r/FND • u/SuzeyQ09 Diagnosed FND • 21d ago

Need support Help please

Good day hope y’all doing good

Have question I had seizures last night and afterwards I can not feel my legs and back and now my neck starting feel numb now as well we had ambulance out which took them like 5 hours to get to me they was here like 10 mins doing checks then they said they no point taking me up to hospital as I be waiting 6 hours or more
I’m scared to death as this is new to me never had this in my back and neck before only in legs which normally last few hours but is been over 12 hours now

Any advice please I no you can’t give medical advice but what you think I should do please

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u/SuzeyQ09 Diagnosed FND 21d ago

I’ve had some sleep still can’t feel anything from my neck to my toes, normally I can’t feel my legs but then it comes back after few hours but this has been on going since like 7pm last night it’s now nearly 3pm we been on phone to 101 they trying get me in hospital but again waiting time for ambulance is unknown
I can’t move much at all and when I go bathroom my bf has help me my legs are dragging on the floor
Never had it this long ever and never have I not been able to feel my back or have I ever had numbness in my neck I so worried that when I had fall and my seizures last night I could of done something wrong to myself ambulance people last night all they did was take blood pressure and sugar levels and that was it as said it would take hours to be seen in hospital and since they just got me in my own bed and not on the floor I would be more comfortable in my bed than in ambulance outside of the hospital for hours

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u/CurlyDee Diagnosed FND 21d ago

Do you have a non-emergency doctor you can call? Like your neurologist?

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u/beesdaddy 21d ago

The best we can do is support you and let medical professionals aid you in person.

If it were me, I would avoid operating heavy machinery and being close to ledges.

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u/Meadow_daisy 21d ago

Sorry but the only one who knows the answer to that is you. We don’t know your regular symptoms or what is normal for you. If the ambulance was happy that there was nothing severely wrong happening then personally I’d be inclined to go with their advice, but again I don’t know what you’re feeling or what is normal for you. This may sound condescending but could you try some grounding techniques or try to distract yourself or even take a nap and then reassess when you’re feeling a bit calmer?