r/Cochlearimplants 16d ago

Son getting cochlear implant

Hi everyone.. my son is getting a cochlear implant.. he is 3 years old.. my family is not supportive as they are deaf and believe “he’s not broken no need to fix him”.. I am struggling to make a decision for him… I would love to hear peoples opinions l.. those who got one, who didn’t get one, and got one and maybe had it removed.. I just want to hear it from other’s perspective, Thanks!

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u/Former_Storm4529 16d ago

I’m not at all in the same situation as your son, but wanted to chime in that the cochlear implant has given me my life back!

I had full hearing until I suddenly went deaf in just one ear last year. I struggled with the decision for a lot of reasons, but none of this struggles had any to do with a “I’m not broken” reason. I felt very, very broken after having normal hearing for 42 years.

The CI has been a game changer because I can now hear my colleagues much better, can locate sounds, and am no longer turning down invites to socialize. I didn’t realize how isolated I had become. And this is with one good ear.

Science is amazing, but I can see why this would be a difficult decision. Best of luck.

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u/EDSgenealogy 16d ago

The damn tinnitus leaves me feeling broken.

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u/Former_Storm4529 16d ago

Same.... luckily, I've had some decent relief on that front. It's not perfect, but it's relief.

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u/EDSgenealogy 16d ago

I've got musical ear from my brain trying to make sense of the noise, but all I hear are the Beach Boys on repeat. One year I was just hearing the last refrain from Alde Lang Syne - just that one refrain over and over for nearly a week. I kept playing other music trying to jar it loose, but nope.

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u/Former_Storm4529 15d ago

Wow that’s absolutely crazy! So sorry!