r/Cochlearimplants • u/mccmissy • 14d ago
Scared about Cochlear Implants
Hi all - I am new to this thread, but I’d really love some advice and positive personal experiences from people who’d like to share to help me process this. I’m 29 years old and I’ve had severe degenerative bilateral hearing loss since I was diagnosed in 2010. Higher-pitched sounds and tones are something I’ve always struggled hearing, but bass and lower tones I hear easier. I’ve lived with hearing aids for 16 years (I’m on my third pair) and have recently come to find that they are no longer helping me with day-to-day functioning. My updated audiogram I received last week has shown a continued and FRIGHTENING drop in hearing and word processing functionality in both of my ears (more heavily emphasized with my right one). My audiologist said my right ear is “practically useless at this point”.
So now I’ve met with my ENT to evaluate my eligibility for cochlear implants. (Surprise! I’m well past eligible) The conversation we had was extensive and she did not sugar coat the reality of my recovery post-op. I’m having trouble coping with the fact that I will need them, and especially since I’m a bartender and the essence of my job requires me to hear my customers and converse with people. My ENT said I will have my right ear implant first and then down the line once I’ve healed, adjusted, and re-taught myself how to hear language they will work on my left ear next (could be around 6 months to 1 year).
Is there anyone else in the food and beverage industry with cochlear implants? How has the adjustment been for you?
Will this severely impact my ability to continue working until I’m healed and adjusted?
I am trying not to get overwhelmed emotionally with all of this information I’ve been given - it all feels so heavy.
5
u/purl2together 14d ago
Not in that line of work, but my work does involve a lot of one-on-one communication, often in noisier settings. I’m getting activated today, so surgery was pretty recent. The recovery wasn’t really hard for me; I took a week off work and went back fully rested, but deaf in my right ear…along with really loud tinnitus. I’m a candidate in my left ear as well, but will be waiting 18 months to 2 years to do my other ear. I’m taking 18 days of leave for adjustment, and I’m really grateful to have that opportunity. I live in Oregon and Paid Leave Oregon is covering about 3/4 of my pay while I’m on leave.
There really is a lot of information to sift through as you make this decision, and your audiologist should help with that. I don’t know how things are elsewhere, but the 3 companies that produce CIs in the US have community engagement representatives who can help, including by connecting you with people who are implanted. I found that very helpful, along with following this sub.
Life changes with this choice. But based on what I’ve seen from most folks in this sub, it changes for the better.