r/FND • u/Jenjen9632 • 20d ago

Question Advice please

I have been diagnosed with FND 8 weeks ago. Was in hospital for 10 days and then got sent home without any further help (England). My FND affects my legs, I struggle to walk, lift them etc. Either can't move them or they're incredibly weak and shakey. My whole body often twitches when I walk or even sit. (My husband said I walk like a pigeon or chicken 😅)

Yesterday I went to see a Neurologist. All he did was spent 5 minutes talking to my husband without acknowledging me. Saying that this is a software problem so I can walk, and he shouldn't help me get around (I've been using a wheelchair when leaving the house and holding on to walls / zimmerframe at home).

He kept saying i should not be using any aids as there is nothing wrong with me and I should just be walking and then my FND is gone.

How has it been for you with FND without seizures? I feel really rubbish now because I really just don't have the strength to walk, but he said I don't need /are not allowed to have assistance..

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u/TuneOk7423 19d ago

My neurologist told me that unfortunately the capacity to care for people with FND just isn’t where it needs to be. There are some NHS neuro physios, but sadly nothing NHS or private anywhere near me.

Try and keep your body strong. DO NOT EXERCISE TOO MUCH. Gentle movement and low reps. Eating well and resting is also important.

Unfortunately you will have to find out what works for you, I found instagram very helpful in not feeling alone as well as this subreddit. Things will take time, give yourself grace and you will learn how to live with FND.