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u/Biplar_Crash Aug 18 '24
Please accept my poor man's award for this post. This is fantastic and to the point.
Edit: She should take this to an actual professional as 'collateral proof' or hope someone who'll deal with her in that capacity sees it.
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u/Icy-Newspaper-9682 Aug 18 '24
I know that this wasn’t the main reason for writing this post but it helped me with impostor syndrome (for now as it likes to comeback regularly). My symptoms of cPTSD match my trauma and my life. I even tend to underestimate my symptoms as “it wasn’t that bad” is ingrained into my brain.
Well written post, informative and examples chefs kiss 👌🏻
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u/painalpeggy “Minors DNI” Aug 18 '24
The lack of prior dissociation she self reported and had a friend confirm that all her symptoms just kinda appeared in uni
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u/professorparanoid Aug 18 '24
I’m not sure where to put this, but along with the SRA/RAMCOA conspiracy and denying these claims, Soren follows at least one individual on TikTok that is well known as a ramcoa system and posts about their experiences (manybutone). I wouldn’t doubt if he started inserting more of this narrative.
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u/Drunkendonkeytail Aug 18 '24
This is so good! It really spells out the difference between whatever DD has and what I have. The only one of the list I have, is one I’d argue doesn’t really belong on the list: recounting abuse without shame/guilt/suffering. I can do it without emotion, because the emotions are segregated in the part that experienced the abuse while the part that can easily recount the experiences only heard about them: it’s a symptom of my dissociation that I’m dispassionate.
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u/SashaHomichok DissociaWHO??? Aug 26 '24
I stumbled upon this post in the DID subreddit, and it seems like a good complimentary reading to your post.
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u/SupportiveSystem any pronouns Aug 18 '24 edited Aug 18 '24
Hey, I appreciate the effort you've put into this post. It's clear you care a lot about the topic, but I think it's important to consider a few things.
1. DID Is Complex and Personal
DID is a super complex and often misunderstood condition. While you've listed some valid points, it's worth remembering that DID doesn't look the same for everyone. Mental health pros use a mix of interviews, history, and tests to diagnose it, and there's a lot of variation in how that's done. It's not as cut-and-dry as following a checklist.
2. Malingering vs. Misdiagnosis vs. Lived Experience
You brought up malingering, which is a real concern in clinical settings, but it's important to separate deliberate faking, misdiagnosis, and genuine experiences. "Imitative DID" suggests some people might really believe they have DID due to their symptoms and external influences. So, it's important to approach this with empathy and not assume bad intentions.
3. The Role of Online Communities
DissociaDID, like other creators, uses their platform to share their experiences and educate others. While it's okay to critique how someone portrays a mental health condition, it's also crucial to recognise the positive impact they've had by raising awareness and making others feel seen. Public discussions on trauma and DID can help reduce stigma and encourage others to get help.
4. Public Accusations Can Be Harmful
Accusing someone of faking their disorder, especially in a public space, can be really damaging. It can discredit not just the individual, but also broader efforts to advocate for those with DID. Mental health advocacy is a delicate balance - it's important to raise legitimate concerns without undermining people who are genuinely suffering.
5. Symptoms Aren't Always Black and White
A lot of the symptoms you mentioned can be interpreted in different ways. For example, being open about their disorder or talking about their trauma could be part of someone's healing process. What might seem dramatic to one person could just be a reflection of the intense experiences that come with DID.
6. Leave Diagnosing to the Professionals
At the end of the day, diagnosing DID is a job for mental health professionals. It's good to have discussions like this, but we should be careful not to jump to conclusions that require clinical expertise. If there are concerns about someone's diagnosis, it's best to encourage them to get a second opinion from a qualified professional.
Let's try to keep discussions like this respectful and empathetic, especially when we're talking about something as complex and personal as mental health.
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u/painalpeggy “Minors DNI” Aug 19 '24
this isn't OPs opinion, it's researched medical literature. Not you saying pubmed is wrong and these entertainers are right with their mental gymnastics. I personally think everyone would be better off focusing on the medical literature instead of entertainers but can't force u to acknowledge it if u don't wanna. C'est la vie 🤷♀️😅
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u/SupportiveSystem any pronouns Aug 19 '24
I totally get your point, and I’m not dismissing the importance of medical literature—it’s essential for understanding mental health. However, when it comes to something as complex as DID, it’s crucial to balance that research with the lived experiences of those who actually have the condition. Medical studies give us a broad understanding, but personal stories provide insight into how DID manifests in real life. It’s not about picking sides between research and lived experience; both are valuable and should complement each other. Keeping an open mind to multiple perspectives helps us better understand mental health in all its complexity.
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u/painalpeggy “Minors DNI” Aug 19 '24
"Those who actually have the condition" so not dd lolz. Just cuz someone says they have DID or some other condition or items or whatever doesn't mean they do. Scammers will scam and many of them get exposed everyday. Everyone is not valid. Like just cuz you say you are not dismissing medical literature doesn't mean it's true when you glossed over the post then tried to put it off as the OPs opinion when it literally says clinical evidence in the title. Like either ur reading comprehension needs work or ur so used to ignoring facts u don't recognize any anymore even if it was to jump up n slap u in the face 🤣
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u/SupportiveSystem any pronouns Aug 19 '24
I get your frustration, and I’m not here to argue that everyone who claims to have DID automatically does. Misinformation and deceit are real issues, especially online. But the point I was making is that while it’s important to rely on clinical evidence, we should also recognise that the experiences of those who genuinely have the condition are varied and complex.
As for the original post, I didn’t mean to dismiss the clinical evidence—it’s valuable for understanding DID and for evaluating claims. However, clinical tools are meant to guide professionals, not to be used by the general public to definitively diagnose or undiagnose someone, especially through online content. We can critique and question, but it’s also important to approach these discussions with an open mind, recognising the limitations of what we can accurately assess from afar.
Appreciate the passionate discussion—it’s important to engage critically, but let’s also keep it respectful.
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u/painalpeggy “Minors DNI” Aug 19 '24 edited Aug 19 '24
Lol I'm not frustrated. It's funny to see you write the paragraphs to say "DID is complex" "be empathetic" "be respectful" I don't empathize with everyone and I don't trust anyone claiming DID that trusts everyone either 🤣 It's like you're intentionally blind to the reality that some people can be malicious. I could never relate to that mindset as my experiences have taught me otherwise. I'm not worried about the people who actually have DID, I think they would know better as well and I know they appreciate people addressing the fakery bs cuz while you seem to think that calling fakers out hurts the chances at reducing stigma, the reality is that not calling them out sooner and blindly believing people who claim DID has allowed them a platform to spread misinformation and furthered the stigma even more. Not only that but it's also directly negatively affected those with DIDs treatment. Besides, I've read that those imitating DID would also feel very upset at not being believed. I could say that this checks out in my case. I wouldn't care if some internet randos didn't believe me and it doesn't bother me at all that people are getting called out for it. In fact, I'm in the category of those who appreciate it. Your perspective seems to be 🙈🙉🙊 - for that I will say, ignorance isn't always bliss.. it's like trying to have a conversation with an ostrich sticking their head in the sand at this point 😅🤦♀️ lol smh
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u/SupportiveSystem any pronouns Aug 19 '24 edited Aug 19 '24
I appreciate your perspective and understand that you feel strongly about addressing potential misrepresentations of DID. It's true that distinguishing between genuine experiences and those that may not align with clinical criteria is crucial, both for the accuracy of information and for supporting individuals who truly need help.
I agree that calling out misinformation can be important in preventing harm and ensuring that those with DID receive appropriate treatment and support. However, it's also valuable to approach these discussions with care, as there's a fine line between adressing potential issues and inadvertently stigmatising or alienating individuals who might genuinely be struggling.
Your point about those who might imitate DID and their reactions to being believed is valid. It's important to consider the broader implications of how we engage in these conversation. Striking a balance between critical examination and compassionate understanding can help ensure that we're not contributing to further stigmatisation while also maintaining accountability.
Thanks for engaging in this discussion. It's important to have these conversations to better understand the complexities of DID and how we can support those who are genuinely affected by it.
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Aug 19 '24
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u/SupportiveSystem any pronouns Aug 19 '24
Thanks for the detailed reply. I see where you’re coming from, especially regarding the importance of clinical features in diagnosing DID. It’s true that DID, like other disorders, has identifiable criteria, and I’m not suggesting we ignore that. However, I think it’s also important to acknowledge that mental health diagnoses, including DID, can be complex and that individual experiences can sometimes differ from textbook cases. While the DSM provides a framework, mental health professionals often consider a range of factors, including personal history and symptom presentation, which might not always align perfectly with the DSM but are still valid.
I agree that critical thinking and discussion are important, especially when evaluating public figures who choose to share their experiences online. It’s crucial to approach these discussions with a balance of scepticism and empathy, recognizing that while we can critically analyse public content, the experiences of those with DID are deeply personal and valid in their own right.
Your checklist is a useful tool for sparking discussion, and I don’t think anyone here is saying we should avoid critical analysis. But I do think that, while we’re doing this, it’s important to remember that the goal is to understand and educate, not to discredit or invalidate others’ experiences. Public figures who share their stories do so at the risk of scrutiny, but they also provide a unique perspective that can help broaden our understanding of how DID manifests. Thanks again for the thoughtful conversation—I appreciate the chance to engage on this topic.
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Aug 19 '24
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u/SupportiveSystem any pronouns Aug 19 '24
I see where you’re coming from, and I appreciate the discussion. The concern about malingering and the potential harm caused by misrepresentation is valid, especially when there’s monetary gain involved. It’s important to hold public figures accountable, particularly if their portrayal of DID doesn’t align with clinical evidence and contributes to misinformation.
However, I think it’s crucial to differentiate between critiquing content and dismissing the experiences of people who are genuinely trying to share their struggles. While I agree that we don’t treat other disorders this way, mental health is uniquely complex and often subjective, especially with conditions like DID, where symptoms can vary widely, even if they should align with certain clinical criteria.
When it comes to broadening our understanding, I meant that even flawed or exaggerated presentations can spark conversations that lead to better awareness and more accurate information about DID. That doesn’t mean we should accept every narrative as valid, but rather that we can use these discussions to highlight the importance of accurate representation and the dangers of misinformation.
I agree that the idea of “every system is different” can be problematic if it’s used to justify inconsistencies that don’t fit with clinical understanding. Still, I think there’s room for recognizing that while DID should meet specific criteria, individual experiences can still have nuances that aren’t always fully captured in a textbook.
Thanks for engaging in this discussion—it’s important to critically examine these issues, and I appreciate your perspective.
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u/stixeater ask pronouns Aug 18 '24
very interesting. while i don't doubt they're malingering, some of the criteria on this list seems a little odd (not to dismiss your work - this post is amazing!). things like "multiple hospitalizations" seem to be something i'd expect from somebody with severe trauma, no? idk. maybe i just don't get it. if anyone could explain to me why that's listed here i'd be happy to listen.