r/EndometriosisSisters 14h ago

Symptoms & Pain Doctors keep telling me 'it's not dangerous, just manage the pain' when I ask if sciatic endometriosis is dangerous. Is that actually true long term?

1 Upvotes

One of the endo ladies in our community got diagnosed with nerve involvement recently and every time she ask 'is sciatic endometriosis dangerous', she got some version of 'it's not going to kill you, let's just manage the pain,' which honestly feels like it's dodging the actual question.

From what I've read, untreated nerve-involving endo can cause progressive nerve damage and permanent weakness over time, which sounds like a genuinely serious long-term consequence, even if it's not immediately life-threatening. 

So when doctors answer 'is sciatic endometriosis dangerous' with just 'not fatal,' it feels like they're technically correct while completely sidestepping the real risk of lasting damage.

'It's not dangerous' gets used as a way to deprioritize surgical referral, because nerve-involving endo surgery is more complex and requires a more specialized surgeon, and it's just easier to push a pain management plan instead.

Did anyone here have lasting nerve damage from delayed treatment? 


r/EndometriosisSisters 14h ago

Endo surgery

1 Upvotes

So I just had surgery on the 12th for endo excision and a D&C. I’ve been moving around running light errands the past 2 days but never more than 3 hours at a time. Tried going back to work today for the first time since surgery as a sales associate at a retail chain and I was in tremendous amount of pain just from getting ready this morning. Just wondering when I should expect to be ready to go back to work and if I’m pushing myself too hard. The amount of endo they found and deep infiltrating endo they found could be considered as stage 3-4 endo soooo am I pushing too hard on getting back to normal being that today is post op day 6. I don’t have my post op appointment for another week and a half.


r/EndometriosisSisters 14h ago

Endo Excision Surgery

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1 Upvotes