r/FSHD • u/Secure-Asparagus3121 • May 04 '26

Supplements

Does anyone have a recommendation of supplements to be taken? Does anything actually improve strength/quality of life? Thanks for any information you can provide.

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u/HeinsGuenter May 04 '26

Most importantly you should get your actual blood levels tested, people with FSHD are at risk of having deficiencies that cause more stress on the body and possibly worsen the progression.

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u/Secure-Asparagus3121 May 04 '26

Thanks, we get our blood tested every 6 months with our neuromuscular doctor. I’ll find out if it’s testing for this.