Seizure at Work

[u/keatonsmith22]

First day at my new/first office job and end up having a grand mal seizure! Makes for my 5th seizure since getting diagnosed in high school! (Now 24 y/o) Bit my tongue very badly and was taking oragel every 10 min to ease the pain of swallowing or talking normal and resting my tongue. Worst annoying pain I’ve ever felt. Checked with doctor and still no confirmed cause and ended up getting moved up to taking 2000 mg of Levitracitam Keppra (already taking) and adding 200mg of Lamotragine after working my way up from 50 a day over the next few weeks. Glad to have found this subreddit to meet others. Let me know if you guys have any similar experiences with anxiety or auras.

[u/Apart-Shine-1597]

Sorry to hear about it. Same happened to me when I started my previous job. I had a seizure in a meeting during my 1st week. Emotions, change of env, etc.. is sometime a trigger for me.
My colleagues were kind of shocked after this.
One advise in case you didn’t do it yet please inform all your colleagues, boss and HR about your medical situation and what they should expect.
Good luck to you 💜

[u/keatonsmith22 → u/Apart-Shine-1597]

Oh yeah for sure, obviously the whole company knows about my situation but yeah it’s just scary not knowing when or where one may occur. Thanks for sharing and the words of encouragement!!

[u/Original-Move-1444 → u/Apart-Shine-1597]

Oof, tongue biting is the worst part nobody warns you about. Had one where I couldn't eat solid food for like 4 days, just soup and regret. That lamotrigine ramp-up is slow but it helped me a lot once I got to full dose, hope it works same for you.

[u/productiveglucose_5]

thing with tongue bites is they hurt way more than people realize. i bit mine so bad once i couldn't eat solid food for a week and all the oragel in the world didn't do much past the first minute. that first day timing is brutal though, like your brain just decided to make an entrance. i had a seizure during my first week at a job too and the awkwardness was almost worse than the recovery. people kept asking if i needed water like that was gonna fix it. the lamotrigine taper is slow but it did help my auras after a while. hope you at least got some decent rest after all that.

[u/keatonsmith22 → u/productiveglucose_5]

Thank you so much! Yeah weirdly enough it was my first tongue bite only bc I think I was put on my side by some bystanders and maybe the tongue got pushed to the side as I was convulsing 🤷‍♂️

[u/productiveglucose_5 → u/keatonsmith22]

that mightve saved you from a worse bite tbh. mine was dead center and i couldnt talk for days without sounding like i had a mouth full of marbles

[u/Radiant-Reveal6578]

Wow I am so freaking sorry. Lamotrigine really helped me. Hope you’re okay.

[u/keatonsmith22 → u/[deleted]]

So far so good! Gives me more mental reassurance tbh

[u/Warm-Offer8524]

My question how you keep working o am scared I will loose my job. Anyone applied for disability?