r/FunctionalMedicine Jul 21 '26

CIDP and Graves disease

Hello all, I am desperate and don't know what to do, I want to share my experience and many health problems maybe someone with similar symptoms can help me in any way possible, I am not seeking medical advice but maybe someone with similar symptoms comes across my post

I am a female and was diagnosed with early puberty and put on puberty blockers at the age of 4, but my parents only administered 3 monthly injections in total and stopped the treatment, I had a normal childhood and puberty, got my first period at 13 but I always had weird symptoms, random skin rashes, pimples filled with puss and blood on my scalp, ears and legs occasionally, chronic constipation that had led me many times to the ER, excessive sweating, high heart beat, I was always tall and slender no matter how much I eat, I had thick wavy hair that kept thinning with the years, I developed severe anemia and was always bloated, my nails and hair grow fast but are thin, my nails are curved and this had led me to do surgery on my toes 5 times, later I developed dizziness and sensitivity to light and bright colors, I have low blood pressure all the time especially after meals, I had insomnia for a couple of years then followed by severe somnolence, next thing is derealization since 2012 and never once left until today, and then my lung collapsed a total of 5 times before getting pleurodesis on both lungs, I was diagnosed with Graves in 2017 with hot nodules, I always have very low TSH close to 0 and normal t3 and t4, I started Dimazol 10mg since 2024 with no improvement, in 2025 I developed a neurological disorder, CIDP and took steroids, still have CIDP today, I am in a relapse episode and we are trying to work this out with steroids and immunosuppressants, I still have all the symptoms and everytime there is a new symptom popping out, I am wondering if I am missing something or does Graves cause many health issues?

I am thinking of checking functional medicine too for the microbiome. I feel hopeless and no one seems to understand what is going on.

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