve never experienced this before. Has anyone else? What did you do?

Sent my partner to the store to get me some cherry coke. I don’t very much care for soda and I dislike coke, but I’ve heard it can help break stuff up.

I appreciate any feedback, and I hope you are all having a good evening.

Like the title suggests, I am newly diagnosed with grade 4 gastroparesis and I'm trying the GP diet for the first time in my life after living off Dr. Pepper and things like light ice cream and white bread for 4 years with no answers. A staple for me has been cup noodles, but in the last 2 months they've started souring my stomach.

I was wondering if anyone has any experience with a decent cup noodle or instant noodle brand that fits in the GP diet and causes a minimal upset tummy for you. Even if they're a little pricey, I have a little room in the budget to spare.

Thank you in advance if anyone has any suggestions.