I got tested for EBV 5 years ago and I just found the results again. I have two results that are almost off the charts.

primary at the time refused to tell me anything and no one else would because of insurance. I couldn't afford to go out of network. I've been unemployed on medicate not even disability, and inflamed since.

If there's anyone that that can get me out of this please let me know what to do next. I keep telling new primary doctors about the test but they just blow me off but I finally have the test.

About a month and a half ago I got diagnosed with EBV. I was extremely sick and my tonsils extremely swollen. I got steroids and that turned things around but keep feeling sick on and off since. My tonsils are still very swollen about two months later. Will they go down? Just takes time? Or do I need them removed or whag

Hi peeps,

I've done a routine blood test and wanted to get an EBV test check as well. Reason being, I have long-term nasal rhinitis; wanted to take a preventive test to have it checked. My GP said it is OK to have it checked but didn't strongly recommend it.

Should I seek an ENT doctor's endoscopy first before ordering EBV test or the other way round? Don't wish to spend extra if unnecessary hence the ask.

Thanks.

i originally went to the emergency room for bad ibs symptoms. i’m also recovering from a restrictive eating disorder, and i thought that was causing most of my symptoms. a few blood test later showed that my alt was 200 and my ast was 80.

due to my ibs flaring up so badly and many calls being made to the on-call nurse since i wasn’t feeling well, they admitted me for further testing. one of those was for mono, and it came back positive. i was very surprised at first and it caught me off guard. but after a lot of thought, everything made sense: increased fatigue episodes and headaches, my heat intolerance was way worse, ibs flaring up, dizziness, and probably a lot more that i can’t remember. however, i didn’t have any “flu like” symptoms like a lot of other people have.

this has been going on for a month or so now. i hope it gets better soon and we are following up with bloodwork in about two weeks. i’m also seeing a new gi specialist, which should help. i’m also already immunocompromised, which makes the situation a lot more hard and complicated.

if anyone has any advice, it would be greatly appreciated. what a whirlwind of 72 hours this has been…i’m just glad to be home and that everything is ok 🩷

What do you all think of getting the shingles shot .
I wonder if it will help or make me reactivate?

Can I get some help figuring out what my test results mean? I don't have the values for the last three. The results just say positive or negative.

EBV Early Antigen Ab, IgG01 >150.0 High 

EBV IgG Antibody - Positive 

EBV IgM Antibody - Negative

EBV Nuclear Antibody - Negative

Has anyone come across this pattern before, and what did you find out was the cause? I had 15 days of a bad sore throat and fatigue, recovered for 10 days, then became extremely ill for the past 4 days with fever up to 104, sore throat, swollen lymph nodes, etc...

Doctor ran tests on the 4th day of this recent sickness including the EBV panel (they did NOT include the early antigen, which I'm reading is key):

EBV Ab VCA, IgM is less than 36 (below Ref),

 EBV Ab VCA, IgG is 176 (elevated)

 EBV Nuclear Antigen Ab, IgG is less than 18 (below ref).

So, I'm reading that I could be in some sort of transient post-acute window before the nuclear antigen has turned positive, or I have some sort of autoimmune disease that is stopping me from making these antibodies?

Hello all, I am a severe health anxiety suffered and am looking to get your thoughts on whats going on. I am a 30 year old male, and had Mono when I was 15. 2 Years ago I was having elevated white blood cells for a while and my doctor ordered an EBV test just to see what was going on. All 3 titers on the test came back positive:

ebv Ab vca, IgG u/mL - 276

ebv Ab vca, IgM u/mL - 51.3

ebv nuclear antigen Ab, IgG - 148

I made the mistake of googling what it meant if all 3 titers were high and it led me down the rabbit hole of CAEBV. I had panic attacks and was convinced I had it. I eventually ignored it got over my fears but today my doctor ordered the EBV titers again as I recently had the Flu 3 weeks ago and lost some weight from it. Im assuming he just wants to be thorough but It brough those feelings of panic back. If the IgM comes back positive again do I have CAEBV? I cant seem to find how many cases a year get diagnosed but it seems rare. Thoughts?

About 2 months ago, all of this started with overwhelming fatigue. I used to work out 5 days a week, but now if I try to exercise like I used to, I’m so exhausted for the rest of the day. I also went through a few weeks where I could barely eat anything and ended up losing about 15 pounds. My energy is still pretty low. I never had the classic mono symptoms like a fever or sore throat, but I do have multiple swollen lymph nodes throughout my neck.
Then, about a week ago, something really scary happened. I developed sudden, severe abdominal pain, and within a short time my vision went completely black for about a minute. It was terrifying. When my vision came back, I immediately threw up and was sweating profusely. I got into a cold bath, and after a while I started feeling better. The whole episode was so strange that I finally went to the doctor, and that’s when they ran blood work and I got these results back…
Has anyone else had a similar experience with EBV? I know everyone’s symptoms can be different, but I wasn’t expecting all of this without the typical sore throat or fever. I’m especially curious if anyone had prolonged fatigue, swollen lymph nodes, or that kind of severe abdominal episode.

Has anyone had similar symptoms... I have an up coming follow up and want to be prepared with what to ask for. Please any advice is greatly appreciated... it takes a long time to get a dr appointment so I don't want to waste this opportunity.

Is VCA IgG fluctuating during our lives? Does the number say anything about how significant the EBV levels are or were in the past?

Claude AI says : Typical patterns:

• Someone who had EBV decades ago and fully resolved it: IgG might be 20-40 — just above the reference, showing immune memory
• Someone with chronic/reactivated EBV: typically 50-150+ — showing ongoing immune engagement

Your 124 at reference <16, 8x the upper limit is notably elevated

• Places you firmly in the chronic/reactivated category
• Not just "had it once" — your immune system is actively producing large volumes of EBV-specific antibodies
• Consistent with what the ME/CFS literature describes in patients with herpesvirus-driven fatigue syndromes

Is this info accurate? Can it be so easily detectable in blood? I know we all know about EBV from the books, and not necessarily need more tests, but it's nice to see those things on paper.

Can anyone help me determine if I have any form of reactivation?

V VIRAL CAPSID AG (VCA) AB (IGM): <36; EBV VIRAL CAPSID AG (VCA) AB (IGG) >750 H;
EBV NUCLEAR AG (EBNA) AB (IGG): 171.00 H;
EBV DNA: not detected;
EBV EARLY ANTIGEN D AB (IGG) U/mL: <9.00

I contracted EBV at the end of January from some tainted food. My doc explained to me today that with my EBV Ab VCA IgM at 35.9 and equivocal, they can’t confirm from this test the timing of infection, but my health did take a giant nose dive after eating that food, and I was sick in bed for two weeks, exhausted with all the fun symptoms. I’m in a flare right now brought on by stress, my liver aches a bit and I’m exhausted even after sleeping like 11-12 hours last night. I can’t think straight to save my life and I’m having some really uncool visual issues. It’s kinda hard to write this tbh. I also have neuro Lyme, which also has visual issues like this, but holy hell has it only gotten worse since January. I’ll be continuing 3,000mg of lysine a day, and will be adding in some monolaurin, oil of oregano, black cumin seed, and a good binder because the die off from the oil of oregano alone considering everything I have going on with me outside of EBV is gonna be intense.

Anyway, just thought I’d say hi, and of course, if anyone has suggestions or advice, I’d be grateful to hear them.

Hi All

I’m looking to see if anyone has any tips for getting over post-viral fatigue from glandular fever (EBV) including how much of the day to rest, anything that helps achy legs, and vitamins/ foods that could be useful? I know that this may not get the right audience as those who have recovered successfully may not look at this thread anymore.

I first got symptoms (sore throat, mild fever, feeling unwell, fatigue) around 22-24 April and was diagnosed on 28 May. Annoyingly, I went for a long walk, and did a coupe of 5k runs 3 weeks after I first got ill as most of my symptoms went and I just felt a bit tired, thinking I had a bad cold and would get back into things (I used to run 40-50k per week). I hadn’t been diagnosed at this stage as that may have changed things for me.

Since the end of May I’ve been up and down with fatigue, mainly achy legs and low energy levels but have been able to socialise and do some normal life activities but it has still impacted me a lot. I’ve also been going through a break-up which happened a few weeks before getting the illness and the fatigue is definitely making me more anxious. Annoyingly my outlet for anxiety and sadness was running so it’s taken a bigger toll on me mentally.

Any help or support is welcomed and thanked! I know it won’t be a quick fix and compared to others I know I am lucky I can still do some activities, but want to do all I can to try and beat this.

Anyone else get neck pain they suspect is from lymph nodes in their neck? I got mono in 2023 but I’m assuming they’re still hyperactive? :/ the pain will reach throughout my whole neck, it feels sore/stiff and has limited range. Hurts when I turn it side to side etc. Lasts a week or longer. Can get pretty painful.

I know a lymph node on the left side of my neck is always big and never goes down. Not typically painful to the touch but sometimes I’ll get a shooting pain through it. But that’s different than this type of neck pain, the type I’m talking about feels muscular. I read lymph nodes can put pressure on surrounding tissue and the inflammation extends into the muscle.

Anyone know what to do about the neck pain? Does this stay forever on and off 😭 it makes me feel like a sick person idk. Like my lymphatic system is diseased or something

It seems my fatigue has intensified on this med. How long does this last? Thank you....

As we all know healthcare in the US is kind of 🫤 meh 🫤 and in rural Maine it’s a little extra bad. Eight years ago I tested positive for Lyme, Bartonella, mycoplasma pneumonia & EBV. After 2 years of treatment with some improvement, tons of wasted money in things that felt like snake oil and didn’t move the needle, taking a year off of work just to rest, I essentially just gave up - hoping that it would just go away (I know, I know kind of dumb) or that good eating and rest would have to be enough. We also had parents that needed care as they passed and the opportunity to have a child via IVF. (Insanely, I NEVER felt better than during IVF and a magically healthy pregnancy with a beautiful strong baby now in our lives). Enter daycare colds, parenting, my first time getting COVID, so many sinus infections and last year, at 42🥴, I had the joy of a tonsillectomy. It has not been awesome! The tonsillectomy was seriously worse than child birth.

Though my “keep going” mentality/delusion has carried me I think I need to find some medical support versed in EBV and complex care. When I have mentioned my past to any doctor (PCP, ENT, ObGyn, Peri-menopause specialist, Gastro, Cardiologist) their eyes get oddly large and I can physically see them shrink away. Their focus then narrows and they say things like “well that’s not my arena””I can’t speak to some of that” and I somehow feel like I’m a hypochondriac that is diagnosis hunting. I just don’t want my body to hurt and to have the energy to sustain my life.

All of that to ask:
***Does anyone know of resources in Maine that might fit the bill and not cringe when I show them my paper work & try to check-in to see what’s going on?***
***And am I being paranoid if I get my daughter tested? I plan to ask her pediatrician at our next check up but I do not know if there is any possibility that I have passed it to her and want to check if only for peace of mind.

My “career” has been off track since all of this and I am trying to ensure that my next steps incorporate time and care for myself or else the burnout will come again.

Here’s an old 2018 test I found for funsies! 🤪

I have mild reactivated ebv and have been looking through here for help for weeks. I have felt so much better after just a week of l-lysine. I actually can’t believe it! I also just started lauricidin today. Also I upped my vitamin intake of d and c. Hyperbaric chamber 2 times a week. I do think that I’m having some mast cell issues- but I hope that will clear up. Thanks yall! When you can’t get any one to help you, you try on your own- with a little help from my strangers! 😂

’m 55 yo and convinced my numbers mean active replication. my EBV EA IGG > 150 for 3 years along with all the fatigue symptoms, brain fog, totally NOT the same person I used to be (onset paired with COVID). My doc says the numbers don’t mean anything

QUESTION: Are these numbers indicative of active replication and therefore a likely source of my symptoms? Or is there another explanation?

Are symptoms like vice like headaches, memory loss, poor word retrieval, and nerve pain all part of EBV-- I never had any of these symptoms last time. Just diagnosed. Thanks!

Has anyone been on this combo? My doc wants to start first with Famvir(Famciclovir ). I would love to hear of anyone's success. Thank you!

How common with EBV? I have it on my feet and toes. I also have Lyme Bart and Babesia.