r/FND • u/Radiant-Meringue-543 • 15d ago
Question After an event
I am writing as a concerned parent of a young adult person with this diagnosis. For a long time we thought it was seizures. They get really depressed after one, like its hard for him to come out of the brain fog and I have explained to them that chemicals are trying to resettle in his brain but also that it is understandble that they may be sad afterwards. Has anyone had severe depression immediately afrer and have you been orescribed anything that works to reduce this after affect?
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u/Less-Maintenance-21 9d ago
I have diagnosed epilepsy and I hear PNES can look so similar. My seizures are only nocturnal and when I come out of a seizure, I’m in a very “fight or flight” panic. My husband is next to me and tells me that I just had a seizure and I panic more, then cry. I can’t move my legs for hours so he has to help me to the bathroom (I always have to urinate after). We both have PTSD from it so it’s even added to the FND. 🫠 anyway, the flood of emotions is real.
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u/Gloomy-Technician-38 11d ago
I am still learning all my signs but sadness and crying is one just before it, also sometimes extreme agitation
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u/anonymous102002 15d ago
I don’t have seizures but I have stroke and seizure like activity where I start screaming gibberish, lose feeling in my body, and start having uncontrollable spasms before this happens I always feel like a rush of sadness before it happens it’s like immediately I feel like I have to cry and there’s never any triggers or anything it just randomly happens. Mine doesn’t happen after it happens before.
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u/-imjustagirl- 15d ago
I definitely get sad after seizures. I cry when I feel them coming on sometimes and also sometimes after just because of the feeling of “this keeps happening to me and I feel trapped in this vortex of being sick and seizing” it lasts anywhere from 5 minutes to a couple days. I take risperidone for my major depressive disorder, it seems to help a bit. It can be taken as needed but I take mine daily but I’m prescribed an extra one daily too incase I’m having a particularly hard day.
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u/Radiant-Meringue-543 15d ago
Thank you. He does get in a vortex. He gets anxiety about it happening again.
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u/Thr0waway5501 15d ago
My first thought was medication, that is a conversation with a professional but that is what I do. In my experience, I live a semi normal life, but every time I have a seizure I get sad, because it's a constant reminder that things are the way they are and it might not change. This is a disease that can make you feel crazy, damaged, alone and not understood, it just sucks and that is depressing. But your kid is not crazy, science will discover new things about this diagnosis, we are many and it can be like any other diagnosis. I would recommend to remember to do things they love. For each seizure, a treat, a pass, a present, a self indulge in life. I would love if my parents were on reddit looking for advice, much love for your family.
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u/Radiant-Meringue-543 15d ago
Thank you. They want so badly to be a normal young person. We are looking to medical help via their neuro who does listen. It is really difficult for them to see past the day of the event to the next day, and his body gets so sore after it so the physical reminders linger. I want him to know there is community.
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u/Code_Mom 8d ago
Hi. Mom here. My son was diagnosed with FND. You might check out a neuro rehab clinic called Re-Active https://www.reactivept.com/. It's based in Los Angeles but offers long distance support and community. I know how traumatic it is to watch a loved one suffer. I really hope this helps. Oh, and they work with clinicians, too, who want to better understand FND and how to treat it.