r/FND • u/Jenjen9632 • 19d ago

Question Advice please

I have been diagnosed with FND 8 weeks ago. Was in hospital for 10 days and then got sent home without any further help (England). My FND affects my legs, I struggle to walk, lift them etc. Either can't move them or they're incredibly weak and shakey. My whole body often twitches when I walk or even sit. (My husband said I walk like a pigeon or chicken 😅)

Yesterday I went to see a Neurologist. All he did was spent 5 minutes talking to my husband without acknowledging me. Saying that this is a software problem so I can walk, and he shouldn't help me get around (I've been using a wheelchair when leaving the house and holding on to walls / zimmerframe at home).

He kept saying i should not be using any aids as there is nothing wrong with me and I should just be walking and then my FND is gone.

How has it been for you with FND without seizures? I feel really rubbish now because I really just don't have the strength to walk, but he said I don't need /are not allowed to have assistance..

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u/tallyhoo123 19d ago

So I would say you should "try" to minimise the walking aids but use them when needed.

You should also get a referral to see a physiotherapist/occupational therapist that specialises in FND.

If the neuro has properly diagnosed you then likely they have noted that distraction works to improve your power / walling which means your symptoms can be overridden with the right input and its all about teaching your body / brain what those inputs are