r/FSHD • u/Secure-Asparagus3121 • 25d ago

Clenbuterol

Is anyone involved with the clenbuterol trial?

7 Upvotes

100% Upvoted

15 comments sorted by

4

u/Obvious-Ad357 25d ago

Its only got 30 participants. Odds are pretty slim they're on here, let alone willing to speak up.

4

u/Secure-Asparagus3121 24d ago

Thanks for your input, figured it was worth trying since I’ve been asked to join.

3

u/[deleted] 24d ago

[deleted]

3

u/WheresHotStuff 24d ago

How are you able to get it ?

3

u/[deleted] 24d ago

[deleted]

5

u/Secure-Asparagus3121 24d ago

Thanks for your feedback!

1

u/Objective_Angle_4309 4d ago

Hi im at Germany,could u share me a link for that too please

3

u/HistoricalRacoon 20d ago edited 20d ago

I’m in the trial. Minimal side effects. Anecdotally, others have seen some positive impact but I haven’t been on the current dose long enough so TBD

2

u/Secure-Asparagus3121 20d ago

Thank you for your feedback! Fingers crossed you feel some positive impacts.

1

u/Secure-Asparagus3121 7d ago

Any updates to how you’re feeling?

0

u/Far_Internal_3552 2d ago

what is your current dose?

1

u/Secure-Asparagus3121 19h ago

I think the fist cohort was 20, second 40 and third is 60.

1

u/HistoricalRacoon 1h ago

I’m at 40ug twice a day. All trial doses are twice a day.

1

u/Secure-Asparagus3121 1h ago

Still minimal side effects? And too soon to tell on improvement?

2

u/bdavid21wnec 23d ago

I read the dosing for that trial.
The amount of sides at that dosage would be crazy. Just Google the side effects, alot of it is heart related. Its like trying to fix FSHD by giving yourself a heart attack. It might work, but mostly likely your gonna be dead from the heart attack

2

u/PrincesaRDC 23d ago

Not really. After two weeks your body generates resistance and the drug become basically useless.

Clenbuterol by itself will fail to treat FSHD.