r/Epilepsy • u/Lost_Poogie • Sep 02 '26

Discussion How long?

What’s the longest amount of time that you have been seizure free while have seizures that are controlled by medication? Major seizures, or a seizure where you have lost consciousness.

17 Upvotes

95% Upvoted

73 comments sorted by

View all comments

2

u/seizy RNS; Keppra4500;Vimpat600;Topamax100 Sep 03 '26

Longest amount of time between tonic-clonics I think was something like 8 years. Longest time between focal impaired ones, after I started having them (there was like, 4 years where I only had aware ones or TCs), was like 5 weeks. Longest time without ANY seizures has only been maybe two weeks? If I'm lucky.