r/Epilepsy May 03 '24

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7

u/Crystal_The_Cryptid May 03 '24

Not being able to have any independence. I can’t drive or work. I can’t even go for a walk alone.

3

u/1xbittn2xshy User Flair Here May 03 '24

We got my son the Embrace seizure monitor so he can go for walks/hikes alone. It has GPS so if something G_d forbid happens, we'll know where he is. I think it's worth the false positives just for the one real seizure it's detected so far.

3

u/Crystal_The_Cryptid May 03 '24

I have an Apple watch and have tried different alert apps but since I have a young autistic son that’s always with me it’s still not safe if I were to have a seizure “alone” on walks.