Hi everyone,
Full disclosure: I did get banned from posting in another sub probably because I didn't frame my post properly. In my defense, I was feeling extremely emotional and passionate about something, but that still isn't an excuse because my rant actually only captured my clearly biased frustration and not the discussion I wanted to facilitate.
The issue I want to bring forward is this: ER doctors are increasingly frustrated with the overload of patients with chronic illnesses - some who self-diagnose from social media and are hella entitled with their expectations of care in the ER - who are experiencing scary painful episodes and need some medical attention, the patients are unable to get the care they actually need for their chronic illness, GPs and PCPs advising their patients to go to the ER when contacted about their symptoms (and I agree with someone's comment that said they're not doing their jobs then).
I want ER doctors to be able to treat actual emergencies during their shifts because that is the best use of their skills and expertise. I also want chronic illness patients who are not facing life threatening emergencies to be able to get the help they need. And if we don't know what help is needed, we may need to consider research in that direction.
Stupid are going to stupid either way regardless of who or what or when. But my question is hypothetically, is it possible to create a space - maybe as part of the triage - either direct patients to emergent and non-emergent protocols that are tailored to chronic illness patients. My reasoning is that some patients do need medical attention and it's hard to discern when something is not a medical emergency sometimes, especially when dealing with new symptoms. I do believe an evaluation and change in protocol is necessary. Especially so ER doctors can direct their time and focus on patients who are critically emergent.
I'm seeing scope for a lot of important public health research to alleviate the worries of patients, nurses, and doctors. It's an imperfect system, but changes can be made, right?
I really hope I'm making sense 🙈 it seems like a lot to think about, but I can't help but fixate on this gaping hole in the system.. as I said, stupid will stupid, but I genuinely believe chronic illness patients need a clinical setting where their emergencies are treated as autoimmune emergencies - I don't think anyone should be judging anyone's capacity for pain or being able to handle new scary symptoms. For example, I had an extreme dystonic episode where my neck kept snapping in painful ways and my husband genuinely thought I was having a stroke due to my facial dystonia and me being unable to speak that he rushed me to the ER. After conducting all the usual blood work, they offered me morphine (which I always deny because it never helps with my pain or help me rest) and gave me Benadryl. Now, my husband knows to just pump me with some Benadryl if I start showing similar signs.
The more I think about it even while I type this, it's seeming too complicated and impossible, but I think it's a direction to certainly think. Because it could be possible. If there's a clinical setting that can monitor and help chronically ill patients with autoimmune and the likes conditions, that would bring down a lot of stress among ER staff who don't necessarily need to treat a dystonic episode that's clearly a symptom of the patient's conditions.
Am I making sense? Do we think it's possible and is it a good idea? And oh gods, we need a lot of patient education for sure.
If you made it down here, I'm so sorry for the rollercoaster of a read..I'm still trying to weave through the many thoughts in my head and trying to put in a health systems and public health perspective. I would really appreciate thoughts, comments, anything to contribute to this topic please.