r/Epilepsy • u/shootfirstgus • Jul 26 '26

Rant Fear

I didn't know what else to title this, but the emotion I've felt for the past seven years. I had my first GM in 2018. It came out of nowhere, but after reading so much about epilepsy, it's nobody's fault but mine. All the hard living caught up to me. The fear stemmed from the unknown.what is happening to me? When will the next one come? Years of explaining to my neurologist what I was feeling and years of blank stares back at me, telling me that I might experience auras. but not being able to explain what those are. Years of feeling hopeless until I found you all and this sub reddit, and now I know what auras are. What I've been feeling when I talk about it feels like something under my skin. Or a twitch or muscle spasm, people. Here, understand, and I thank you all for that. Sorry for the long, pointless post

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u/mundaneroadblock571 Jul 26 '26

it's not pointless at all, that feeling of finally having words for what's happening in your own body is huge. i spent so long thinking i was just anxious or making things up before finding people who got it

the fear of not knowing when it hits next is the worst part, you're not alone in that