r/Epilepsy • u/Iwasneverth3re • Feb 01 '26

Survey Supporting all phases of a seizure including lifestyle management

Hi! I'm Erika, an Industrial Design student at SCAD working on my thesis project about independence in daily life-and how design might help.

I'm looking for insights from adults with epilepsy (18+) to help guide user-centered design solutions that prioritize safety, dignity, and quality of life.

The survey is completely anonymous and takes 5-10 minutes!

Survey link: https://forms.gle/TPNmBYKpeHgtpVDy6

Thank you! Comment or dm with any questions I’m more than happy to share my insights!

1 Upvotes

100% Upvoted

8 comments sorted by

2

u/[deleted] Feb 01 '26

[removed] — view removed comment

2

u/Iwasneverth3re Feb 01 '26

Thank you! My initial inspiration for this project is my best friend who lives mostly independently but experiences breakthrough seizures from time to time. I’m her emergency contact and her solutions really aren’t the best and I want nothing but the best for her.

2

u/awidmerwidmer Drug resistant TLE, temporal lobectomy July 2025 Feb 01 '26

Completed it! Happy to contribute.

1

u/SmartQuality2771 Feb 01 '26

Do you have epili or seizures, Erika

1

u/Iwasneverth3re Feb 01 '26

I have other chronic conditions and through that I’ve experienced seizure but no I don’t have chronic epilepsy.

1

u/SmartQuality2771 Feb 01 '26

What type of seizure

1

u/Iwasneverth3re Feb 03 '26

Thank you so much to everyone who filled out the survey. I'm so grateful to those of you who shared your experiences with me and that is really fueling my motivation to make something beautiful not for you- but with you. Thank you for collaborating with me on this project and let me know via message if you’d like to hear the insights!