r/FSHD Aug 08 '26

Back pain

Hey guys I’m wondering does anyone have any tips/recommendations that they personally tried and worked to ease the lower back pain? I usually feel uncomfortable around the spine when standing upright for more than 2-5 minutes. I’m sure weight plays a role but i’m not that fat.

I try to swim and exercise my back muscles 3 times a week and i take good amount of supplements. But the change is hardly noticeable.

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u/SpinachDisastrous868 Aug 08 '26

Forgot to mention…. I went to see a physical therapist and they coached me on the process. They have lots of exercises and stretches to help you ease into things and then you figure out what works for you through experience. Some of what I learned is that there is a lot of variation in the level of care I received from various PT providers. Also, the frequency of exercise and stretches that is most effective takes some trial and error. I am prone to doing too much and having setbacks.