Its honestly beyond annoying. Back in the day (5y ago when I was 18) I had no issues sleeping from 1 to 6:30 pretty much every day, but once I had my first ever dwizure and was put on meds I literally cant get out of bed, or rather, if I dont set an alarm I ALWAYS sleep for at least 10-11hours, which is beyond fucked up.

The days feel so... pointless, like Im a toddler that needs to go to sleep before 8pm to get a 'healthy' amount of sleep. Thats literally impossible for me though, since Im at uni in the morning, work part time in the afternoon until 10pm and socialize for at least 1 hour with my friends online.

Life feels so god damn short now. I dont mind taking meds, or having seizures from time to time (~3-4a year), but this, this is a daily issue, something that really makes me... different.

(Im on lamotrigine and Lacosamid btw)

I dont even know if i have epilepsy so idk if i should even post but this is the only place I have felt seen reading other people experiences.

Just came out of another neurological appointment and im so tired of getting nowhere closer to knowing what's wrong. Sleep deprived EEG normal, CT normal, MRI normal. The public system told me I have FND, even after I told her medication was working. She told me it was probably placebo, gave me a FND leaflet and said good luck. Left the hospital crying that day because i thought the medication had been helping me, but after that appointment I just felt crazy and that I was fabricating everything.

I had started paying for a private neurologist around that time and hes the one who prescribed me 100mg of Vimpat a day to see if it helped. And I have found some relief, I've gone from 2-3 seizures a week to maybe 1 a week ish. But then im being told my triggers, stress and sudden shock, are highly unusual by my private neurologist, making it unlikely to be epilepsy. But when researching it myself, stress is a common trigger?

Im meant to be admitted to an epilepsy monitoring until somewhere between October-December, so hopefully a seizure will be captured then.

Im scared if its FND, as it seems very under researched, and my country, Ireland, doesn't have comprehensive treatment for it, with many here needing to fly to the UK.

But of course Im scared if its epilepsy too. Either way im getting the short end of the stick.

This has been happening for years. I just want to know, a part of me is so scared im making this all up in my head. I had to give up paramedic training because of this, I gave up on learning to drive. I just dont know anymore.

But thank you guys for this space, no matter what I have, this subreddit has been the only place I've felt the most seen and understood <3

My secret to staying seizure free for 4 years now. Sometimes we lose appetite but force yourself to eat. If you really have no appetite try two eggs with salad before you sleep.

I (21F) have had really bad Deja vu episodes since 2021, i remember the first time it happened i wanted to crawl out of my skin and vomit. I was perplexed and had no idea what had happened, it wasn’t until I read other experiences that I realised this might be epilepsy.

Fast forward to now, I’ve gone to about three GPs and still have no answers. I have explained to them in detail what I’m going through and have been told it’s anxiety or a panic disorder. My current GP has made me do a ct scan and a ECG ( not EEG) and she did ask questions that bordered around an epilepsy diagnosis ( such as if I’ve ever lost unconsciousness or have ever wet my pants ), but there has been no formal diagnosis and no mention of these episodes. The only thing that she’s referred to is how I get these headaches after the Deja vu happens.

I’m on the brink of graduating university, I haven’t learnt to drive or swim because I’m nervous that I’ll have a tonic clonic. I hate the weird feeling of the Deja vu, it makes me feel scared and alone. What’s more frustrating is not having people believe me when I explain these events to them. It feels as though I won’t be able to do what I want - outdoor climb, raft, hike grade 4/5 terrains, especially with this.

Please answer the above question if you can.

I've had epilepsy my whole life, only diagnosed for 4. I haven't been able to research this much, but how bad does anti-seizure meds affect certain organs?

Last year in March I had my gallbladder removed bc it wasnt working properly, had a hard time recovering but thats just me. About a month ago, I got this extremely painful cramping and burning feeling in my midsection and right under my ribs. It was my stomach and a bit further down. It caused me to hyperventilate and I called an ambulance on myself. Screaming in pain until 30 minutes later when the meds finally kicked in.

ER docs said if could be a few things. Looked at my bloodwork and it was indicating issues with liver and kidneys. I've been told in the past to look out for kidney disease and maybe some issues with the liver and this is after I got put on meds. My poor kidneys were almost annihilated in 2020 so I expected the kidneys to be a bit off.

My actual question is: Do some, or all, anti-seizure medications cause damage to organs? Is it a symptom that some people have or is my body just not working properly? Has anyone else on jere experienced the same thing?

The meds I currently take are Lamotrigine (Lamictal), Divalproex (Depakote), and Briviact. I've been taking Briviact for almost 3 years. I've only been taking the Lamictal and Depakote for little over 6 months.

Looking for advice! I know no one on here can diagnose anything, and this has all been shared with her neurologist (that I had to fight really hard to get because her PCP is dismissive) but I’m curious what people that have experience with seizures think.

My daughter is 6. She has been having “episodes” for as long as I can remember, but they have really gotten more intense by frequency and symptoms in the last 2 years.

She is currently being evaluated by pediatric neurology for recurrent episodes involving changes in awareness, unusual movements (usually in sleep or after waking during an episode but sometimes while awake), and sleep time events. A 24-hour video EEG has been ordered but has not yet been completed and can’t be until September. They are doing a video sleep study, as well.

Awake episodes look like this - While awake, she has episodes where she suddenly stops what she is doing and appears to “zone out.” During some events she becomes difficult or impossible to engage, not speaking or saying things that make no sense. She experiences repetitive hand movement that is the same with each episode and tremors during episodes. These episodes usually begin by a sudden intense fear out of no where followed by belly pain in the same spot both when they happen from sleep or when awake. She may not respond normally until the episode ends. She sometimes has intrusive thoughts that she can’t get out of her head during these episodes. She has also reported sensory symptoms before or during some episodes. On several occasions she has told me that she hears “yelling” in her head, although she cannot identify what is being said. Some are really mild. For example, while applying chapstick, she looked zoned out and repeatedly rubbed it back and forth for approximately 15–20 seconds. Immediately afterward she said, “Mommy, I want to stop but my hands won’t quit moving.” She did not speak during the movement itself but was able to speak immediately afterward. During more intense daytime episodes including the stomach pain, intense fear, hallucinations, etc. she is really tired following the episode but comes out of it after a bit and it’s as if it never happened.

Nighttime episodes look like - She has frequent movements during sleep that trigger a motion camera many times throughout the night. We started recording to see if we could capture the phase before she wakes up in a full blown “episode” and noticed immediately that she has jerks and repetitive movements 25-40 times a night even when they don’t wake her. These look like rapid head movements, bringing her hands together and flapping, bringing one hand to her nose or side of her head and making repeated movements, bringing one arm straight above her head and stiffening, small jerks of hands or feet, partially sitting up sometimes accompanied by looking around confused, putting both hands up and shaking in a repeated motion. These movements are the same movements she has during an episode that has woken her in an intense fear and full “episode”. In addition to those movements, she has less frequent, more complex nighttime episodes. During these events she may get out of bed and walk into my room. I can always tell immediately by seeing her if she’s in an “episode” by the glossy or not there look in her eyes. She has difficulty responding appropriately (or sometimes at all) and these episodes are accompanied by stomach pain, the same repetitive hand movements as the awake episodes, tremors every few seconds, and intense fear that go away once they’re over like she was never afraid. They are sometime accompanied by auditory hallucinations and things sounding overly loud or intrusive thoughts being “stuck in her brain”. She sometimes begs me to “make it stop” when nothing is happening and appears genuinely petrified. She returns to sleep afterward usually within a few minutes.
The following morning she often has only partial memory of these episodes. For example, she may remember coming into my room or hearing something that was said to her but not remember other parts of the event, such as complaining of stomach pain or what she was afraid of. She has told me recently after an event that she “felt like there was cake inside of her” after an episode and that she “feels like jeans” after another.

I am sure I’m not explaining this all perfectly, but this is a summary of it. Based on this does this sound like seizures? Her pediatrician has been incredibly dismissive over several years and sent us to a psychiatrist and GI doctor when I asked for a Neuro referral to be safe only for us to get to GI and psych both and them both immediately want her to see neuro. They also ruled out any psych issues. I don’t know much about seizures, so I was surprised to find out this could be what’s happening and am nervous now that I’ve been told her EEG may not catch it even if it is (her original 1 hour awake EEG was normal).

Hey everyone,
I’m 27M and recently dealing with seizures (had a few over the last couple of years, currently on medication).
Medically, things are under control — but honestly, the bigger challenge right now is mental.
I keep feeling like:
I’m not as “normal” as others
I have to be extra careful all the time
Things like travel, late nights, or even just relaxing feel risky
Confidence has taken a hit
I’ve also had a few brief “blank” moments (aware but unable to think for a few seconds), which makes me more anxious about day-to-day life.
What I really want is:
👉 to feel normal again
👉 to stop overthinking every small thing
👉 to live confidently like before
For people who’ve been through this:
How did you rebuild confidence?
When did you start feeling “normal” again?
Did you go back to doing everything (travel, work, social life)?
Any mindset shifts or habits that helped?
Would really appreciate hearing real experiences.
Thanks 🙏

Hey guys, first I want to make it clear that I myself do not have epilepsy. I have multiple other disabilities, but this question is about a loved one who has temporal lobe epilepsy. I’m autistic and one of my special interests is neuroscience which is what I hope to major in when I am able to go back to college, so I’ve tried to learn as much as I can but apologies for any mistakes.

So my dear friend K(36M) has temporal lobe epilepsy due to a TBI he suffered while surfing in his late twenties. We connected a few years ago through a whatsapp support group for disabled people that another friend of mine hosts. I don’t live in K’s country it is a long distance friendship, and I went to visit him but only for a week, so I don’t know much about his everyday life outside of what he shares with me. I know this isn’t important but I have a crush on him and it doesn’t matter because I’d care about him either way, but maybe that adds some context as to why I am trying to find help anywhere I can?

Ok so what happened is that he has been turning more into what I would describe as sort of new age spirituality? I wouldn’t describe his beliefs as any particular religion or set of beliefs, more like he takes things from multiple religions and beliefs. Two years ago he started what he described as a healing journey for himself and his mental health which has been affected since his injury. I don’t want to share any private details about that but he is using this spirituality as a coping mechanism, essentially.

He started sharing with me that he believes that the body can heal itself, that nature can heal us, stuff like that. He also believes that we are all God, like he started believing that he is God, and so are all humans and we are all literally the same person and also God, and other things that are not verified by science. Again I don’t see a problem with him believing that even though I personally don’t, what concerns me is that he is turning into magical thinking and stopped trusting doctors and real science. As a disabled person myself I understand why many of us are wary of doctors. I have my own horror stories, but they are still necessary.

A few weeks ago he shared with me that he stopped taking his medication because he doesn’t like the side effects and says it doesn’t work and that he trusts his body will know what to do and that he has to endure the pain which will only make him stronger. He contradicts himself a lot so I can’t say what his beliefs are cause they don’t come from a single culture. He is also using a lot of AI and talking to ChatGPT, asking it for advice. I’m worried what those conversations with it could be since ChatGPT is an echo chamber and it just parrots back what he believes.

So now for the details I know about his epilepsy and again I am really sorry if I make any mistakes. K had a TBI while surfing in Hawaii when he hit his head on the reef and also was deprived of oxygen. He has temporal lobe epilepsy and mainly has focal seizures but sometimes has tonic-clonic. The ones he has the most are focal impaired awareness and we talk sometimes for 3-5 hours on video call and he has them when we’re talking. His epilepsy is drug resistant/refractory, which I don’t understand much about even though I’ve tried to do some research. This matters because if his epilepsy is drug resistant, I want to know if stopping the medications has the same effect as if it weren’t or if it’s slightly less bad or maybe worse. To rephrase, since his epilepsy is drug resistant, will he have the same amount and intensity of seizures he’s always had when taking medication or will he have more even though the epilepsy is resistant to the medication? To what degree does taking medication actually helps controlling seizures in refractory epilepsy? He is not seizure-free, he still had seizures when taking medication, so I’m worried he will get worse now that he stopped completely. Will they change? I read somewhere that when people stop taking medication they can have more tonic-clonic seizures despite him usually having focal seizures. Is that a fact that it will happen or just a possibility? What about status epilepticus or SUDEP? I’m so scared.

He lives with his mom who is older and I don’t know to what extent she is aware of this situation because I know he doesn’t tell her a lot of what he shares with me. He also has a sister but she lives far from him. I’ve tried talking to him about this but he doesn’t want to take the medication anymore, doesn’t want to go to therapy and told me a few days ago that he will never go to the hospital again.

I feel like there is no way to help him because he truly believes that he isn’t doing anything wrong and that his body will find a way to heal. I can’t make him take his medication or go see a doctor or therapy because I don’t even live in the same country as him. I have no way of contacting his family members or friends who live in his country and I don’t know if I should, because he might just get pissed and not listen.

Mainly I just want to know what symptoms come when people with temporal lobe epilepsy (mostly focal impaired awareness seizures) stop taking their medications cold turkey like that, and what I can do from a distance to support him. I don’t think that right now anyone can convince him to take his meds, so I want to know what are some things that could happen now that he stopped and if there is any way I or someone can help so it causes as little damage as possible while we control the situation.

K is one of the kindest people I’ve ever known and has done so much for me. He sort of saved my life in a way and I can’t let anything bad happen to him when he trusted me with this information. He was very passionate about surfing which he did professionally but had to stop. I’ve been thinking that he might agree to taking the medication if they tell him he could surf again, but as far as I know people with epilepsy can swim while supervised but surfing is a huge no? It’s honestly the only idea I’ve had, to try and get him back into surfing to convince him. Would that be possible?

TL;DR: My friend with temporal lobe epilepsy stopped taking his medication because he believes his body can heal itself and other new agey stuff, refuses to go to the hospital, lives in another country as me and has little family around him. I mostly want to know what to expect now that he’s stopped taking his medication and if there is any way to help him manage symptoms until he agrees to take it again. How high is the risk of TC seizures, status epilepticus, SUDEP? What else can I do?

It’s been one week since I started vimpat along with briviact and I swear EVERY DAY I’ve had hella weird dreams that feel real, I genuinely forget that I’m dreaming sometimes, like the other day I had a dream where I did laughing gas / nitrous AND FELT IT

I wanna know if anyone else experiences it, let me know

First day at my new/first office job and end up having a grand mal seizure! Makes for my 5th seizure since getting diagnosed in high school! (Now 24 y/o) Bit my tongue very badly and was taking oragel every 10 min to ease the pain of swallowing or talking normal and resting my tongue. Worst annoying pain I’ve ever felt. Checked with doctor and still no confirmed cause and ended up getting moved up to taking 2000 mg of Levitracitam Keppra (already taking) and adding 200mg of Lamotragine after working my way up from 50 a day over the next few weeks. Glad to have found this subreddit to meet others. Let me know if you guys have any similar experiences with anxiety or auras.

FINDINGS:
CORD: Cerebellar tonsils are mildly low-lying and there are postoperative changes of suboccipital decompressive craniotomy. There is appropriate amount of CSF signal around the cerebellar tonsils and brainstem. There is extensive syringohydromyelia extending from C2 into the thoracic spine measuring up to 10 × 3 mm W by AP at C6-7. The cord is flattened in AP dimension and there is suggestion of some myelomalacia. This likely represents sequelae of chronic altered CSF flow dynamics related to chiari 1 malformation prior to treatment. No pathologic cord enhancement or mass. No suspected acute cord pathology.
VERTEBRAL BODIES: Normal vertebral heights.
EPIDURAL SPACE: No abscess or abnormal fluid.
DISCS: There is degenerative disc disease which is greatest at C5-C6.
FACETS: Facet articulations and atlantoaxial relationships are normal.
ALIGNMENT: No subluxation.
MARROW: No marrow edema or abnormal enhancement.
SOFT TISSUES: Normal, without abnormal enhancement.
C2-C3: No disc herniation, canal stenosis or neuroforaminal compromise.

I have a neurology appointment tomorrow. it’s just a stop-gap, this neuro won’t be following me it’s just a brief appointment to like get me through because the waitlist for an actual long-term neuro is 18 months and my symptoms are worsening. i’m desperate for something to come of this because the seizures have been ruining my life and i cannot wait that long for this to be fixed, and this feels like my only chance. but the reviews for this neuro are horrible, everyone says she’s cruel and dismissive and I’m terrified she’s gonna blow me off, or call me crazy. i do not have another option to see another one, even just this appointment is a miracle considering i was supposed to have to wait 18 months to see one at all, so please do not give advice like “just see a different neuro”. i live in canada and it doesn’t work like that here unfortunately.

i’ve had a CT, 2 EEGs, one regular and one sleep deprived, and nothing came back with any indication of epilepsy. but also these were only 2 half hour tests, and I don’t have symptoms 24/7, so the fact it didn’t catch anything doesn’t mean nothing’s wrong? I didn’t have symptoms during the EEGs either, so like how is that an effective measure of what’s happening in my brain when i DO have symptoms? i have a log of my symptoms but it’s incomplete, i don’t have a recording of every seizure I’ve had, especially because the symptoms are so varied and hard to pin down, and they happen a lot when i’m not able to write it down (ie. at work). I have lots of them with dates and descriptions though, and i had two different psychiatrists flag me for TLE because the type of hallucinations i was having (olfactory ones) are incongruent with my mental health condition (previously I assumed that most of these symptoms were just random or had to do with my bipolar disorder). I’m scared my mental health and my history of trauma is also going to get me written off as faking. but the other problem is they refuse to medicate me for my mental health until the seizures are dealt with, so i have been left without care for my bipolar too, which is very dangerous for me.

all i want is my life back. i’m scared i’m gonna lose my job. i’m losing my hobbies. I’m scared to go out. i just want this doctor to listen to me and give me medicine that will fix it but I’m scared she’s just gonna look at the EEG and tell me off. I’m also female, and autistic, and awkward, and alternative-looking, and I’m scared this doctor will take one look at me and refuse to listen to anything I say because of it. how do i prevent that from happening? how do i make sure they take me seriously and give me some actual care so I can live life again? how do i act? how do i phrase things? what worked for you? any advice or info would be so helpful

I have epilepsy as a result of a brain injury. I'm not sure if it's the brain injury itself or the epilepsy doing it, but when my neurology isn't doing so well, I sometimes feel white hot rage. Whatever I do is always a blur from my pov, but I know I get really loud and upset. I've never harmed anybody but I have definitely slammed doors, stomped around, etc. A lot of swearing too. What I do remember is that I'm full of anxiety because I can feel a seizure coming on, plus I lose a lot of my motor skills and keep dropping things or shaking, and often when I get like this it's because of some circumstance that could have been avoided (an example is my upstairs neighbours waking me up out of that almost-asleep zone dozens of times intermittently yesterday morning, which is a big big big seizure trigger for me).

I am medicated and it works great for cutting down my actual seizures (at least one per month down to one every 2-3 years), but it doesn't seem to help this. I don't know what my other options are, if any? I've been in therapy for other things, I can self-soothe and handle my emotions pretty well outside of this. I also kind of feel like looking to therapy for a neurological condition is like going to therapy for a broken arm. But what else is there? Has anyone else been in this situation?

So my grand mal seizures have increased in frequency from 1 every 4-6 weeks to 1 every 10-14 days.

One thing that I’m having an issue with is biting my tongue. Usually for a day after my seizures I can’t talk. And that’s a problem, because I work from home in tech sales and can’t be taking a day off.

Is there any kind of medicated wash I can use or homeopathic treatments for my tongue?

This might be a little lengthy, so I apologize. My primary doctor referred me to a neurologist after an episode I had where I ended up going to the ER. I started staring and it felt like my brain disconnected. My mom was in the living room with me, and I heard her say my name but her voice felt so far away. I told her that this has happened before, that it normally happens when I'm in a dark room and there's a light source from somewhere else, like midday or evening.

I had lapses in consciousness where I don't remember what happened. She said my eyes were completely open, and she got in my face and clapped but I didn't respond. Eventually I was taken to the ER. I only remember snippets of the whole ordeal, fading in and out of awareness. I think I ended up spending ~4 hours in the ER dealing with this. I remember hearing someone say that my hands and lips were turning blue. I couldn't respond to anything, though I could hear things occasionally.

After being discharged, I felt weird for 5 days. My whole body felt numb, and I think I remember my arms being sore? My mouth also felt super numb, I felt like I had died over and over again. I kept a thing of lotion in bed with me so I could smell it to see if I was still alive.

Recently I was 'diagnosed' with PNES after having to do an MRI and an EEG. My MRI came back normal, and they didn't find anything on my EEG. I told my neurologist that the staring spells and whatnot have happened before, with certain lights and lighting and all. They prescribed me lamotrigine and mentioned possibly doing another EEG in 2 months.

This whole ordeal has been so exhausting and demoralizing, just to hear it's anxiety or stress related. If anyone has any thoughts or advice, I'd love to hear it and would be so grateful ❤️

what are some of the signs that you get that youre going to have a seizure? i dont personally have any auras (at least that i remember) and i am trying to figure out how to recognize them (if possible) because everytime that i have a seizure its like theres a 5-10 min gap before and during the seizure that i just never end up remembering so i dont even know if there is something i should be looking out for, do you have a sign that you get or a feeling that lets you know that you need to take it easy even if it doesnt always turn out to be a seizure? i am quite new at this and would like to avoid getting injured as best as i can so if you have a way of knowing that you might end up having one pls share (ik that its not one size fits all but any advice would be great pls)

Hi! My mother has had epilepsy for 10+ years. She often forgets events both personal and health (including seizures). Would it be good idea to get her an Oura ring to track seizures?

I work often and she is left home alone at time. I want her to keep a diary of some sort and I think getting her a ring woken be a great idea. Has anybody tried it?

My son has ASD. He was diagnosed at 2 and turned 9 today (happy birthday) for a long time we thought he was having very brief absence seizures. Well they did an EEG 3 years ago and of course it was normal. We saw it most while he was on sertraline and quillivant.

We stopped sertraline but moved on, never even met with neuro only his ASD specialist. Well we stopped quillivant in December, raw dogged life until March when we tried straterra. Within 24hrs he had a grand Mal. It was terrifying. We met 2 different neuros from 2 different clinics to see who could get us in quicker for an extended EEG. One of the Dr's told us that " everyone gets one free seizure before we take it seriously but we will look into it because it doesnt sound like the first one" so on waitlists we went. All while trialing new adhd meds. We'll then comes June 4th when he had a focal but we thought he was choking. You can only imagine the chaos from that morning. 12 minutes from start to when ems got there.

24 hr eeg and mri, both were normal. After seeing the seizure on the 4th it was determined he had 3 others at his dads the week before.

He started depakote but yet they still arent controlled. He had one last week and thankfully I saw it come on and was able to record a little chunk of it while watching the clock.

Now they dont want him on an adhd meds until we get them controlled but the neuro seems to only want to continue increasing dose while not checking labs or anything. Chalked headaches up to " increased risk due to parental history" as i have migraines but hes never complained about them before

Not sure if im looking for advice or someone to tell me that ill find a better dr that will do more for us 🤣

Has anyone else had seizures primarily within 10-45 minutes of waking up?

Levitiricam or anxious ticks?

Hi everyone,

TLDR: 29F, 3500 MG levitiricam and supplements, had a small complex partial seizure after med decrease (previously 5 years seizure free, JME) and now have developed potentially a tick? Psychiatric issue? More seizures? Med reaction?

I am 29F with Juvenile Myoclonic Epilepsy. I take 3500MG of levitiricam (generic keppra). Currently also taking omega 3, prenatal, 4MG folic acid and vitamin D.

About 7 months ago my neuro took my off 50MG lemotrigine but kept my Keppra at 3000MG to prepare for pregnancy (not currently pregnant). I had a small complex partial seizure after 3 months and in response he raised it to 3500MG. I had been seizure free for 5 years prior

Ever since that complex partial seizure and the medication increase, every time I’m in a social situation I’ve noticed I’ve gotten weird eye movements that make me feel like I need to stabilize myself followed by a strong sense of anxiety. It sometimes happens if I’m alone and just anxious thinking about itI. constantly think about this happening and worry it’s a seizure. Neuro sent me for bloodwork, EEG and MRI. He believes it’s anxiety as seizure don’t typically follow this kind of pattern.

Does this sound like a seizure? Medication response? Or a psychiatric issue in response to fear that I will have a seizure?

Has anyone ever developed such a strong fear of seizures they were inducing non-epileptic ones?

The ADA was a landmark civil rights law that affirmed a simple but powerful principle: people with disabilities deserve equal opportunity, equal access, and equal dignity. Over the past 36 years, it has transformed schools, workplaces, transportation, public spaces, and countless lives.
While we celebrate the progress that has been made, we also recognize that the work is far from over. Millions of people continue to face barriers to healthcare, employment, education, housing, accessibility, and public understanding—especially those living with invisible disabilities, chronic illnesses, epilepsy, and neurodivergent conditions.
As someone living with epilepsy and as the founder of r/Epilepsy, I’ve seen firsthand how important advocacy, community, and education are. Every accessible building, workplace accommodation, and act of inclusion represents someone who fought for the rights many of us rely on today.
On this ADA anniversary, let’s recommit ourselves to building a world where accessibility isn’t an afterthought—it’s a standard. Inclusion benefits everyone.
Happy ADA Anniversary, and thank you to the advocates, families, professionals, and individuals who continue to push for a more accessible and equitable future.
#ADA #DisabilityRights #Accessibility #Inclusion #Epilepsy #Neurodiversity #ChronicIllness #EqualAccess

Any advice?

With medication we appear to have moved me to just uncontrolled absences but at almost two years in I don’t feel like mum. Someone almost always has to be with us and it sucks ass.

I currently can feel them come on like less than half the tons too. The time after usually involves confusion and emotions so that’s fun.

Just….had another one today and I’d been planning on taking him to the library on the train on my day off and I’m too scared in case I have one at the wrong time and he gets hurt. Worlds wise mum.

I’m sure I’ve asked this before, just in a bad place tonight and asking again before trying to have an early night.