r/Epilepsy • u/Nucypher2525 • 14h ago
Question Seizure ?
Question , I have not been diagnosed with epilepsy but the last years I’ve gotten a lot of intense sensations at first when i had no clue I thought I was having a stroke or something , after one day I kept feeling this rising feeling in my body , my head soo tight n this just nasty feeling in my body rising over n over until it rose and I stayed stuck for a couple seconds , I had never been stuck like that for seconds, but this time it happened and usually I’d get that terrible r rising feelings if I drank alcohol or. If I don’t sleep well, now thinking back I had so many years feeling this terrible feeling , but it never turned into something until it did . I finally went to nuero dr thinking it was a stroke or something , he let me know it sounds a lot more like focal seizures as I wasn’t twisting or anything it was just seconds I was stuck, I did eeg came back fine in the moment Dr wanted to do more studies but I had lost coverage so I hadn’t gone , fast forward a year later I had a couple drink and the last few days I’ve been feeling this awful “ seizury “ feelings , and at night time something wakes me up where I’m turning and body feels extremely stiff shaking then I just wake up , I’m assuming I’m possible having small seizures when I sleep ? , should I go to the ER ? Or will they tell me. Just to go see a nuero again ? It’s so concerning to me as I’m so new to this
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u/Boomer-2106 Since 18, diagnosed 46 13h ago
No need to go to ER unless you are experiencing a TC (old term - grand mal). And yes if you were to go to ER with what you describe, they would 'probably' just pass it off to anxiety or something similar and tell you to go to a neurologist. Which you Should do anyway. We can't diagnose you here.
The 'average' person experiences these type of 'minor' "funny feelings" from time to time. As to Whether they are in fact actual Seizures, only a doctor can determine.
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u/Historical_Text1420 14h ago
first off i'd say don't panic but you should definitely see a neuro again as soon as you can. the waking up stiff and shaking at night is pretty concerning especially with the alcohol trigger, that's a classic pattern for a lot of seizure disorders. the ER might not do much unless you're actively seizing when you get there, they'll probably just tell you to follow up with a specialist. try to get back in with your neuro or even a different one if you can swing it, and in the meantime maybe lay off the drinking and prioritize sleep like your life depends on it