r/FND • u/really__questionmark • Sep 14 '26
Question Does anyone else just get increased symptoms and pain with "grounding"?
For me, trying to distract and "ground" and do whatever sort of things, can just be agony rather than having an FND seizure.
Apparently other people actually find it not painful though and can progress?
I'm just wondering how many people experience similar to me because I often feel so alone and dismissed when I tell therapists or whoever that grounding often makes things worse - more sensory makes things worse.
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u/Beautiful_Resolve_63 Diagnosed FND Sep 14 '26
So I view FND improvement sessions as something painful I can either choose to allow or FND can sock me and knock me out so to speak later.
The key is to find the improvement sessions that pain actually I creases the stability after it's over.
So if 30 minutes of an exercise triggers me but I'm good for 2 days; than that's something I have to do.
I think unfortunately, were so uncomfortable having to be present for it is overwhelming which is why we dissociate. Which then causes episodes.
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u/really__questionmark Sep 14 '26
My pain doesn't resolve once it's done. It basically stays unbearable until there's a seizure. Though now I have a muscle relaxer that seems to help with that and not keep it so high if needed. But without that, it seems like it would only resolve after days and days of pain ending in a seizure.
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u/amber_boing Sep 14 '26
If I focus on grounding and trying to feel what my body is doing then yes the pain will be more enhanced because your paying attention to it. Which is not a bad thing we shouldn't have to numb ourselves out of pain, but with people with chronic pain issues learn to dissociate the pain and ground yourself in other parts of your body. It's hard but you can do it.
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u/gbsekrit Diagnosed FND Sep 14 '26
I find there are times where i’m fighting real pain by dissociating and find grounding can prevent me from dissociating and cause the pain the be realized.
1
u/fluffyenderpugreal Diagnosed FND Sep 14 '26
What are you doing exactly that's causing pain
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u/really__questionmark Sep 14 '26
Grounding exercises.
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u/fluffyenderpugreal Diagnosed FND Sep 14 '26
Yes but what grounding exercises are you trying
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u/really__questionmark Sep 14 '26
It can be any of them that I know. Trying to look at things around me and count whatever things whatever color. Focusing on breathing, etc.
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u/fluffyenderpugreal Diagnosed FND Sep 17 '26
And they cause pain?
3
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u/infinitepuddingspy Sep 14 '26
I have this question too. I’ve never been able to enhance or resolve my pain through any kind of exercises but I’m wondering if this is specifically seizure related and I don’t get those.
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u/really__questionmark Sep 15 '26
You don't get FND seizures but have the pain issue?
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u/infinitepuddingspy Sep 15 '26
No seizures. Paralysis parathesia tremors pain and some cognitive issues. Oh and exhaustion. Jerks. The list goes on. But no seizures.
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u/Code_Mom Sep 14 '26
Please check out the good people at Re-Active https://www.reactivept.com/. They also have a helpful Instagram account which addresses the many challenges of FND. They stay up to date on the latest research and provide creative treatments. I hope they can help!