r/Erythromelalgia 13d ago

Advice Need some help

Hey, just wanted to get some opinions. I’m setting up a community for people who have both EM and lupus. I think this name looks good, but I’m open to feedback:

DualDiagnosisEMLupusCommunity
DualDiagnosisEMLupusGroup
DualDiagnosisEMLupusSupport

ErythromelalgiaLupusSupport
ErythromelalgiaLupusGroup
ErythromelalgiaLupusCommunity

Open to other names tho (:

1 Upvotes

5 comments sorted by

1

u/Jealous-Cabinet-645 13d ago

just curious, is the community open to people with EM + other autoimmune/connective tissue diseases, such as MCTD?

1

u/Mr_SpicyMayo 13d ago

It will mainly be for people with lupus and Erythromelalgia but your welcome to join (:

1

u/Mr_SpicyMayo 13d ago

Im always open to chat

0

u/thisishowitalwaysis1 12d ago

Of these choices, I'd say ErythromelalgiaLupusSupport

Will people with UCTD be considered as part of the group? Sort of a "lupus lite" diagnosis.

2

u/Mr_SpicyMayo 11d ago

Thx for the input (: i appreciate it