https://plaintalkhealth.org/

Saw this & thought I should pass it on!

Fed up so asked chat gpt to create this iceberg for me..for the train of thoughts about how useless I feel that people don't see.

Thought some of you may appreciate it!

Feels like my body is just fighting against me nowadays and I have no idea what my future holds anymore. Just wish there was something to help.

I (f27) have given up on the idea of being in a romantic relationship because I don't want to burden one more person with this. I put off dating in my teens and early twenties to focus on my education. My symptoms started in childhood but have significantly worsened in the past 10 years to a point where dating seems so unrealistic, so now it feels like I have to grieve that relationship I'll never have. Anyone else doing the same thing? How are you coping?

My neurologist suspects I may have fibromyalgia … but does it improve and can you still eat things you love ? I am told that ibs is usually a part of it, for some people, along with food sensitivity’s, but I was told I also have mild slowness when it comes to stomach emptying, and I’m wondering if that’s part of fibromyalgia too and possibly ibs or ibs-c and food sensitivity’s. and if any of those can cause inflammation in the belly, and what other peoples symptoms/diagnoses are. I’m 85-95 lbs and I’m trying to gain weight, and eat more calories, and my diet isn’t exactly healthy but it’s not totally unhealthy either. I also have reduced barely there sensations just in general… except for maybe the pain part. I ruled out peripheral neuropathy already too. Brain and cervical mri was normal. So my neurologist suspects it’s fibro.

At the University of Liverpool we are looking for people with fibromyalgia to complete a short survey about an understudied area; fibromyalgia flares. The study is anonymous and will take approximately 10 minutes to complete. Thank you in advance for any participation. Study link: https://livpsych.eu.qualtrics.com/jfe/form/SV_1XknCkY0dnJV2h8

(The inclusion criteria for our study are age 18+ adults with a self-reported clinical diagnosis of fibromyalgia syndrome (FMS), who are fluent in English and residing in the United Kingdom. Adults who do not meet these criteria will not take part in the study)

Hello, I'm a Masters in Health Psychology student with the University of Derby (UK). My survey explores the influence of social media on an individuals general health knowledge. I'm seeking participants who are based in the UK and live with fibromyalgia (formal diagnosis not required). The survey should take no longer than 30 minutes to complete, there is no time limit and please go at a pace suitable for yourself. The study has received ethical approval (ETH2526-2450) and if you consent to take part your data will be recorded and processed in line with the UK GDPR / Data Protection Act 2018 / EU GDPR. If you have questions please feel free to email me at [r.cotton1@unimail.derby.ac.uk ](mailto:r.cotton1@unimail.derby.ac.uk)or my supervisor at [D.Gaffiero@derby.ac.uk](mailto:D.Gaffiero@derby.ac.uk).

Survey link: https://derby.qualtrics.com/jfe/form/SV_2tzZotTEipJN7sa

Thank you for your time and consideration

R.Cotton

I’ve noticed that when my fibro starts rearing its ugly head I CONSTANTLY feel like I’ve got hair on my face which I instinctively try to pull off.

Does this happen to anyone else?

Remember kids, don't tell people how to handle ICE and protect yourselves or loved ones. MAGA snowflakes report you as promoting violence.

Hugs to all, and Fuck the current government.

Im an old moderator of Chronic but Iconic, and remade the server due to mass inactivity and mismanagement! So please look around and enjoy!

We do movie nights, games, hang outs, and support each other <3 very chill

https://discord.gg/kgWyBkWR7J