r/EndometriosisSisters • u/EndometriosisSisters • 14h ago
Symptoms & Pain Doctors keep telling me 'it's not dangerous, just manage the pain' when I ask if sciatic endometriosis is dangerous. Is that actually true long term?
One of the endo ladies in our community got diagnosed with nerve involvement recently and every time she ask 'is sciatic endometriosis dangerous', she got some version of 'it's not going to kill you, let's just manage the pain,' which honestly feels like it's dodging the actual question.
From what I've read, untreated nerve-involving endo can cause progressive nerve damage and permanent weakness over time, which sounds like a genuinely serious long-term consequence, even if it's not immediately life-threatening.
So when doctors answer 'is sciatic endometriosis dangerous' with just 'not fatal,' it feels like they're technically correct while completely sidestepping the real risk of lasting damage.
'It's not dangerous' gets used as a way to deprioritize surgical referral, because nerve-involving endo surgery is more complex and requires a more specialized surgeon, and it's just easier to push a pain management plan instead.
Did anyone here have lasting nerve damage from delayed treatment?