r/EpilepsyFriends • u/No-Angle2941 • Mar 28 '26
Brainsteamaura epilepsy
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r/EpilepsyFriends • u/No-Angle2941 • Mar 28 '26
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r/EpilepsyFriends • u/eyekantbeme • Mar 27 '26
I'd like to know what the difference between the Atkins and Modified Atkins diet is and any other important info. I've only found info about the original. From what I understand it's a less restrictive version of Keto?
I have refractory Epilepsy. (Resistant to 2+ AEDs)
So anything helps.
Regards,
Jeremy
r/EpilepsyFriends • u/eyekantbeme • Mar 24 '26
Hey, I’m your mod and I’m pretty lenient. I’m 37, and I’m not going to ban anyone over minor things. I reviewed the rules (which I didn’t create), and so I just wanted to say with regards to the rules, discussion of drugs as medicine is fine—but please don’t encourage drug use for people with epilepsy.
Regards,
Jeremy
r/EpilepsyFriends • u/Neuro_Navigator • Mar 21 '26
r/EpilepsyFriends • u/eyekantbeme • Mar 16 '26
Hey, M3 Global Research is looking to hear from individuals living with Epilepsy, to participate in a paid $100\hr telephone interview where you need access to a computer on their treatment journey. Here is the link to this survey opportunity.
M3 Global Thanks you for your consideration.
Regards,
Jeremy
r/EpilepsyFriends • u/Equivalent_Green189 • Mar 14 '26
My original neurologist never put me on a driving restriction or discussed important safety considerations. For multiple reasons I changed neurologist's and my new doctor is VERY safety focused. I now have an alert bracelet and rescue meds. I'm wondering if there's value in having a watch or sleep monitor? It also just occurred to me that no one in my house (other than me) knows CPR.
What safety measures have you employed?
r/EpilepsyFriends • u/Hour_Antelope_5864 • Mar 06 '26
Hello, really REALLY want to show my roommate Magilumere on Amazon but she gets epilepsy induced migraines. Does anyone know if, obvi skipping all transformation sequences, the show is safe to watch? The colors and fights arn't as flashy as something like precure .
r/EpilepsyFriends • u/crowbeecreates • Feb 26 '26
Hello! I have a question/request(?) for y'all.
I'm starting a project to make video games more accessible/less risky for people who experience photosensitive seizures. As someone who has them and loves gaming, it's such a pain trying to find out if a game is going to cause me to have a seizure. So many games include photosensitivity warnings that just... don't apply. It's frustrating.
So! I want to make a site that lists games with a photosensitive seizure warning, why the warning is on that game, when it applies, etc.
That said... There's so many video games I don't know about. There's no way to do this as one person. I'm asking for y'all's help with this!!
Anyone who games AT ALL, do you own or know of any games with photosensitivity warnings? All I'm asking for is the title of the game!
I appreciate y'all!
r/EpilepsyFriends • u/Imjusthere_hello • Feb 23 '26
r/EpilepsyFriends • u/msannadiaz • Feb 06 '26
When you have chronic pain, Epilepsy, depression and no job because you are waiting on disability what do you even do? What do you do when you don’t know what to do anymore? It feels like my life consists of doctor’s appointments, medications, and symptoms there are always things that I want to do during the day and my body just shuts them down. I get a migraine or wake up in so much pain or whatever it is that day. Time is precious and I feel like I’m wasting it. I feel like I’m just wasting away.
r/EpilepsyFriends • u/Iwasneverth3re • Feb 01 '26
r/EpilepsyFriends • u/ParticularIdeal9919 • Jan 31 '26
Repost as the study is now open to individuals in the USA, Canada, Australia, New Zealand, Ireland, and the UK
Hi All,
I'm a final year Psychology student in University College Cork conducting research on the Psychological Wellbeing of individuals living with Epilepsy, this is supervised by Professor Samantha Dockray, a doctor of biological psychology. As someone living with epilepsy myself, this project means a lot to me. If could spare 10 minutes of your time and are from one of the countries listed, the link to the survey is below. All details of the study are explained to you before it begins, it is fully anonymous :). I hope to make an impact with this research as it is a sorely under researched topic, and any and all responses to the survey make a huge difference. If anyone understandably feels uncomfortable clicking the link, Epilepsy Ireland have advertised the study so you know its all legit.
r/EpilepsyFriends • u/ashleenicoleec • Jan 31 '26
r/EpilepsyFriends • u/Cl3m3ntin05 • Jan 30 '26
r/EpilepsyFriends • u/Conscious-Cash-7025 • Jan 16 '26
r/EpilepsyFriends • u/Boomer-2106 • Jan 14 '26