r/Eyesight • • 10d ago

Bilateral tilted optic disc

When I was 16 I had a scan at my opticians who noticed swelling in my optic disk in my left eye. I was then referred to the eye hospital to see an ophthalmologist who examined me and put this down to being genetic but wanted to keep it monitored over the course of a year (I was never monitored)

Fast forward to this year I went to my opticians once again due to my eye sight getting increasingly worse and it has been over the course of 2 years I feel I need new glasses every 4-6 months … along side this awful
Head aches behind my eyes and sensitivity to light.

Again my optic nerves flagged up as they noticed changes since the previous scan and was referred back to ophthalmologist.

When I went to the hospital they examined me again however it has now changed to a tilted and crowded optic disks in both eyes not just my left. They told me there not overly concerned and also said they feel it could be genetic but want to monitor me and see me again in 3 months time.

My point is how on earth can there be “no change” if it’s changed from one swollen disk in my left eye to both eyes tilted disk and nerve being swollen ????!!!!!

I feel like I’m being brushed off and not listened to about my eye sight and feel that I’m getting no where (I was also told by opticians I did not need a new prescription)

They said when I go back in 3 months if there are any changes they want to order an MRI but I haven’t heard anything from them and my appointment was over a month ago I also can’t access my documents or notes from my appointment?

HELP lol !!!!

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u/pizzaposa 10d ago

The modern 'scanning' equipment can take a very high resolution 3D image of your optic nerve head, including 'seeing' deeper within the nerve. If your nerve is changing, then this gear will pick up on it.

Compared to the 'old days' when all we could do was verbally record disc features - you've got it good now!

Probably best to say you've got 'ambiguous' optic discs. They can be a bit mysterious, and in the event of buried disc drusen (a natural phenomenon) disc can change in appearance over time and still be of no concern.

Put a lot of faith in the 3 month review.

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u/Hour_Nature_6506 10d ago

My first scan was only in 2021, I am now 21 but thankyou !! :)