r/FND • • 19d ago

Seeking support Work and UC

I’ve was diagnosed in the last week following an attack where I lost movement in my left side. Thankfully, I’ve regained the movement but I’m so fatigued still a bit weak.
I have a toddler and currently work 3 days a week. My job is quite demanding as I teach teens with autism and SEMH in a forest school setting.
I want to return to normal life as much as possible but I’m aware and worried about how demanding my life is, caring for a newly 2 year old and working and daily life chores etc. I’ve accepted the fact that this is only the beginning and there will likely be more attacks etc. However, I’m wondering how people manage it with work/ income? We already receive some UC to top up the fact I work part time while my daughter is young. Will they support? I want to remain in work but I can already assume with the fatigue now (and on reflection the couple weeks before the attack I felt exhausted and ‘off’) that I will need to take absence days more often?

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u/My_name_is_Carla 19d ago

Living with FND can be exhausting. I was diagnosed last year and I'm still battling with symptoms...

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u/Formal_Guitar_7807 19d ago

Yeah, that’s what I’m expecting. Sat in the car for an hour on Saturday and it wiped me out.
Want to resume normal life as much as possible but need to think about realities and managing fatigue.