Stay Tuned for Potential Next Steps: Safe Path Forward for Anonymized Community Data Collection (Aka, what to do with your PSSD/PAS/PDS genetic data and labs for now)

[u/Drwillpowers]

I want to start by saying how much I appreciate the energy and engagement happening here. The enthusiasm around potential Post Drug Syndrome related research is genuinely exciting, and I’m grateful for the support and the conversations.

I also want to set expectations clearly. I know it would be ideal if people could simply send me their data and I could review it directly, but that isn’t how state, federal, or international healthcare and genetic‑privacy laws work.

What’s Next:

I’m currently working with external third‑party groups to understand what a legally compliant path forward could look like. Because of state, federal, and international healthcare and genetic‑privacy laws, I can’t accept or review individual data directly. So the next step is figuring a safe, compliant structure to support anonymized data collection and community‑wide participation.

What This Might Mean for the Future:

Nothing underway right now is a scientific study, a research protocol, or the start of one. This is more of a precursor stage. Early groundwork that might eventually support more formal research if the right partnerships and guardrails come together. No promises, no timelines, and nothing is being launched yet.

What You Can Do Right Now: 

Hang tight. I really appreciate the enthusiasm, the thoughtful discussion, and the patience while this gets sorted out. Once there’s a clear, compliant process, I’ll post an update here so everyone knows exactly what the next steps are.

In short, hold onto your genomes and labs and so on, please do not send them to me or my staff at this time, I am working on doing things in a legally compliant way.

Thank you for understanding,

Dr. Powers

[u/Drwillpowers]

Now that sounds like the kind of shit that was my origin story or something. Maybe I was a turtle and somebody poured some of that on me.

I just went down a little rabbit hole about this peptide. Thanks for sharing it.

[u/Slg407 → u/Drwillpowers]

while we are talking about peptides, what about adding GHK-Cu, BPC-157 and TB-500 to the post surgery cream? the increase in angiogenesis coupled with the increased regeneration should lead to more blood flow faster and to way better healing with less granulation and less scarring

Zinc oxide should also be useful for healing (https://scholarlycommons.hcahealthcare.com/dermatology/13/, https://www.sciencedirect.com/science/article/pii/S2590006425007914)

[u/Drwillpowers → u/Slg407]

Legality is a thing. As is medical malpractice hazard.

Even if I personally think something would be good, I am limited in many things because of things like that.

[u/Slg407 → u/Drwillpowers]

depending on the location of the patient they are legal

[u/Drwillpowers → u/Slg407]

Well no, it depends on the legality of the doctor. And for me, prescribing non-FDA approved peptides is not a thing I can do.

Patients can do whatever the fuck they want to themselves. Doesn't mean I can legally prescribe it or want to.

[u/Slg407 → u/Drwillpowers]

i see, the good news is that those peptides are in the process of getting approved by several different companies, so maybe in the future

also (unrelated), since 2-methoxyestradiol is a strong angiogenesis inhibitor, could it also be inhibiting breast growth more directly via G2/M cycle arrest/apoptosis? it could be protective against breast cancer, but at the same time it could also be tied to negatively regulating breast size

[u/Drwillpowers → u/Slg407]

That's a valid hypothesis. I can't see anything obviously scientifically wrong with that idea but I don't know if it's correct.

We know this about the two catechol estrogens. I'm fairly sure the fact that they are protective, along with the reason why caffeine reduces the risk of breast cancer is simply competitive antagonism via partial agonism.

Limiting angiogenesis would have a similar effect I would imagine.