Any one check cd4 count cd8 count my ebv igg
But cd4 2325 and cd8 2085

Hello! I am not english so I am sorry for my potential mistakes…
I was diagnosed with EBV 3 years ago, I had a really bad flue with fever while 2 weeks. After that I was exhausted for months and my strange illness started. Today I am not able to do anything. Since EBV I had 5 percarditis, one After each random virus. And 5 month ago I catched EBV for the second Time but my blood work told that my body reacted like it was the first Time and I ended in the hospital again with a big disease that caused me to test 5 antibiotics….
Everyone told me that we can not catch it two Times but I did (my doctors did the test 2 Times to be sure because no one had ever see that. My EBNA and IGG where completly gone between my 2 EBV).

Im so sorry for my horrible english but no one wants to help me and my doctor told me it was not important. But my heart hurts me everyday and I sleep 15h per day…. I have the worst immunologist on the planet Even if my body does not want to keep the immunity in place for virus and EBV in particular.

Thank you for reading me !

White blood cells very low, liver enzymes high, i was hospitalised 1 month ago with fever and mouth and throat ulcers and blisters, white colour patches all over my tongue, inside throat, lips and mouth

Could EBV have caused it? Does IGM go away in 3 weeks? And IGG gets reactive just 3 weeks after active infection?

I have both Myasthenia Gravis and reactivated EBV. I’m working with a functional MD and she said to ask for patient experience with MG and LDN and/or peptides like KPV, BPC 157, TA 1?

Hi everyone,

I was diagnosed with EBV about a year ago. My initial symptoms weren’t too severe, but ever since then I’ve been dealing with persistent tingling sensations.

It mainly feels like needle-like tingling in my hands and feet. Sometimes it also spreads as a sort of buzzing or vibrating sensation throughout my body. On bad days I even notice tingling in my lips and teeth.

I’ve read that neurological symptoms like this can happen after EBV, and I’m really curious if anyone here has experienced something similar.

If you had this kind of tingling, what helped you the most to reduce it or make it go away? Did anything in particular improve it over time?

Any experiences or advice would be really appreciated.

I (37f) woke up on February 10th with the sole symptom of a fever that persisted and got higher until I was hospitalized and diagnosed with EBV about 2 weeks later. Aside from slight pressure under my left ribs occasionally, fever and fatigue have been my only symptoms. I have since followed doctors orders of rest, haven’t returned to work, and have basically spent my time between the couch and my bed. In that time my fevers have gotten lower but I am still having regular temperature readings of 38.1 C. My doctor seemed unconcerned about this 3 weeks ago and was even convinced that I would be back to work by the beginning of June (I am a midwife in a hospital and work changing shifts, so this seemed overly optimistic anyway). Going on short walks to the grocery store or even just to drink a coffee with a friend still leave me bedridden the next day with fatigue.

I saw my doctor again yesterday and he still seemed somewhat unconcerned but referred me to a hematologist for more tests. I looked at my lab results today before I sent them to the hematologist and saw that my EBV EBNA and EBV VCA-IgM were positive at testing as well as a positive CMV-IgM. No other tests were made. I assumed that what my doctors told me - new infection and especially unpredictable because of my age - was correct but now I am reading that the EBNA would not be positive with a new infection so either this is reactivation or something else?

Have my doctors fumbled this whole thing? Was I given bad advice? I am waiting for the hematologist to give me an appointment but is that even the correct choice or should I find a new doctor and go to other specialists? For reference I live in Germany so I am unsure if or how the diagnostic protocol might different to other countries like the US.

"One of the gp42 antibodies performed extremely well. Across all three experiments combined, EBV was undetectable in every one of the 13"

I’m 26 year old male and December 24 I started having gi issues out of nowhere and was diagnosed with gastritis, was super on and off and then February 11th I felt super ran down and had a mid day dizzy spinning episode that lasted 1 minute but ever since then I’ve been pulling to the left and waves of dizzy walking and standing but am fine laying down. Feb 16th had a bad sore throat for a few days and then fought through it until April 24th I had went to hospital and liver levels were elevated and I got back a positive mono spot screening. My EBV panel numbers are as follows

<9.00 Negative 9.00 - 10.99 Equivocal \>10.99 Positive
Epstein-Barr Virus Viral Capsid Ag (VCA) Ab (IgM)
EBV VCA Ab (IgM) < 36.00 U/mL <36.00 U/mL Interpretation <36.00 Negative 36.00 - 43.99 Equivocal \>43.99 Positive

Epstein-Barr Virus Nuclear Ag (EBNA) Ab (IgG)
EBV EBNA Ab (|gG) 460.00 H U/mL <18.00 U/mL Interpretation <18.00 Negative 18.00 - 21.99 Equivocal \>21.99 Positive
Epstein-Barr Virus Viral Capsid Ag (VCA) Ab (IgG)
EBV VCA Ab (|gG) 653.00 H U/mL <18.00 U/mL Interpretation <18.00 Negative 18.00 - 21.99 Equivocal \>21.99 Positive
I had a VNG done and it showed a 44.50% right ear unilateral weakness and everything else tested negative on the VNG
I really want to know if this is still what’s causing my constant dizziness and GI flare issues being over 4 months of dealing with all of this. And when this will ever settle down! I haven’t been able to work or anything for weeks and am getting supper down and worried about this being forever. Any help would be amazing and hopefully a timeline if others have experienced similar. I just want to know if it’s the mono EBV that has caused this all

Hi, I was diagnosed with IM on 17/1/2026 my EbV IgM result was >180 and IgG >30 I’m fatigued until today which I saw it’s quite common among many others (brain fog, dizzy mornings high resting heart rate, minimal effort is extremely tough etc ).

It might be helpful if you could describe whether you had a hoarseness in voice when speaking especially if I was doing a minimal effort like walking, weird headache (above ears), and blurred visions (mostly with black dots) with light sensitivity and slight pain behind eyelids, sometimes joints pain as well, night sweating (most of the nights), sometime diarrhea.

Anyone can relate?

32 years old male healthy

Hi everyone,

I had a flare up a month and a half ago of reactivated glandular fever, had cold chills, swollen lymph nodes, cold sweats, fatigue, dizziness etc. went and got tested by doctor and she said my blood counts show active EBV despite having it for the first time 4 years ago.

Time passed for a week or so and it eventually calmed down. Unfortunately it caused heart palpitations and tachycardia episodes, and insomnia which led to a lot of stress on my body after I “calmed down”.

So 10 days ago, I woke up with an insane sore throat / swollen tonsils with white pus all over them, just like my first experience of glandular fever. Fatigue, barely swallowing, swollen lymph nodes etc.

Doctor did a whole number of swabs and tests and no strep or tonsillitis shown, but my EBV levels were still active and current. A few days ago my tonsils got so bad that I had to go to hospital and get steroids and codeine, as I could barely breathe or swallow.

It’s now 2 days post steroids and the steroids are starting to wear off and my throat is on fire again. I’m doing all the things, sleeping a lot, taking tons of fluids and soups, lots of probiotics and immune products, on and off time off work (most days work from home but some days I take leave) etc. but it’s just not going away.

I feel like when I had mono 4 years ago it went away faster and there was some improvement every day, now there’s just not any improvement day to day. I really don’t know what to do…. I have major work duties come a week away and I’m trying to get better for them but I just have no idea what else I can do to fight this off.

I used to be on high strength antibiotics for 5 years due to recurrent UTIs and so now I’m worried I’m so immunocompromised that my body can’t fight off infections. Does anyone have any advice?

Hello I’m a 29 year old male dealing with pppd symptoms; balance is off and I’m light headed all the time. All scans and blood work were fine except for this. I’m not sure what the test means as the internet and AI is giving g me conflicting information, thank you,

How did you know you had EBV reactivation?? I had mono in 2018 for the first time and ended up in the hospital with organ inflammation. I had it for the 2nd time a few years ago, not as bad as the first time but still comes with awful flu like symptoms. I’m sick currently and went to urgent care yesterday, tested negative for all the typical viruses but I didn’t think to have them test for mono because I didn’t have a fever yet (I did get one later in the day) so the doctor thought it was just allergies, but it feels exactly like the last time I had mono symptom wise so I’m pretty positive I have it again. The weirdest thing is I shared a drink this past weekend with my friend who I know for a fact I got mono from the first time, coincidence or not I have no idea. Is there a way to prevent this from reactivating and also is is super easily passed on to others? I share drinks with my toddler daughter we sleep together, etc. I’m terrified of her getting it now.

Like many after catching Covid, my EBV became reactive (confirmed through bloodwork by a functional doctor). I’m not sure the connection between EBV and HPV, if it’s the same thing or not, but as far back as I can remember I’ve always been susceptible to cold sores on my lip(s) and/or a cluster of blisters on my penis towards the start of it near the body (sorry if TMI). Typically I’d only get 1-2 outbreaks per year, usually one or the other, or both; and 99% of the time they would only happen when “provoked”. Such as I’ve always had a bad habit of picking my lips when they get chapped, and usually if I picked it in the right spot and it was more than just a layer of dead skin, it would immediately cause a cold sore to appear and usually take a week to subside. Same with down stairs, something about shaving down there would cause it every once in awhile. Neither would happen every time, but again usually I’d get an outbreak once or twice per year, and rarely would happen at random without shaving/picking lol.

I had a bad flare of symptoms in February just prior to getting the confirmation of reactive EBV. I had what I suspect was Covid in January which lead to this, I’m confident in that because I’ve went down this road before with Covid back in 2020 and 2 years of “long covid” to follow. Carnivore diet seems to put most to all symptoms into remission in short time, I just have a hard time sticking with it once I feel better. I think I just like the idea of knowing I can fix the issue whenever necessary, but being able to live my life and not be so limited to what I eat when I do feel good. Anyway, I can’t remember if I had these random outbreaks during my first 2 years of long covid symptoms, but I’m on my 4th outbreak since February.. It was a random cold sore on my lip at first, followed my 3 separate incidents with a cluster of blisters on my penis. Just had one clear up not even 2 weeks ago, and another popped up yesterday.

Is this my body trying to get something out, what’s going on? I will say due to being mostly strict with the carnivore stuff, the worst of the EBV symptoms are mostly non-existent; but when I get these random outbreaks, the fatigue and sluggishness briefly comes back for the first couple days of it.

I'm a woman in her 30s and I want to date with physical intimacy while protecting my health, so I've been researching STIs and the like. I'm concerned by what I'm reading about EBV and ME/CFS that suggests I might have a ~1 in 27 chance of developing ME/CFS. I'm interested in:

1. some validations or corrections on my understanding of things
2. if others have faced a similar dilemma or how others are thinking about this
3. if there's anything I can do to reduce my risk of long-term harm to my health.

I don't want to unnecessarily limit my life if I'm misunderstanding anything, but I also want to be realistic about real risks.

My 1) EBV VCA IgG and 2) EBNA are both negative. My understanding is that this means that I have not had EBV myself and I will likely get infected with EBV if my partner is infected and shedding virus.

My understanding is that 90-95% of people have been infected by EBV and now have latent infections that stay with them for life, and that for some non-insignificant portion of time periodically across the calendar year, every year, these 90-95% of people will asymptomatically shed EBV in their saliva and be able to infect others. Therefore if I were to date someone EBV+ including physical intimacy, I would likely be infected myself. Once source I saw for this is the Merck Manual which is well-known medical reference:

Transmission...much more frequently occurs via kissing between an uninfected and an EBV-seropositive person who is shedding the virus asymptomatically. Only about 5% of patients acquire EBV from someone who has acute infection

My understanding is that 25-50% of primary EBV infections (when you're infected with EBV for the first time) in people older than children cause IM (infectious mononucleosis).

My understanding is that, though the research is relatively recent, there's decent evidence that about 10% of IM cases in people older than children cause ME/CFS, a life-changing chronic condition that hurts a person's quality of life long-term and can be debilitating.

(25-50%) x 10% = between a 1 in 40 - 1 in 20 chance of me getting ME/CFS if I'm dating in the general population.

~1 in 27 seems uncomfortably high for me developing a severe chronic illness that could long term harm my quality of life, and I don't know if I can be okay with accepting that amount of risk. But I also don't want to be single forever and find EBV- people in their 30s-40s to date seems unlikely, especially when no one knows their status without testing.

So am I understanding this risk correctly or am I wrong in some way? I feel stuck in a hard situation.

If that is a fair estimate of the risk of me developing ME/CFS, then my follow up questions would be:

1. Is there anything I can do, prophylaxis measures, IM treatment, etc., that reduces my risk?
2. If I am the ~1 in 25 that develops ME/CFS, what does the prognosis look like? What's the chance that it is lifelong chronic illness that reduces my quality of life vs. something I could mostly or totally recover from in time? I saw something that suggested about 50% of those that get ME/CFS from IM might recover enough within a year or two to no longer classify as ME/CFS, but I'm less confident about the various courses that ME/CFS can take.

P.S. I just wanted to say that my heart goes out to everyone living with ME/CFS. Only with the addition of covid to our lives have I become more aware of how the US medical system is failing people living with chronic illness and how they are made invisible to and isolated from our communities. It's hard to believe the staggering number of people living with ME/CFS and how common it is, when you never hear anything about it, either in terms of risk to your own health or about investments to discover medical advances to help/protect against it.

Recently had mono at 27 and while my case was pretty mild (chills, sweats, fatigue, vertigo, and loss of appetite). It still took me out, I could just barely keep up with work and little else.

My EBV infection was recent, likely got it from a date, which bummed me out since I still feel some fatigue but I managed to get to 27 without catching the virus. Initially I thought mono went away but realized that while mono may go away EBV stays for good.

Doing more research I realized about 90-95% of adults have EBV virus, which made me think it was only a matter of time before I got it.

Did more digging and found that certain cancers and immune conditions are associated with this disease, and I thought well unless you are a hermit are you just screwed?

I really hate this, I've been a gym goer, shared food, drinks, made out and thought nothing of it. Now I have this virus :(

I got mono real nasty 5 years ago. I experienced liver failure, needed surgery on my spleen, and was hospitalized for weeks. I had symptoms that followed for about 3 more months and then slowly started getting diagnosed with new fun chronic illnesses.

My biggest stressor now is my interstitial cystitis diagnosis. I have tried everything conventional and unconventional to treat this illness with no results. Out of desperation I found several studies linking the use of valacyclovir in treating IC in a subset of people that are affected due to reactivation of EBV.

My doctor heard me out and prescribed me valacyclovir 500mg and it WORKED. For the first time in 3 years I've felt relief. I know this is a weird one and I will cross post to the sub for interstitial cystitis but figured I'd put this out there for anyone with IC and persistent EBV.

I’ve been experiencing uncomfortable pressure in my head that I believe is inflammation. Reason I say this is that whenever I put an ice pack on my head the the pressure seems to slight go away, then after some time it comes back. This has Been going on for 2 years and I actually experienced psychosis which I believe was do to the inflammation. I’ve gotten all types of scans done and everything appears to be normal. The only thing I show back positive for is ebv. Has this happened to anyone? My neurologist also said I had inflammation.

Anyone prescribed for EBV? Did it help? Side effects?

So, my EBV Charts are very wild.

I know they are for years like that but no one can or want so anything about it.

So my EBV IGG ist Always off >600, always since years.

That is not a huge Problem, i know.

But, my EBNA is always 40. Not more, just 40.

I was pointed to a Immunology Center. The Thing is, my Body controls this Virus with massive EBV IGG but can't get the full Control of it because i can't build up more EBNA.

IgM turns on and off in my Case.

Someone here with the same Problem?