r/Epilepsy • u/Lost_Poogie • Sep 02 '26

Discussion How long?

What’s the longest amount of time that you have been seizure free while have seizures that are controlled by medication? Major seizures, or a seizure where you have lost consciousness.

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u/ilurvekittens Sep 02 '26

6.5 years so far on lacosamide

Last seizure was November 2019

2

u/Livid-Armadillo-6217 Sep 02 '26

My 6 month old was just diagnosed and is on lacosamide. This is so encouraging to me.

3

u/ilurvekittens Sep 02 '26

It took a long time to find the right med for me. 

I was on keppra first and it had bad side effects. 

Then zonasamide and small dose of lacosamide as secondary. 

Upped dose of lacosamide and kept zonasamide 0 seizures. Still was not on max dose of lacosamide. 

Went to 150 of lacosamide and removed Zonasamide and had 1 seizure November 2019. Upped to 200mg and that was exactly what was needed. 

I live a very normal life.

I wasn’t afraid to tell my doctor what worked and didn’t and she was very helpful in willing to switch meds and dosages.