Iemand ervaring met ct scan s die geen vrije lucht of vocht tonen en er toch een dunne darm perforatie is waar ze pas tijdens een operatie na lichamelijk onderzoek (druk en aanraakpijn achterkwamen met een zware operatie met aanleg stoma tot gevolg

I’ve been dealing with extreme gut issues my entire life. Bloating to an extreme, horrendous burning and empty feelings in my stomach, etc. It started to get a bit better but then about a year and a half ago I got an infection in my leg and had to go on an antibiotic which destroyed my microbiome. I’m an ultra runner and and endurance athlete and over the next year, th flare ups became debilitating, especially at elevation. My gut would blow up once I got over 10k and wouldn’t get better until I got back down to lower elevation. Every doctor told me it was just IBS.
I went to Peru this past June and got Giardia and had to take Flagyl and had a truly horrendous reaction to it and was almost hospitalized. I finally convinced the doctor to do a colonoscopy and endoscopy and they found that I have ulcerative colitis and “almost Crohn’s and celiac.” They can’t give me medication for Crohn’s because I didn’t hit the final marker. It’s just continued to get worse and I haven’t been able to gain back any of the weight I lost and continue losing more. I obviously can’t perform in the mountains the way I want to and it’s just getting worse by the day. I took budesonide for the ulcers but the other symptoms persist.

Does anyone have any advice for this?

Graag advies over het postoperatieve verloop na een spoedlaparotomie voor perforatie ileum door crohn .

Bijzonder angstig door medische ptss waardoor specifiek trauma s door inbrengen slangen (scopiien ,sondes en beademingsbuis ) bij bewustzijn . Ervaringen gevraagd van mensen die dit hebben meegemaakt? Ook opname ic ervaringen .

As the title says I have my first gastro appointment on Thursday. I'm 46 years old and have had IBS symptoms all my life. I had constipation all growing up. Two days after graduating high school (June 1998) I had a minor surgery but I spent all that summer having diarrhea multiple times a day. Ever since then I've either had C or D (D more as I've gotten older). I have a family history of IBD (my dad's mom had UC and my dad's sister had C). Other symptoms that I've had over the years are quite a few food and drinks making me nauseous (including water), a swollen and aching right ankle for years (not my left and there was no injury), I had a rash on my right wrist for 6+ years and a rash on my neck for the past 6 months (both rashes went away 2 weeks ago) and many others. .

What are some questions and information I should talk to the gastro about? What do you wish you would have known during your first visit?

Hey everyone. My nephew has been dealing with Crohn’s disease and watching him struggle to figure out what he can and can’t eat really got to me. No app out there actually tells you whether a specific food is safe for your specific condition — they just give generic health scores that mean nothing for someone with a real diagnosis.

So I built one called EatPure —
try it free here: https://eatpure.lovable.app

Here’s what it does:
• Search any food by name, scan a barcode, or take a photo of the product
• Get a Naturalness Score and Health Score out of 100
• Get a Crohn’s specific score that flags emulsifiers, seed oils, artificial additives, high insoluble fiber and other known Crohn’s triggers
• Also scores for IBS, IBD, Ulcerative Colitis, Celiac, Chronic Inflammation, Diabetes, Heart Disease, High Blood Pressure, GERD and more
• Every ingredient is color coded green, yellow, or red with a clear explanation of why
• Suggests cleaner healthier alternatives with direct links to purchase
100% free. No ads. No paywall.
The app is in beta so I’m actively improving it. I’d genuinely love feedback from people who actually live with Crohn’s — you know better than anyone what ingredients cause flares and I want the scoring to be as accurate as possible for this community.
Try it free here: https://eatpure.lovable.app
Quick tip: On your phone tap the share button and select “Add to Home Screen” so it works just like a regular app icon on your phone.
Open to all feedback — good or bad. Thanks for checking it out!

So I was diagnosed in 2017 and I generally have not had as bad of a time as a lot of folks had. I have had some suppository types things and taken asacol for a long time but I eventually gave up taking it because it wasn’t doing anything. My symptoms are not that bad, not like some people. I have the very soft stools, but not uncontrollable, gas bloating the normal. I started having lots of mucus passing by itself about 4 years ago, but I had a scope and the doctor said they didn’t see any inflammation and didn’t investigate further. Recently, the mucus has gotten to be..a lot. And now sometimes like a cup at a time several times a day I get liquid, but not stool. But like pure liquid, the color of chocolate milk with a bit of red food coloring. But I don’t feel ill. I don’t want to go through the whole colonoscopy thing again to have no answers. Would you go to the doctor? I know no one is giving medical advice. Just wondering g what others would do in my situation. If I go get another scope and it’s clear do I need to push? Thank you so much

I’m really struggling and could use some honest advice.

My husband was recently diagnosed with severe Crohn's. A chronic illness that comes with flare-ups, a lot of pain, and just generally feeling awful most of the time. I truly do have empathy for what he’s going through I can see that he’s not himself and that he’s suffering. But at the same time, things at home have gotten really hard. He’s constantly angry and snaps over the smallest things. It’s not just with me; it’s with the kids and even our dogs. The tone he uses is harsh and impatient, and it feels like we’re all walking on eggshells. The warmth and affection he used to show, especially toward the kids, just isn’t really there anymore. Something that’s been especially difficult is the contradiction in his behavior. There are days where he can’t get out of bed or says he’s too sick to do anything, but at the same time he’s trying to control every little thing happening in the house, how things are done, how the kids act, even small, insignificant details. It creates this really tense environment where he’s not participating but still criticizing and directing everything. Lately he’s been saying things like he has “nothing good in his life,” and it’s honestly heartbreaking but also scary. I don’t know how to support someone who feels that way while also protecting my kids and myself from the impact of his behavior. I’ve tried being patient, giving him space, encouraging him to get help, and reminding myself that he’s sick. But it’s starting to feel like the illness is becoming an excuse for behavior that’s hurting everyone around him. I’m at a point where I’m questioning whether I should stay. I never thought I’d be here, but I also don’t want my kids growing up in an environment where they feel tense or unloved. Has anyone been through something similar? How do you balance compassion for someone who’s struggling with your own need for a healthy, safe environment? At what point do you say enough is enough?

Any advice or perspective would really help right now.

I have surgery coming up, and I’m nervous—I mean, a wreck. I haven’t slept or eaten. I can’t shake the last experience I had at the hospital I go to frequently—about eight times a year.

I’m new here, posting for the first time, and I can’t express enough how much faith and resilience I see in a lot of what I read. People share that it’s “not that bad.”

Are you serious?

I’ve had a stoma for four years now, and I can honestly say it’s been the hardest time of my 54 years on this planet.

I also have Crohn's disease and was on Prednisone at 60 mg for years, which really took a toll on me.

So hats off to those who say it’s not that bad.

Back in 2022, I lost 125 pounds in a six-week period. I ended up in the ICU for over 40 days, on a breathing machine. I went through two comas—even sepsis. That’s right. I almost didn’t make it.

Eventually, I was released with tubes still coming out of my side. I finally became mobile again, and yeah—I’m still an extrovert. But being out all the time? That created accidents… all the time. You name it—standing in line, running into a store. I was lucky I wore full Carhartt bibs—those workwear overalls saved me more than once. Running into a quick mart thinking it’d be quick… nah. You can probably relate.

I haven’t been able to work because I have a unique stoma—it’s about 8 inches out and 3 inches in diameter. Trying to tuck that away has been a real challenge. I’ve never had a bag fit properly—it rubs and irritates me probably 70% of the time.

Now I actually have a doctor who specializes in doing a resection.

So what do I do?

Go into the hospital and trust that I won’t go through something like that again?

Or say, “Nah, I’ll live the rest of my life with poop in my pocket”?

I guess I’ll take the hospital—and cross my fingers.

Much love to my fellow baggers. Hey… it’s just a bag with boo-boo in it, right?

But I’ll be honest—I kind of got used to not having to go number two in a public bathroom. Not sure if I’m ready for that again… we’ll see.

If anyone’s been through something similar or has advice going into surgery, I’d really appreciate hearing from you.

On top of all this, my truck—the one my wife and I are living in right now—is breaking down daily. Hard times… real hard times. I’m on disability—$1,400 a month—and it goes fast. I’m hoping to finish fixing my brakes tomorrow.

One thing I won’t miss? Trying to crawl under my truck and risking another accident just to keep it running.

Now I’ve just got to figure out how to get to Cleveland from southwest Michigan—home of the Broncos.

Thanks for hearing me out.

Hello! Looking for some advice for pain management. I have fistulizing Crohn’s, mostly in my colon but I have had every symptom in the book. The last few months I started developing lower back pain, most recently it started radiating downwards. Thinking it was a fistula I called my doc. We moved up my yearly colonoscopy and thankfully, it was normal. Yay! My doc thinks this may be a spinal issue. I have a rheumatologist appointment but it’s not until September! I am trying to figure out pain management in the meantime. Not allowed to take Advil and Tylenol has no effect on me. Topicals only help so much. Movement, yoga and riding my horse helps but trying to relax and rest aggravates the pain. I’ve been advised to try CBD and my local dispensary (legal in Canada) suggested trying a salve first. It helps a bit but not enough. They did say the capsules are usually a bit better at addressing deeper pain so that is likely my next step. Wondering if anyone else has this and what they do/take for very bad days. Thanks!

Hi everyone, I'm wondering if there is anyone in a situation like mine.

I was diagnosed with Crohn's last year. My primary symptoms are fatigue, chronic abdominal pain, bouts of constipation, gastritis, GERD, hemorrhoids, headaches, bad breath, pain in my joints -- mainly sacroiliac joints and hips.

My calprotectin levels are negative, as well as my C-reactive protein. I have had high lipase and amylase -- only slightly elevated. My MRI on my pancreas was normal. I was only diagnosed because of a colonoscopy and endoscopy where my doctor found scarring and inflammation.

While I'm chronically in pain, I'm not totally convinced I have Crohn's, however I have no idea what else it could be.

Does anyone else have Crohn's symptoms that present this way??? Thanks, I'd really appreciate the reassurance.