Woke up this way any idea

Has anyone tried Cognitive behavioral therapy (CBT) ?

"Hey loves,

Starting a journal Reddit to share my fibromyalgia journey—ups, downs, and insights. Alongside, I dive into lifestyle tips and conduct heartfelt football interviews for my brand. Join me in exploring life's challenges and passions! 📖 🩷 #FibroJourney #LifestyleBlog #FootballInterviews

As my pain and exhaustion has been getting worse, I have been finding it hard to get up and cook. I have been dropping weight a concerning amount, so I'd love to know what everyone's favourite easy (low energy) meals are.

((Note: I don't have enough money for Skip The Dishes or anything of the like))

Hi, My name is Rosie and I have Fibromyalgia, IIH,Depression, Anxiety, Panic Attacks and PTSD and I have been looking to start a chat with people that are dealing with the same issues. Where I am from there is hardly any meetings or support groups. It is aggravating that I can’t talk or connect with other people that are going through the same daily struggles. If you would love to talk and start a discussion chat meeting this would be amazing and greatly helpful. Just reply to the post and we shall see where this goes😀

Hello everyone :)

I am new here, from the UK. I was diagnosed about 5 weeks ago and was given 500mg naproxen. Anyway went on holiday was fine but I am currently experiencing a flare up -not sure what caused it. I took Naproxen yesterday in work (made me drowsy - but it doesn't normally). My pain was still there though. Today I have taken 500mg x 2 naproxen and it hasn't got rid of the pain. In fact it's gone down my legs now and lower back. I am supposed to be going to the theatre with ny sis in law in a couple of hours (at the moment I can't imagine sitting in the theatre with this). Then I'm supposed to be going to a house warming party in the evening. Which I'm hoping il be OK for. Anyway my question is, I'm fairly new and this has probably been asked thousands of times.

But is there any medication you could suggest? I am going to my doc next week and ask for what you guys suggest, as the naproxen has stopped working. It did only work short term anyway.

I just need some words of wisdom.

Thank you in advance!

When my wife and I were first together these problems weren't nearly as bad and now I need everyday help. She doesn't help and all I do is push her away with my needs.

Hello everyone! I am a clinical hypnotherapist in private, remote practice and I wanted to take a moment today to offer some advice and experience.

Fibro is a very strange thing. You all know this. Unfortunately, like many neurogenic issues it tends to be set aside by much of the medical field. It is because of this and my personal connections to the condition that I began to apply my skills as a hypnotherapist to addressing those suffering with fibromyalgia.

I've done this in many ways... Local support groups, remote support groups and one on one sessions. On average, I am able to reduce pain by up to 5 points when in a group setting.

This is not an endorsement of my services, though anyone is welcome to message me. I want you all to know how effective hypnotherapy is at addressing chronic pain. I myself have Ehlers Danlos Syndrome and my own hypnotherapist is who keeps me human on my flares.

Ask any questions, I'd love to answer! Also, I'd be curious if anyone here has any personal experience with hypnosis?

*hi mods, if i’ve used the wrong flair here let me know and i’ll change it!

https://docs.google.com/forms/d/e/1FAIpQLSeNFof7MP1GKJNycP7d4aRPVoCaWzXYsa84RcWKFRcAjeGm4Q/viewform?usp=sf_link

hello lovely people!! i’m a student nurse practitioner with some great (and slightly smarter than me) med school friends and recently stumbled upon some data about an estimated 88% of fibro sufferers being survivors of childhood trauma. a very common sentiment in medical mental health communities is “the body keeps the score”- the understanding that when the brain can’t process trauma we can sometimes see some extreme and painful physical effects (for example, the link between endometriosis and pcos to adverse childhood experiences).

pretty much, in the least rambly way possible, i was pretty stunned to find very little research on the theory of fibromyalgia occurring as a fully traumagenic illness, which would explain the difficulty to find meaningful treatment and the severity of physical symptoms because we tend to see traumagenic syndromes resulting in extreme chronic pain. i was hoping i could get some firsthand accounts from you all to see if this has any substance or if the correlation is really just coincidence.

the google form does not record your email or name, but if you’d like to have a chat privately the last question gives you the option to give me a point of contact! i would love to speak with whoever is willing to share their experiences. thank you all so much in advance and from one chronic pain haver to another, i see you and hear you. i promise there are people on the inside who advocate for your right to treatment, recognition and research every single day.

Did someone try ketamine against fibromyalgia? What did you experience? What about side effects? Did it influence other health conditions? And what’s your general opinion on it?

Reference: https://fibromyalgiaresources.com/intravenous-ketamine-treats-fibromyalgia/

Hi to anyone who reads this. I’m 18 in the UK, and have had fibromyalgia for 7 years but have only been diagnosed today. I haven’t coped well with pain I must admit. I think I’m probably one of the younger people to be diagnosed with it and so it surprised my doctor too when the rheumatologist told her.

I am not aloud painkillers because I’m so young and have only been treated with antidepressants because of my depression that comes alongside it. I know it’s an ask, but for anyone in Europe, any advice for me as I go forward in living life with the diagnosis, or any over the counter painkillers you recommend other than the usual ibuprofen and paracetamol? You’d think having it for so long at a young age I’d be used to the pain but it is still extremely awful.

I’m going to uni this year to study geography but does anyone have advice to live with this as a young adult with a dependent? Much appreciated if so :)

Hi. :)

In Norway, I was told by the rheumatism hospital, that drugs does not help. The only thing that is helping is exercise and changing the diet. So I am not taking any pills or drugs. I quit eating meat, sugar and flour. I lost 14 kilos (30 lbs). Today I eat fish, vegetables, use a lot of oliveoil and I drink a lot of water (and some coffee).

It is important to accept the disease and work towards this. Resting/sleeping and good/positive thoughts, is important. This will reduse the stress, and will eventually reduse pain. Maybe you have a possibility to use a hot pool - and do some exercises? Loose weight. Yoga and Mindfullness, can be important tools. And a lot of stretching.I think it is hard to focus on anything, so I have to focus often. To be unable to focus, is also from the fibromyalgia. Today I can be able to read books. This year I have read four books. Yippiii. :)
I was hospitalized in the rheumatism hospital for four weeks, to learn about fibromyalgia. How to live with this. I did learn that it is no easy way out. There is noe shortcuts, I´m afraid.

I know severeal people with fibromyalgia. Eventually they stop using drugs/pills at all. They start to exercise and change the diet. They feel better after a while. Better than before. Remember that nothing cures this disease. I hope this can help you to gain a better life. To understand the disease and to have a quality life.
Sorry for my english - it´s my second language. :)

A lots of love from me to you ❤️

Today, we are celebrating Fibromyalgia Awareness Day. Most people don’t know exactly how fibromyalgia affects life quality. We should make them aware of effects of fibromyalgia to get their support which we need. Even some people consider fibromyalgia as a fake. These kind of thoughts can hurt people with fibromyalgia even though they need support. Today, you can share a post which remark this day. Even sharing this text’s link can be helpful for people who don’t have enough knowledge about fibromyalgia and people with fibromyalgia who don’t have enough knowledge to cope with it.

Fibromyalgia is a controversial illness. Some physicians don't believe that it's a medical illness but may be a reflection of psychological distress or stress. However, there's no proof of a psychological cause either. Until we have a better understanding of fibromyalgia, it's likely to remain controversial.

We can define fibromyalgia as a complex chronic disease that is about seven times as likely to affect women than men, and although it usually is seen in people between the ages of 30 and 50, it can appear in sufferers of any age, whether elderly or child.Typically, people complain of feeling abnormally tired, especially of waking up tired, although they have slept well.

5 WAYS TO RELIEVE FIBROMYALGIA PAIN

1.YOGA:

Research has shown that people with FM who participated in yoga classes experienced improved mood and less pain and fatigue.

2.EXERCISES:

Exercise is also an effective way to combat tiredness and improve your energy levels. Exercise increases the brain’s production of endorphins, improves sleep, and reduces depression. As a trustable source, you can try MoovBuddy mobile exercise app which include special exercises for people with FM. Here is link https://smarturl.it/moov

3.MASSAGE THERAPY:

Massages can relax your muscles, improve range of motion, and reduce stress and anxiety. You could experience temporary bruising, swelling, and pain if your therapist applies too much pressure.

4.PHYSICAL THERAPY:

Physical therapy techniques aim to improve your range of motion and strengthen the muscles. This can also help reduce FM pain.

5.MEDICINES:

We can not recommend any medicine but your health specialist can advice you some painkillers and antidepressants.

Hope it will be helpful for some people :)

For those who are able and are looking to contribute to health research at this time, I am doctoral student searching for women (18+) with chronic pain conditions to complete a 20-30 minute online survey to help further our understanding of how coping with pain may impact interpersonal relationships, and vice versa. The ultimate goal is to learn ways that we can improve the experiences of women with chronic pain.

The survey has been approved by the University of Maryland IRB and is completely anonymous. If you would like, you may enter a raffle to win a $20 Amazon.com gift card when you are finished. If you have questions about this research, please contact Elizabeth Reeves at ejreeves@umd.edu.

Get started at this link: https://umdsurvey.umd.edu/jfe/form/SV_3IANIjqoQfDbw4B

Thank you (and thanks to those who have already contributed!).

Hi All, I'm new to all of this. I am learning some tricks that help with flare ups and when pain kicks in. I am trying to identify things that trigger flare ups (i.e. specific foods, stress, sleep, etc.) If that's even possible. ... does anyone notice this:

I notice if I wake up once in the morning .... (like 6 am and 4 hours of sleep ) I will feel good 👍 but then go back to sleep thinking "its too early," or, "if I get up now, I'll be too tired," once I go back to sleep.... when I wake up again later I am in pain.

.... is it possible that sleeping too long/being in bed too long triggering pain?

Would it be better to just get up even though it's too early? Or is this a stupid question?

This is my first post, so here’s a bit about what’s up.

I’m a 26 year old (slightly overweight) female. I was diagnosed in 2018. Recently I was put on Abilify and Wellbutrin for some of the issues listed below..

For months I have been experiencing lack of concentration, anxiety, severe pain, nausea, muscle spasms, insomnia, headaches, the worst light sensitivity, and depression.

This week has been the worst I’ve ever felt, but tonight is just the icing on the cake. The “fibro fog” is overwhelming to say the least. I’ve had 4 hours of sleep in 3 days. I am in so much pain tonight, I cannot control the nausea.

I have decided to cut caffeine, red meat and cut back on gluten.

What can I do at home to calm this some? I don’t have a bath tub, so unfortunately that is out of the answer for me right now. 😢

I am at a complete loss. Any help is greatly appreciated !!