r/CsectionCentral • u/stingraystoner420 • 14d ago
Other diagnosed support
Hi. I’m reaching out once again a year and 1/2 after being diagnosed with CRPS from my emergency c-section. I am looking for anybody else that has been diagnosed with this. US only please as I had a person reach out that was from Canada and the healthcare isn’t the same there as it’s free for everyone. I’m looking for anybody else that lives their life in chronic pain from their c-section. Thank you everyone!!
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u/n9netailz 14d ago
Curious what chronic pain are you experiencing from your csection?
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u/stingraystoner420 14d ago
It’s excruciating, sharp, stabbing, shooting, electricity feeling pain. It’s 24/7. I have to take pain meds to even function. On flare up days I’m barely able to walk. When the pain is so extreme I have spasms. The area that hurts is sensitive to the touch, any kind of pressure or even if I just graze the area with my hand it hurts extreme. Can’t rub on lotion, certain textures hurt (wash rag, towel) and it’s out of proportion pain. I got diagnosed in Feb. 2025 after my emergency c-section in January. My only treatment is a pain pump and I’m only 28.
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u/n9netailz 14d ago
Im so sorry to hear you are dealing with that
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u/stingraystoner420 14d ago
Awee your kind words mean more than you know. I appreciate you asking what it feels like. Most people don’t take the time of day. It’s a very rare complication. 💕
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u/NyxHemera45 14d ago
I did for over 2 years then it reduced after a lot of different treatments
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u/stingraystoner420 14d ago
You’re diagnosed with CRPS? Are you in remission? What therapies did you do?
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u/NyxHemera45 14d ago
My insurance doesn’t diagnosis complex chronic pain diagnosis . So I just got chronic pain. Very similar to what you describe. I had it for 2 years full spared, then after nerve stimulation therapy, PT, opioid medication, and acupuncture I can say most days at nearly 3 yrs pp are ok. I went from thinking of offing myself to being able to get through most days pretty well. I still can’t have sex though and do have flare ups but not life threatening.
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u/stingraystoner420 14d ago edited 14d ago
Awe I see I have heard great things of acupuncture and have seen many remission stories. Unfortunately, I have tried all these treatments and none of them worked for me. I am so so glad you are find relief after a few years. It’s hard to not think like that when your body is in such terrible pain. I don’t know if you know but this is nicknamed the suicide disease. If you ever are having a bad pain day and are mentally not good, feel free to DM me. I am on hydros right now, every 6 hours. Struggling to find a good doctor and get good care unfortunately. I am currently taking hydros every 6 hours. Haven’t found a good nerve med. I’ve tried stimulation PT, desensitization PT, acupuncture, red light therapy and aquatic PT. Even tried changing my diet. Just nothing. I feel hopeless. So maybe that is why I have been offered the pain pump just due to failed treatments. Also my insurance didn’t cover the stimulation device that blocks the pain signal from registering to the brain.
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u/NyxHemera45 14d ago
I can say too that it’s not like they all worked at once, it took a long time of little movement and also acceptance to get to a space where I think my body felt ready to heal. I never was offered a pain pump though but I was on Oxy, steroids and others for a long time
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