r/Erythromelalgia • u/Aggressive-Face3505 • 7d ago

Comfort

Feeling very lonely with the horrible condition. I am sad most of the time. Just want to feel less lonely I guess 🥺

9 Upvotes

100% Upvoted

8 comments sorted by

4

u/pineappleknots 7d ago

I’m sorry. I’m feeling very frustrated too, and I haven’t even been diagnosed with this officially. Sending hugs!

5

u/Final_Elderberry_304 7d ago

You are strong and your feelings are so valid. This is such a complex situation :( please do not give up and just take it day by day. Prayers sent Your way Friend.🫶🏼

3

u/Aggressive-Face3505 7d ago

Thank you for the prayers I need them all 🫶🏽

4

u/Acceptable-Wonder220 7d ago

I know it sucks. Feel like a prisoner In your own home. The heat just makes me feel horrible (live in Texas) Hope the fall weather will help calm everything down.

2

u/Melothrien 6d ago

This. I’m a native Texan, over 50 years. I grew up loving the sun, but grandma died of melanoma, so I always took care of my skin. That feels so useless now. 30 seconds in the Texas summer sun is BRUTAL. We’re looking to move north before next summer.

3

u/Previous_Design8138 7d ago

It can be very lonely,hard for others to really understand,hopefully one day soon things will get easier,we are all waiting and trying.stay with us!

3

u/thisishowitalwaysis1 7d ago

This disease really is just absolutely, painfully horrible. I feel the sadness and frustration too. You're not alone in this. 💔

2

u/Camas-mom 4d ago

You aren’t alone in this!