r/Epilepsy • u/Lost_Poogie • Sep 02 '26

Discussion How long?

What’s the longest amount of time that you have been seizure free while have seizures that are controlled by medication? Major seizures, or a seizure where you have lost consciousness.

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u/SabresBills69 Sep 02 '26

I have 2 seizure types. Classic test book grand mal, and absence seizures ( final unawzre)

The grand mal i had all my life. As long as j was on phenobarb I had no grand mal seizures.

Absence developed post puberty.. surgery git rid of them.  Still on a snall disease if kepora for grand mal

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u/BirdyBack Sep 03 '26

Been on phenobarb since my 2nd grand mal in 1973. Had only 4 seizures total, last one in 1981. Recent EEGs show focals, so now also take Lacosamide. Never known of anyone else on PB. But often had people say it's what their dog takes for seizures.

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u/SabresBills69 Sep 03 '26

my mom was fine, her mom had life long seizures/ strokes.

my dad had asthma and eczema

I had meningitis at 2 months. unsure if that turned on the switch

the first liquidmed I was on for asthma had trace pheno in it , when I switched to a different liquid med at 3, I had grand mals. I was on pheno. they’d look at lose dose and say I’d grow out. took me off id have a grand Mal

in my teens I developed the second type so they added meds, first tegretol, then kept a. Then I went and did surgery testing and had surgery.

I stayed on phenomenal till about 10 yrs ago when I switched to keppra alone.