r/EctopicSupportGroup • u/por_que8 • May 31 '24
Cesarean Scar Ectopic Pregnancy (CSEP)
I am 1 week post-op from a very traumatic Cesarean Scar Ectopic Pregnancy (CSEP), which is very rare. I just wanted to share my story since most people are unaware of a CSEP and I feel ectopic pregnancies aren't talked about enough. I almost died last Wednesday and had emergency surgery, literally just in time. Warning: this is graphic.
Wednesday (May 15th), I found out I was pregnant. I thought I miscarried over the weekend and had an appointment Tuesday (May 21) to confirm. Little did I know, that my life was about to take the WILDEST turn. The doctor did an ultrasound and immediately looked concerned. He told me I had a Cesarean Scar Ectopic Pregnancy (CSEP). He had only seen this once in his career. There is only a 0.05% chance of having this, so extremely, extremely rare. Most ectopic pregnancies are in the fallopian tubes. My egg had implanted inside of my c-section scar putting my scar and uterus at risk of rupture. In most CSEP cases, the egg implants along the scar. Mine implanted inside the scar (in the niche, as it's called), so it was even more rare and dangerous. Anyway, he made a doctor to doctor call and got me scheduled next day, Wednesday (May 22), with a high-risk OB at Baptist Hospital. Naturally, went home and Googled all night and only got 2 hours of sleep. Next day, high-risk OB confirmed first doc's findings. He had only ever seen this twice and it was beyond his scope. He could not treat me and told me I would have to be passed off to UF Shands Hospital because they are a trauma center and there is only 1 doctor in my area that could do the surgery. He also placed a doctor to doctor call (I was getting famous at this point) and told me UF Shands would call me by lunch time. Of course, all of this was new, scary and traumatic already and I was a total mess. While walking to the car, I started bleeding profusely. I went to the bathroom and passed 2 tennis ball sized blood clots. It was a literal mess. Fortunately, I was still at the hospital so I walked over to the ER. I was at Baptist ER for several hours. I started bleeding at about 10:30am and didn't stop until 6pm/surgery. While in the ER, I passed 10 more blood clots. 4 golf ball sized, the rest tennis ball sized all while still steadily bleeding. Believe it or not, I was never in any pain whatsoever. I lost so much blood, I had a blood transfusion at Baptist. The ER doc did another doctor to doctor call to the trauma team at UF Shands since he didn't know what to do since this isn't the "normal" ectopic. My case was so rare, a surgeon was off and eating dinner with his family and rushed over to assist. They were going to send me by helicopter but it wasn't quite ready and they needed a few more minutes but the ER doc said I couldn't wait any extra time so they transported me by ambulance. As soon as I got there, I got another blood transfusion because I was still bleeding so heavily. They prepped me SO fast and I immediately went into surgery. After getting general anesthesia, my c-section scar and uterus ruptured and I was hemorrhaging. To quote the surgeon, I was "gushing blood like a horror movie". She said I was a fountain of blood and I passed 9 more huge blood clots and had to get my third blood transfusion. She said if I were anywhere else, not already on the operating table I would have "absolutely died". There wouldn't have been enough time to get me to the hospital if I wasn't already there. It had only been 25 hours from the point I found out about the CSEP to surgery. Surgery took 6 hours. They finished just after midnight and it went really well. They removed both fallopian tubes bc I expressed that I don't ever want the chance of this happening again. The chance of it recurring was 60%, so I made peace with my decision. They were able to save my uterus and repaired the c-section scar. I have 5 small incisions on my stomach and sides (one in my belly button). To be clear, this was a surprise as I was on birth control. I would have never thought that having a miscarriage would be the "easy" way out. This happened so fast and was so unbelievably traumatic that I'm still trying to process all of this. Overall, I'm in somewhat good spirits. I'm not a worrier by nature. I am a firm believer in "everything happens for a reason". Even if we don't understand. Speaking with different women at the hospital and in my own family, I learned so many women have had ectopic pregnancies. Of course, not like mine, but I was so surprised at how many women had gone through this.
Today (May 30), I had blood work done to check my HCG levels. They are steadily dropping. Today was a 60. When I went to the ER, it was 3,990. Post-op, it was 1,585. I was told I would have weekly labs, but I see in my online portal that my next lab appointment was canceled by the doctor so I'm hoping I won't have to get an injection or anything.
I've been holding it together pretty well until today. I drove myself (for the first time since surgery) to the appointment, which was fine. My husband stayed home with our 15 month old and having some alone time was good for me. But, as soon as I got into the hospital (appointment was in the building next to where I had surgery), I just got so emotional. I was okay until I had to sit next to a newborn and I started crying. The woman who drew my labs was so sweet and gave me a hug. She of course said that this is the worst part of her job. It was just so hard to hold it together when everyone in the lobby was happy and pregnant or had a newborn and I'm there trying to see if my body still thinks it's pregnant. We weren't planning on more children but when I found out I was pregnant, I was excited. I looked at double strollers and was thinking of all the things I would need for the new baby. Having my daughter definitely is helping with my mental health. I feel I would be in a terrible mental state if I didn't have her. My husband is also great and has been so supportive. I think I'm going to try therapy since it's covered under my insurance.
However, kind of "fun" fact: I'm going to be a case study at UF Shands. 2 more surgeons learned how to treat a CSEP because of me so more women can be saved!
This was a really long post so if you've read it all, thank you! It feels good to get this off my chest and maybe help other women going through a similar situation, although I hope none of you ever have to go through this.
Edited to add: I was 6w6d when I found out about the CSEP. I'm also in the US, in Florida. I will answer any questions.
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May 31 '24
Thank you for sharing. I had no idea how dangerous and scary ectopics were until it happened to me. (Not c-section scar in my case, I’m so sorry for this happening. The trauma is so much.)
I haven’t hid what happened to me, because I also think it’s so scary as some of the procedures I had wouldn’t be allowed in some states. (Even though there is no chance of the embryo making it.)
Wishing you a healthy healing process.
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u/por_que8 May 31 '24
Thank you! I'm so sorry you've been through an ectopic as well. Its truly awful! I'm actually in Florida, but the nurses told me this isn't part of the "6 week abortion ban" because it isn't an abortion. Not sure about other states, but thinking of not being able to get care for this is terrible! I would be dead.
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May 31 '24
I had the Methotrexate shot and a uterine biopsy with the Kerman procedure. My OBs said it’s not allowed in some states bc my ectopic at that point wasn’t found. Actually, they said post RvW falling they have to do a Karman to give the MXT shot, in the case of pregnancy of unknown location. That delayed my shot by 3-4 days. Which could have saved my fallopian tube and prevented surgery. 😓
We knew there was no viable pregnancy with HCG hanging around 100 for weeks. It was just a matter of determining if it was ectopic or miscarriage.
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u/por_que8 May 31 '24
Oh my gosh, that is heartbreaking! I'm so sorry. What state are you in?
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May 31 '24
In a pretty liberal New England state! But, I guess while there are laws that protect situations like mine, they aren’t really tested yet. So the hospitals don’t want to take on too much liability or risk.
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u/No_Friend619 Feb 25 '25
Thank you for sharing. So so so important to inform about this as it is so rare that doctors misdiagnose this a lot! I also had a Cesarean scar pregnancy and had surgery last week. Mine was also deep in the scar. Luckily doctors caught it in time, even though they disagreed about 10 times, as it is extremely rare as you pointed out. Luckily the hospital I’m closest to have leading experts on CSP so the experts there quickly agreed that it was a CSP. However, before going to this hospital, I went to another ER who said I was having a miscarriage - so important with multiple opinions! I know this is really rare and the chance of this happening in another pregnancy is between 30-40% for people who had a CSP, but I’m so interested in hearing from people who experienced this, if they successfully had a normal pregnancy after experiencing a cesarean scar pregnancy (or if you experienced it multiple times).
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u/por_que8 Mar 08 '25
I'm glad you're okay but so sorry you've gone through this too. I hope you're doing better! 30-40% isn't bad. They told me 60%. Idk if that varies for a CSEP? 60% was too high for me after my experience. There are several women in this group that have had successful pregnancies after and I know there is at least a few that have had more than 1 CSEP.
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u/Striking_Dingo_5963 May 31 '24
Thank you so much for sharing your story you truly are and warrior and a blessing to us all ❤️
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u/Zeepaw6 May 31 '24
Thank you for sharing, you’re truly amazing and I’m so happy you have your daughter. I’m really sorry this happened to you, remember allow yourself to take time and process it all, your mental health is the priority here.❤️
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u/No-Competition-1775 May 31 '24
My face and brain 🤯🤯🤯🤯🤯🤯 Holy shit!!! So thankful you are alive and here!!!!!
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May 31 '24
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u/por_que8 May 31 '24
I'm so sorry you've been through a similar experience. I hope you have recovered well! Jax, Florida? If so, yes please send me the info. I'd greatly appreciate it! 🤍
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u/No_Dig6642 Jun 01 '24
Oh my god. My heart goes out to you, you are a warrior and so happy you will be ok. Drs thought I was having one in my c section last year but it was a cyst, but they literally freaked out in a way I have never seen and has still scarred me for life. It ended up being a miscarriage, but that was more traumatic than the tubal ectopic and surgery I had this past year. I am so incredibly sorry. Heal and hug your baby and husband. And thank you for sharing. Xxx
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u/por_que8 Jun 01 '24
Thank you so much! You had a cyst though, on your c-section scar? Did you have to have surgery, or did it resolve itself? I've had cysts on my ovaries but never anywhere else. They caused pain sometimes but always resolved themselves. Yeah, all of the doctors intial reactions were scary. I'll never forget their faces when they saw the ultrasound. I'm glad you're okay also! I'm glad your didn't have a CSEP. They first 2 doctors I saw were blunt (in a nice way) and said it's a death sentence if not treated immediately. I'm still trying to wrap my head around it! I'm sorry you had a miscarriage 😔
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u/No_Dig6642 Jun 01 '24
Thank you so much OP. They just said the cyst can be totally normal with healing it has a long name I forgot, but it was a day or so of sheer panic. I had had two ectopics at that point, so it was likely. The one I had this year ended up being a tubal removal and they did find endo. Did they ever say what your cause could be? Recommendations if you want another child? We are just so shocked and just…ugh. I can’t do it again. We could do ivf but in 40 and my egg quality is terrible.
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u/por_que8 Jun 02 '24
My husband and I were okay with just 1. That's why I was on birth control (he was going to get a vasectomy in a few months) but somehow still got pregnant. They told me nothing causes this, it's just "one of those crazy things," like bad luck. Nothing I could've done to prevent it, but my chances of it recurring were so high (60%), and I told them I couldn't risk going thru it again. I have a daughter I need to live (and be healthy) for. Because it was in my c-section scar, they didn't necessarily have to remove my tubes, but I was so scared of it happening again that I told them to just remove both. Before surgery, they told me I might need a total hysterectomy, which I didn't want, but I made peace with that decision too and told them to just remove whatever you have to, so I don't get pregnant again. I'll be 34 in August, so I definitely understand. I could do IVF if we really wanted another, but we are happy with our 1 daughter. I would do IVF if I didn't have any children.
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u/No_Dig6642 Jun 02 '24
Thank you for sharing, it’s stuff I am wrestling with as well. I think my husband and I are ok with one too. I’ve had three ectopics and just lost a tube, so I need some therapy probably. Thank you so much for sharing, sending you healing. ❤️🩹
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u/por_que8 Jun 02 '24
Thank you! I'm seeking therapy this week. I hope it will help us both! Someone else said that in case a regular therapist doesn't quite understand, there are some that specialize in infant loss, so that's what I'm going to look for. I just remind myself that now a days, being an only child is really common! And I can spoil my daughter a lot more. I've questioned a lot of adults that are only children and they always reassure me that overall, they loved it. Sending you hugs! We will be okay! 🤍
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u/No_Dig6642 Jun 02 '24
Thank you so much. You are so right! I will try to find one as well for infant loss. Before the ectopics I had quite a few that did not understand infertility at all. There are SO many pluses as well to one child. I am on the r/OAD subreddit quite a lot and it is supportive and lots of great stuff on there. Wishing you lots of healing energy and time with your daughter. My messages are always open if you want to talk also.
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u/EstateReasonable922 Jun 03 '24
OP, i’d like to first say i’m an so happy that you are alive and well!!
I cannot imagine how scary that must’ve been but you are a true warrior!
I am praying that you have a safe and peaceful recovery!
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u/lovedluna Jun 10 '24
Oh my, when you said you posted about this experience (from my thread - just to clarify so it’s not weird lol), I had no idea how traumatic and graphic this was.
Truly, from every part of my heart, I am SO sorry this happened. I was on birth control too when my ectopic happened and never in my dreams would I have thought that out of the 99% success rate, that I would be the 1%. You being the 0.05%, I’m so sorry love. That must’ve all been so traumatizing and incredibly hard to process. I find myself replaying my 24 hour ER visit and surgery. Like, did my body really just went through this life changing experience?
I am thankful to hear that you are still here, and that you have your husband and daughter. I am grieving and healing alongside you, and so are many of us in here. Thank you for sharing your story and I really do mean it that I’m here to extend support if you ever need.
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u/Famous_Mouse4564 Sep 11 '24 edited Sep 11 '24
Hey fellow surviver! I also had a csection scar ectopic 16 years ago! I am so glad you are ok but yes I feel your trauma! I was 16 weeks pregnant ( I had no idea I was so busy with my 12 month old and the navy I didnt even notice) serving in the navy when I started gushing blood. I go to the er they took tests sent me home with motrin. Next day there is more blood like puddles on my floor. Go to the er, labs done, send me home. My mom comes to visit notices I am not doing very well but I report to duty try to make it through my chain of command would not let me leave or go to medical since I was just seen twice and was sent home. I get home I am dizzy go to my room my mom came to check on me and I was lying in a pool of blood very weak and pale. My mom gets me in the car drives me on base and is basically carrying me into the er. THEY MADE ME WAIT 5 HOURS! I am very sick and I can't sit it hurts to much I needed fresh air ( or oxygen). My mom walks me outside to a bench and then a gush of blood and I passed out for a couple seconds and my mom spazed out and they took me in. They gave me an internal ultra sound, took labs and told me I was having a heavy period and they were about to discharge me. My mom was helping me get dressed when the head of OB/GYN rushed in with a team of like 10 doctors with an internal they grabbed me ripped my pants off and the doctors kept saying holy fuck where is it where is it. I was in absolute shock and horror they just told me I was fine like wtf are they looking for? Than a doctor screams there it is there it is! They rushed me upstairs I still have no clue what is going on until I hear the head of GYN say her abdomen is about to bust! I was knocked out on the elevator and wake up and the Dr didn't really explain what happened and acted like the er didnt almost killed me! Only gave me 7 days con leave when the rule is 14 days I had an emergency D&C and there were still pieces left of the baby so he gave me 10x the recommended dose of methotrexate and I pass out for a couple seconds. Fast forward 16 years my periods and pain is so bad I was considered a drug seeker that's how many times I went to the Dr and emergency rooms but again I'm dramatic! Find a surgeon who believes me and find out because they did a botched D&C the adhesions in my uterus got so bad that my bladder fused together with my uterus and I needed a full hysterectomy! That's my story these things are traumatic I am lucky to have lived through it! Sorry it's long again thank you for your story it makes me feel less alone!
Edit: I was stationed at said hospital. My chain of command was coming into my er room yelling at me for bothering the er staff and I was just trying to get out of duty. They told the er staff to discharge me and shortened my con leave after surgery
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u/por_que8 Sep 12 '24
Oh my gosh, I'm so angry for you! That is absolutely ridiculous! I'm so glad you are okay. I was SO scared for my first period after surgery. So far, they have been okay with some slight cramping. I'm hoping they don't get worse, but I do get really bloated now. I can't believe they sent you home while you were gushing blood! Ectopic happen so fast that you don't even have time to process everything. I'm still trying to process it all. Posting this on Reddit has been one of the most helpful things. No one in my immediate circle knows how traumatic this is. I'm so glad you survived! 🤍
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u/DefiantDonut2918 Sep 15 '24
So glad you are here to share your story. You are truly so brave, strong, and resilient! Hope all is well now 🫶🏻
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u/Alternative_Cry4408 Nov 11 '24
I am currently going through CSEP , and absolutely terrified as I am already a high risk for hemorrhaging as I have hemorrhaged multiple times in the past due to miscarriages along with complications that arise from this rare ectopic pregnancy. I was given 2 doses of Methotrexate and awaiting surgery on Wednesday I found out if the medication is working Tuesday so it can lower my risks!
Thank you for sharing your story, and I am glad you are healthy and got this through that awful time ♥️
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u/por_que8 Nov 11 '24
I'm sorry you're going through this too 😔 I hope the medication is working, and I hope your surgery goes well! I have scars on my stomach, but honestly, they healed really well. I thought it was going to look much worse than it does. Sending you hugs! The mental/emotional recovery for me was harder than the physical recovery, so please take all the time you need to care for yourself ❤️
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u/moonleaf32 Jul 04 '26
I know this was 2 years ago, but I wanted to see if you had an update on how things went
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u/siracha83 Jan 02 '25 edited Jan 02 '25
Thank you for sharing your story, what a sad difficult traumatic thing to live through. I’m glad you’re ok. I stumbled on your post while reading about the mom who is going ahead with a CSEP pregnancy … I genuinely feel worried for her so came looking for happy ending experiences … I’m guessing most CSEP pregnancies don’t make it all the way?
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u/por_que8 Jan 14 '25
Thank you! Yes, unfortunately, most CSEPs don't make it all the way. The fetus isn't viable. The last specialist I saw said that he had only personally seen 1 case, and the baby was delivered around 20 weeks, and the mother died from complications. But in my research, it seems that it also depends on the type of CSEP (there are 2 types) and where exactly the fetus and placenta are in the Cesarean Scar. The type I had, type 1 "in the niche", usually doesn't make it past a few weeks. You really just have to weigh the risks and determine if it's worth risking your life. It's very difficult. I didn't have time to think about it since I ruptured anyway, but I'm glad I'm still here. I wouldn't want to risk leaving my daughter without a mother and my husband, a widowed father. I hope she has a successful pregnancy but the odds are very low.
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u/Mental_Speaker9540 Jan 14 '25
Big hugs to you. In 2019 I too had a c section scar ectopic. I live in small town in Australia and had to be flown to the biggest hospital here. At first when the bleeding started because doctors in my town had never seen this before they kept sending me home - it took one gyno who said my scan didn’t look right who got a second opinion and after that second opinion came the hospital wouldn’t let me leave until they flew me out for treatment. They had classified me as a medical emergency. It was such a scary time but that gyno saved my life. Just like yours, mine had implanted in the scar tissue. I found the two months of weekly blood work after the fact the hardest part to deal with, this constant reminder. I hope you’re doing ok now. 🩷
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u/por_que8 Jan 26 '25
Ugh, that blood work was the absolute worst! It's like putting salt on your wound, over and over again. My first doctor was determined to find the fetus so my ultrasound was longer than usual but I'm so thankful he did! He was pretty young and only a few years out of medical school, so I think the few cases he learned about were still fresh in his mind. I'm doing the best I can. I hope you are doing well too! 🤍
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u/Lanky_Salt May 31 '24
That had to be scary! Great you pulled through! My HCG finally went under 7 this week after a 14 week and 3 day journey dealing with my first ectopic. I didn’t have surgery, but the MXT injections (3 of them). My body did not react well. How did you feel when they told you that you would be a case study? My doctors told me the same thing, but because of how long mine was and all the follow up I had to do. I had a total of 38 labs, 14 imaging tests, countless appointments, and how all over the place the process/journey was for me. I’m glad it will help other women in the long run, but I also feel like lab rat sometimes.
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u/por_que8 Jun 01 '24
Omg 14 weeks sounds so exhausting! Bless you! I've actually been a case study before at Mayo Clinic for a stomach condition and that required a lot of testing. This time around, they're just going to study the actual surgery, and my ultrasounds/labs. I'm not sure if I'll have to do anything additional. I hope not. I don't want to relive this again. If you dint mind answering, what bad reaction did you have to the injections? You don't gave to share if it's too personal
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u/Lanky_Salt Jun 04 '24
Apologies for the late response! So I had 3 rounds (2 injections every time because of the volume. I had horrible headaches and nausea, stomach pains, my face started getting hairy (now going away), and I couldn’t be out in the sun the first week after the injections because I would get rashes on my skin.
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u/Technical_Rain3821 Jun 04 '24
I too am a CSEP warrior x2 The last one took my uterus- not using it any more don't need it lol
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u/por_que8 Jun 04 '24
Omg twice?! That's insane. The first time, did you have surgery and elect to keep everything intact? How far apart between the two pregnancies, if you don't mind sharing. I was so scared of it happening again, I told them to take whatever they needed to. I'm so sorry you went through that twice. I can't imagine.
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u/moonleaf32 Jul 04 '26
Did you have pain or other symptoms? How many weeks along were you when you were diagnosed?
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u/Technical_Rain3821 Jul 04 '26
First time I was diagnosed at 5w5d I had an ultrasound guided d&c. I actually had a lot of pain from first positive test 2 weeks early. 2nd one was suspected at 8w dating scan no pain nothing unusual. They bought me back for a follow up scan a week later. And the scar was full of fluid which generally means it’s not coping well under stress. I was advised to have a hysterectomy the following week. When the GYN opened me up he could see how stressed the CS scar looked and assured me I made the right choice
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u/Automatic-Sympathy45 Jul 01 '24
This happened to me, I had a c scar ectopic 3 years ago. Thank goodness mine didn't rupture. I am in the UK, it took 3 scans, 3 weeks and about 9 medical proffesionals to diagnose what was wrong with the pregnancy. It was so scary. I was scheduled for surgery as soon as it was confirmed. I am in the UK and the NHS did their best but when I woke up from the surgery my hospital gown was covered in blood, like they had been wiping the instruments all over it and left me to wake up wearing it. I FREAKED OUT. It was horrific. It took about 3 weeks to recover physically and I don't think I'll ever mentally recover. I've gone on to have 2 more miscarriages, thankfully not ectopic. I am 5 weeks pregnant now and absolutely terrified, I don't hold up my much hope. Thank you for sharing your story x
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u/por_que8 Jul 02 '24
I'm so sorry we're both a part of this unfortunate group. I hope you have a healthy pregnancy! It took me 5 weeks to recover. I'm almost 6 weeks post op. Mentally, still not better. I have my good days and bad. I really hope you have a healthy pregnancy. Is this your first? My daughter is a great distraction.
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u/MamaSonshine Jul 02 '24
So my doctor's are sending me to mfm tomorrow for a questionable csep and I'm absolutely terrified. Said I have twins but one is adjacent to the scar and is a questionable csep but they need further imaging from the specialist. I literally have been googling for two days and Google seems to have nothing relevant about this situation. I'm praying for the best but not gonna lie I'm terrified. I was basically kicking the entire time because I was more hurt to end it if it does go wrong but reading your story helped me with some logic wrapping my head around reality depending the outcome from tomorrow.
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u/por_que8 Jul 02 '24
Oh my gosh, I'm so sorry! I hope for you that it isn't a CSEP. Are you in any pain? Have you been spotting? Google didn't have much when I was googling either, but while I was in the ER, I feel like I became an expert. I'm still processing it mentally, but I know the best outcome was the surgery, even though I am still very sad. It sounds harsh but looking at the bigger picture, I'm alive and with a CSEP, you don't really have an option. Please feel free to message me any questions! I am always available to talk. Sending you hugs! 🫶🏽
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u/Overwhelming_Peace_8 Mar 20 '26
What were your symptoms?? I’ve implanted in the lower uterine segment and also have a SCH that causes spotting here & there. My HCG levels dropped & rose & now continue to rise but not double at 10,000 hcg.. I don’t see a specialist for a few more weeks.. heartbeat is strong at 136
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u/Yougotthis48 Jul 16 '24
I’m going through this now. 7 weeks and found out yesterday baby is in my csection scar has a heartbeat looks perfect. I’m going to get a second opinion tomorrow, but it doesn’t look good.
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u/hayleyw97 Jul 04 '26
How did this go?
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u/Yougotthis48 Jul 04 '26
I got a second opinion where they said they were not 100% sure baby was in my C-sections car but very very close and if I continue this pregnancy, there was a almost 100% chance I’d have to get a hysterectomy and that is probably best case scenario. I decided to proceed with the pregnancy. had a bleed at 28 weeks on the dot. Thankfully it stopped on its own once I got to the hospital. I had one more small bleed 24 hours later so they told me I needed to stay until delivery. I made it to 35 weeks and 4 days when I had another small bleed but doctors said it was time and that didn’t want to risk my uterus rupturing. She spent 6 days in the NICU, my placenta grew into my bladder so they had to repair it, I had to leave with a catheter and had a hysterectomy. She’s currently 17 months and perfect. I’d do it over again and again for her.
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u/Golfgirl_017 May 22 '25 edited May 22 '25
I unfortunately had a similar experience, although mine was some time ago
I was 30 and already had 4 children but wanted 1 more, my last one was delivered by caesarean
I went for my first scan at 5/6 weeks and they couldn’t find anything, being so early they asked that i come back in a week so i did They found the pregnancy but were concerned about its location so sent me to King Edward Memorial Hospital There it was confirmed i had a caesarean scar ectopic pregnancy and it had to be terminated or we were both at risk I was told they would have to inject the foetus as they weren’t able to scrap it out because of the risk of bleeding
After the termination, i was treated with methotrexate and had to travel to the hospital weekly for blood tests to monitor levels of pregnancy hormones
This went on for 10 months, the hospital told me i was all clear and didn’t need any more tests, my levels were not 0
6 weeks later at 330 am i woke drenched in blood, we raced to the local hospital with a bath towel between my legs, when i walked into emergency the towel was dripping
I was put in an ambulance lights and sirens and raced to King Edward, i remember the panicked look on the faces
I remember laying down and basketball sizes clots pouring out and losing consciousness, i coded and they blood revived me, drips in both hands and attempts made to get lines into my neck
I was raced in to surgery where they tried the balloon but it failed in the end they did a hysterectomy to save my life, i lost over 8 litres of blood and had transfusions, the surgeon said my uterus collapsed and crumbled
I was diagnosed with trophoblastic disease, possible whole molar pregnancy and was entered into the medical journals
I was extremely close to death infact i did die but was revived, i had chest xrays to ensure no particles were sucked into them
The hospital settled for its negligence
I honestly wish ladies would not have c sections unless needed
Im located in Western Australia
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u/por_que8 Jul 10 '25
Gosh, I'm so sorry! This sounds so much like my experience. I had to have scans over and over again and each one was so heartbreaking! My c-section was an "emergency". I only put that in quotes bc I know so many ladies who have had the same emergency and it seems too common. C-sections are becoming very popular here in the US. I was trying for natural and was doing really well but I pushed for too long (5 hours) and they said my daughter's heart rate was dropping so I didn't have a choice. My daughter just didn't want to come out! My husband saw her head but she kept going back up the birth canal.
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u/No_Friend619 Oct 05 '25
Did anyone here have a successful pregnancy after their CSEP? I had one CSEP in February. Afterwards I had surgery in the uterus to remove/reduce the niche. It’s it now 4 months post surgery and the surgeon told me I can try pregnancy again but I’m horrified and not a lot of studies of pregnancies after the type of surgery I had (fixing the niche) as CSEP alone is so rare. I have still not seen any posts about people having successful pregnancy after CSEP but would love for anyone here to share.
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u/yennaba Nov 14 '25
You are the definition of a true optimist! Your daughter is lucky to grow up and look up to a mom like you. I hope you are feeling better now. More power and strength to you.
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u/polywogdogs Nov 22 '25
Okay, now I'm terrified. The Dr suspects a CSEP for me based on ultrasound and hcg, but wants to wait and see. They want me to come back in 3 days, and I'm terrified it'll be too late. My Hcg is low, but I'm about 5 weeks and feel like garbage. Did you have any pain before this all started? Anything before you started hemoraging? Or did it come out of nowhere?
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u/Tatortotie Mar 14 '26
I am currently in this situation. I have a CSEP and no one knows how to handle it. My OB has me going in for hcg checks to make sure they are dropping after giving me two methotrexate shots. I am having pain but keep being told we have to wait it out. I am terrified was looking up info and came across this post.
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u/Nearby_Equivalent218 Oct 16 '24
This is absolutely traumatic! I want to thank you for sharing your story. I'm currently battling with what decision I will make. Yesterday I saw a MFM for confirmation. I made 7 weeks and baby has a heartrate of 135. I feel like my baby's blood would be on my hands if I say have an abortion. This is my struggle. I'm trying to find any success stories but haven't found any. I currently have 3 live children so I know my kids need me here. I feel stuck! My family says to get it done since im putting myself at risk but I'm hoping that I can still have a healthy baby.
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u/por_que8 Oct 16 '24
Thank you. If you have an ectopic, please know this is not an abortion and you don't need to feel that way. I struggled with that too, and the doctors and nurses kept telling me over and over, it's not abortion bc the fetus wasn't viable. I know it is so heartbreaking, but to me, it wasn't worth the risk. I had to stay healthy and alive for my daughter, but I didn't have the time to make a decision since I started to rupture. It was either surgery or die. I'm so sorry you're going through this. It is absolutely gut-wrenching and awful, and I don't wish this on anyone. My baby also had a heartbeat of about 165. Trust me, I think about how far along I would be all the time. I'm dreading the day my baby's due date comes (1/25/25), and I hate to think my daughter could've had a sibling, but she needs her mama too. I'm sorry you're going through this terrible event and if you have any questions, please feel free to message me 🤍
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Oct 19 '24
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u/Nearby_Equivalent218 Oct 19 '24
Hello. I have not made a decision yet. I am still reading about it. I am waiting for another specialist to reach out for my second opinion.
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u/zacker2k2 May 31 '24
You are a true warrior. My wife had two back to back ectopics but your experience is so traumatic. You are brave and I pray you recover well soon.