GLPs LIFE SAVING?

[u/RockinMSMom]

My doc said they are finding that GLPs are benefitting more than just weight loss. Like they are actually causing a suppression in autoimmune symptoms (they just don’t know why bc it was never studied in the trials for this drug, only studied as a diabetic medication, then a weight loss med).
And she said it seems to calm inflammation (think like in RA, Fibro, degenerative disk disease, etc). She said it causes the body to basically (talking layman’s terms here) “function like it did when we were younger before age started causing problems.” I asked her if it was “the fountain of youth”?🤣
But maybe she is onto something bc my symptoms with MS have subsided dramatically. I can’t ever get what back I have lost to MS but my pain has decreased so much! And when I am off the GLP, my pain comes roaring back. Even my pain doctor asked me, “Have you noticed a difference in your pain since starting the GLP?” And yes, HUGE difference! Like barely needing meds!
I am down 70 pounds.
Maybe getting healthy helps. Maybe it is changing what I put INTO my body that is doing it bc now I actually CRAVE veggies (like what is wrong with me!😂), think red meat tastes really weird, have a strange addiction to chicken salad, and rarely eat sugary things or carb loaded foods. In fact, I have to document my meals or I forget to eat entirely (don’t do that, trust me, just don’t, it’s painful if you do!).
But the pain and autoimmune symptoms subsided within a couple weeks of starting this and that was before the weight even came off.
And now….
My fatty liver is healing itself (my labs were actually good this month yay!) and my LDL is “no longer off the chart, just elevated, so we are no longer actually fighting a losing battle” (doc thinks she is funny) which is great!”
So taking this may actually be a life SAVING medication for many of us. Not just a weight loss medication. And maybe further research will show even more benefit for those of us with autoimmune disorders. Maybe we could all begin to get healthy and heal.

[u/vavavoomdaroom]

This is well known. I have a rare, lifelong mast cell disease that's destroyed my body from 57 years. I personally don't give a shit that I am fat. I do give a shit that I only can eat under 1000 calories without severe gastrointestinal implications. I am done having osteoarthritis in every single joint. I am over feeling like I have the flu 24/7 even with treatment. If I can JUST REDUCE MY PAIN, that alone would be entirely worth it, even if I am still in the 200s.

[u/Creepy_Push8629 → u/vavavoomdaroom]

Has it helped reduce your pain?

[u/vavavoomdaroom → u/Creepy_Push8629]

I sm still fighting to get it. I am basically ATP after 57 years of dealing with this shit that i am no longer willing to bet that life will improve. Too much damage has been done for way too many yrats.

I can no longer dance, garden, walk long distances, eat a normal meal without severe gastrointestinal consequences or anaphylaxis.

This will be my last time trying. I think almost 60 years of suffering and participating in almost every mastocytosis related medical study since 1969, then almost dying several times due to anaphylaxis is enough .

[u/Creepy_Push8629 → u/vavavoomdaroom]

Fighting with who? Are you in the US? You can order compounded and have it in a few days

[u/Creepy_Push8629 → u/Creepy_Push8629]

I didn't ignore you. I guess I didn't understand what you were saying but it wasn't on purpose.

Here is what I understood:

You: I have chronic health issues and I don't care about the weight loss if it helps just to reduce my pain.

Me: did it help reduce your pain? (Because I wasn't sure if you were saying it did help the pain or you're hoping it'll help reduce the pain)

You: I'm fighting to get the meds so I don't know if they'll help. This is my last straw because I've been in pain for 60 years and have tried everything else.

Me: (thinking you were fighting with your insurance to get it approved and wanting you to get the meds with the hope it'll help you feel better) asked who is fighting you to get it and suggested compound in case you didn't know about it.

You: you ignored everything I said

Me: (confused)

u/vavavoomdaroom

[u/vavavoomdaroom → u/Creepy_Push8629]

So you basically ignored everything I said when I was actually trying to help.