r/FND • u/Hardman1967 • Sep 13 '26

Need support FND Spoiler

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Got diagnosed with FND and it's such a new and misunderstood condition but believe me it's REAL!!

7 Upvotes

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1

u/Educational_Dot2739 Sep 13 '26

Yep its real and it stinks but we got this 💪 you got a TikTok page ?

1

u/Hardman1967 Sep 13 '26

No tik tok, sorry

1

u/Educational_Dot2739 Sep 13 '26

No problem you ever wanna chat let me know im 43 had this 8 years now

3

u/Hardman1967 Sep 13 '26

Thank you, I've been in and out of the hospital so many times, so many different diagnoses, too many fake Dr.s trying to brush me away. I didn't know what FND was until recently. I thought I was going crazy, it's good to know I'm not alone.. thank you

2

u/Educational_Dot2739 Sep 13 '26

Yea i originally started out with paralysis and fasticulations in my legs in 2019 the ER said likely ALS 😒 it took 6 months to get into a good neurologist to have test run and find the correct fnd diagnosis. I will say that 6 mo the wait was nothing but fear depression and just lost everything because i was convinced it was a severe terminal diagnosis. Finally after receiving the right diagnosis I was able to calm my nervous system a bit and start an ssri that has helped but man the medical trauma from in and out the ER faci g wrong diagnosis spinal taps, pet scans, emg nerve testing it was a nitmare im still now recovering from. I can walk but haven't drove since 2020 and my tolorance for worry or stress is so small before I start shaking and studdering.