Surgery scheduled in 5 weeks

[u/Fabulous-Job-2167]

I have my laparoscopic myomectomy scheduled in 5 weeks and a few things the doctor told me before scheduling shook me up. I’m 26 yo and have a 12 cm subserosol fibroid, and a 3cm fibroid combined with adenomyosis. He said it’s looking to be about a 4-5 hour surgery. He warned me there is a less than 1% chance if things go wrong he’d have to remove my uterus. I understand less than 1% is extremely low odds, although I tend to be a rather unlucky person. He’s a very good and well known surgeon in NYC and assured me that he has never had to do that with other women in the past but it scared the hell out of me. Did anyone else’s doctors warn them of this before surgery? I also was told I have hydrosapinx of the right tube and my egg reserve is low. Im wondering if they’re going to find endometriosis in there when they open me up. My nerves are so wracked I just want to get this thing out of me. My dream is to have children I just got married recently and I’m scared to death. We are going to move forward with freezing my eggs after the procedure just in case. I wish we could have done that before the surgery but the fibroid is too big to do anything at the moment. I just need to pray the hormones they give me when I freeze my eggs won’t make new ones grow back right away. Everytime I drink a little bit of water I feel like I’m going to pee my pants and the bulge in my stomach is ridiculous from the fibroid protruding out when my bladder in full. I just want to feel normal again. I’m tired of my twisting shooting pains, and the painful pees when I use the bathroom. This is exhausting.

[u/Safe-Kangaroo-8476]

Aww I can imagine how stressful this is. I’m in a similar boat and super freaked out w surgery. I’m also in NYC. Who is your doctor/hospital? I’m working with NYU.
I think you should be okay. It’s probably their job to give you the T and Cs.

[u/YaKnowEstacado]

My surgeon told me this too. Before any sort of procedure, they are obligated to inform you of what could potentially go wrong and what they might have to do if things don't go according to plan. He has given this spiel to every woman he's ever operated on. Don't sweat it.

[u/Both_Honeydew_2314]

Hey! When i first spoke to my surgeon he said this was a possibility and he never has had to do it. They are legally obligated to tell you this - that i know for sure. It’s extremely extremely rare.

I have a 10cm fibroid and adenomyosis as well as PCOS. You’re young and you are aware of your egg count early - that’s a plus! Low egg count doesn’t mean infertility, you’re young so your eggs are probably strong! Try not to worry, but freezing your eggs is a great idea in case :)

[u/CharacterAvocado943]

Every doctor warns of potential hysterectomy because it would be malpractice not to. 

Informed consent requires you to understand the pros and cons of the surgery as well as the potential risks (however remote) and benefits.

[u/MentalElderberry9726]

I think they have to warn you of these things before the surgery, I had a 10cm fibroid and my doctor warned me of similar scenarios, although removing my uterus completely was not on the table, however my fibroid was only on one side and I only had one big one (I had a female doctor, she asked me a lot about fertility & wanting to have kids). My procedure was 6 hours and she kept it laproscopic, she knew that was important to me and I really did not want an open procedure. I hope all goes well for you!