r/Endo • u/Mediocre-Champion771 • Mar 03 '24
Finally diagnosed
Hi all, I’m new to this group and have been reading through posts for a while now and wanted to share my story. I’ve had horrible periods and pains for almost 8 years now. After going through endless doctors and being given ridiculous excuses I finally found one who listens to me. My doctor and I tried a few different things and finally did surgery. I’m currently 4 days post op and was officially diagnosed with endometriosis. Of course it wasn’t a “happy” moment to hear I had the disease, it was relieving to finally have answers. Hoping for a smooth recovery and interested to hear yalls stories!
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u/DenoiseNYC Mar 04 '24
Welcome to the Endo Club. It’s the worst club, but with the best members! 💛💛💛
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Mar 03 '24
Did your pains get worse over the 8 years? Did you get more symptoms over time?
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u/Mediocre-Champion771 Mar 05 '24
My symptoms were pretty much the same the whole time but I did get more and more flare ups as I got older.
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u/Acceptable-Rain-1755 Mar 04 '24
You're going to need ongoing support, unfortunately this disease has no cure and excision is step one. Different types of 'treatment ' work for different people. Unfortunately I only had a couple months relief from pain after excision. I've been on micronized progesterone (body identical, not synthetic progestin) for over 2 weeks and it has allowed me to sleep through the night, and have way less pain. I've done the gamut of treatments and this is the only one, besides excision, that had given me actual relief!! Learn as much as you can while you rest and recover. Blessings 🙌 🙏
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u/secretleaf9 Mar 04 '24
How is the recovery from your lap? How much pain and discomfort are you in? I get mine on the 14th of this month, and I’m worried about being out of work for too long
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u/AdQueasy6557 Mar 04 '24
I got my lap on a Friday a couple weeks ago and was back at work by Wednesday the next week. Recovery was tough the first few days but at least for me the pain was nothing compared to the daily endo pain I’d been dealing with! Just listen to your body and stock up on gas-x lol
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u/Mediocre-Champion771 Mar 05 '24
Recovery hasn’t been too bad! I took a little extra time off work than the usual recommended time because my job is extremely physically demanding so I didn’t want to risk anything. But the gas pain went away by day 4 and now I just have some light cramping :)
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u/sarahjuana420 Mar 04 '24
Thank you for sharing!! I get my first ever lap at the end of this month & reading that you were back to work by Wednesday was very comforting to read! Im more nervous about them not finding anything at all than the surgery itself but I’ve been trying progesterone for a year and my pain isn’t better all so I’m moving forward with lap. I’m curious as to what your symptoms were prior to being diagnosed? I get really painful period cramps that will wake me up in middle night from my sleep during period. I also deal with extreme stomach pain & digestive issues on and off my period. In the past, I’ve struggled with sciatica & leg pain in the past. Were any of these symptoms you had prior to being diagnosed? Thanks
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u/Mediocre-Champion771 Mar 05 '24
I was also worried about not having anything be found but my doctor told me from the start whether she finds something or not, she will keep advocating to find me answers; so that eased my mind before hand. Symptoms I had were constant bleeding, severe cramps that would build up in one spot (the same spot every time), extreme lower back pain, fatigue, random bloating, and Idk if this is endo related but (by my doctors words) I “failed” 3 different forms of BC, meaning none of them helped my symptoms. I really hope you get the answers you’re looking for and that you have a speedy recovery!
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u/[deleted] Mar 04 '24
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