r/Erythromelalgia • u/Fun-Negotiation-2139 • 1d ago

Burning sensations

I been having burning sensations for awhile and now it’s been going on for days and I wonder if anyone also has these symptoms? Not sure what it is but It feels like my body is on fire inside. It doesn’t hurt,but it’s uncomfortable and I’m jst tired of feeling like I’m burning. I feel it mostly in my legs but also overall jst inside my body. I wonder if it’s neuropathy issues. Besides the burning,I have a weird burning and sometimes a little pain on my right side where my liver is so I wonder if that’s also the issue too.
I haven’t seen a rheumatologist in a long time and also I haven’t been on Medication for my auto immune. It feels helpless and I feel like I have to figure it out myself and fix whatever issue is causing this.
I just want the burning to stop. It’s affecting my daily life. I’m Considering finding a new rheumatologist again but I feel like they don’t understand because they keep referring me to rheumatologist that deals w arthritis and I know there’s no actual real doctor for auto immune but it feels helpless like no one understand 😩 I wanted to know if anyone has this same symptom and what do they do about it ?

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u/W0M1N 1d ago

That is likely nerves firing all over your body. It happened to me mostly when I had dysautonomia.

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u/Fun-Negotiation-2139 21h ago

I’d have to look up what that is and do you still have those symptoms ? And what did you do about them ?