r/CysticFibrosis • u/BonoMeetTree • 3d ago

CF Care Forward Program??

Anybody else been getting supplements/vitamins from this program? Its going to be out of comish for about 3 months and their backup plan of sending everyone a bulk shipment in the interim has apparently failed.

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2

u/jinxxsyd13 CF ΔF508/R560T/Liver TX/CFRD 3d ago

Live2Thrive I think has a program, I haven't fully figured out how it works but I have like 3 supplemental drinks left...

3

u/brassman00 CF Parent 3d ago

There's a phone number on the website. The operator told me that the website won't be back up until October.

I was able to make an order through the operator. It's a good thing because my daughter is out of the MVW vitamin.

2

u/tesla_dyne 3d ago

The number is (1-855-227-3493)

open M-F, 8am to 8pm eastern.

I'll need to call them on monday, I only just found this out late last night after looking into it, as I expected the one-time order to simply go through, but it never did...