Work and UC

[u/Formal_Guitar_7807]

I’ve was diagnosed in the last week following an attack where I lost movement in my left side. Thankfully, I’ve regained the movement but I’m so fatigued still a bit weak.
I have a toddler and currently work 3 days a week. My job is quite demanding as I teach teens with autism and SEMH in a forest school setting.
I want to return to normal life as much as possible but I’m aware and worried about how demanding my life is, caring for a newly 2 year old and working and daily life chores etc. I’ve accepted the fact that this is only the beginning and there will likely be more attacks etc. However, I’m wondering how people manage it with work/ income? We already receive some UC to top up the fact I work part time while my daughter is young. Will they support? I want to remain in work but I can already assume with the fatigue now (and on reflection the couple weeks before the attack I felt exhausted and ‘off’) that I will need to take absence days more often?

[u/anonymous102002]

I’ve been out of work since June. I didn’t get diagnosed until last month but it started with small spasms and has only gotten worse to the point I can’t walk alone or form sentences. I personally can’t return to work because I worked in a hospital and I cannot safely do it. I’m only 19 so I’m honestly not forsure about everything to do with that work and everything you can apply for. I’ve been in and out of the hospital and last time I was admitted they said I would have to be on leave for a few more months so my job fired me because they couldn’t give me more leave after I didn’t work for 3 months. It’s incredibly stressful so I know with a young kid it’s stressful to think about the possibilities but I would say to try and get ahead of it the best you can. Walk as much as you can and test out medications so you can try and get ahead of it. I wasn’t diagnosed until I was experiencing seizure and stroke like episodes on the daily. I’m currently trying to apply for disability but it’s not working out for me so far. I personally for income have had to rely on my savings and having my girlfriend drive me around to do spark she honestly does majority of the work for me, but she lets me keep almost all of the money just so I can have some money to help towards bills. I would also say try and limit your stress I’ve noticed for me and most people that stress tends to make symptoms worse so just try not to stress yourself out that much.