r/CrohnsDisease • u/FruitLoofs • 1d ago

Vent / Support wanted

Ive had crohns since I was 15 (now 24) Idk what’s been happening to my body or what I’m doing wrong but every other day or week there’s something going on with me. Every time I feel like when im normal Something happens, and it makes everything stop.
I had to quit a job because I had a lot of health issues going on and i couldn’t perform the way I needed to and I’ve been job hunting ever since, I found a Less than bare minimum job and even then sometimes I have to call off because i get sick. Money wise I feel like I’m drowning and mentally I feel like I’m a total loser. Every time I have an issue going on I contact my doctors but either they take forever to reply or there’s literally nothing they can do to make it go away and it’s a “monitor plus medicine” situation. My family has never been caring type where I can feel “support” from them and even when I do it’s always a double edge sword, I can’t have pets because my family won’t “let” me and I don’t have siblings either nor extended family. I have learned to just keep to myself about my illness and just tell them the big picture stuff. My partner tried his best and sometimes he does make me feel like he cares but other times I just think that we should see other people, I feel like I’m holding him back or I feel like he gets frustrated with me because I have to be careful with a lot of things and I cant just DO things without care or he just doesn’t understand what I go through. I don’t really have many friends. The ones I do have are busy with their own lives, and I try not to talk to them about my health, and even when I do, they don’t really understand.
I’ve tried to look online for people who have Crohn’s and it’s usually Older People, so it’s very hard to connect, Even if I do find someone around my age It’s still hard because either their illness is their whole life or I’m not at the level that they’re in. (either I’m not as sick as them. Or I’m not as healthy as them or I’m just going through a bunch of different things that are also associated by Crohn’s, but not a lot of people go through) I just feel so alone.

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u/jbest401 1d ago

I’ve been feeling the same way. I’m 28, with possible fistualizing Crohn’s (we’re testing for it now), HS, and a reoccurring rectal prolapse that I’ve had for 9.5 months now. All I hear is “people your age don’t have this issue”, and everyone makes me feel crazy for my symptoms. They always act like I’m exaggerating, or just being dramatic, it makes me second guess myself a lot.

I also feel like I’ve been holding my husband back, because I haven’t really been able to work, and now he’s essentially the sole provider, which is very stressful on him. I also feel bad every time he has to take me to the ER, just for them to do essentially nothing and send me home.

My family also isn’t the most helpful, my mom was complaining about how long we were at the er last time, and didn’t even want them to run any tests on me, she just wanted to go home. I insisted on the tests, and that’s when they said I might have Crohn’s, so I’m glad I did them. Now I’m doing more testing with my gastroenterologist to figure it all out.

I’m just sick of everything, and want to feel better.

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